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Sleep Apnea No Treatment for Child
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keela1979 Offline

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Post: #11
RE: Sleep Apnea No Treatment for Child
Thank you all for the help. We will meet with PCP tomorrow and ENT next Friday. I will update then. Thanks again
09-19-2016 10:52 AM
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0rangebear Offline

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Post: #12
RE: Sleep Apnea No Treatment for Child
I don't know where you live or your insurance/financial situation but there a numerous outstanding children hospitals in the USA.

If it was my son I would move heaven and earth to get him to one of these children's hospitals.

I have a son who was born with a hearing impairment and we went to numerous ENT's with differing opinions on treatment before we discovered the children's hospital. They are truly better equipped to diagnose children than family doctors ENT and GP's.

You may also want to read the book

Solve Your Child's Sleep Problems
https://en.wikipedia.org/wiki/Richard_Ferber

2004-Bon Jovi
it'll take more than a doctor to prescribe a remedy

Observations and recommendations communicated here are the perceptions of the writer and should not be misconstrued as medical advice.
09-19-2016 01:21 PM
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keela1979 Offline

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Post: #13
RE: Sleep Apnea No Treatment for Child
We are going to the childrens hospital where I live, and seeing a Pediatric ENT. He is the same MD who did his T&A. He also did his sleep study at the sleep lab located at the Childrens Hospital.
Thanks
09-19-2016 01:41 PM
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richb Online

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Post: #14
RE: Sleep Apnea No Treatment for Child
Hi keela1979,

Welcome to the Apnea Board. The first Sleep Doctor that I went to see said that he got into the field after finding that a number of children suffered from both sleep apnea and HDAD. This particular Doc "specialized" in Obstructive Apnea and couldn’t help me because I had Central Apnea. In looking at your sons numbers I don't see any Obstructive events. What I do see are Central Apneas and Hypopneas. It will take some investigation to determine whether the Hypopneas are Central or Obstructive in nature. I would want to get a good look at the Hypopneas to see if they resemble periodic breathing. In addition I would want to see if your son shows signs of Periodic Breathing that doesn't get scored as Hypopneas. Central Apnea, Central Hypopnea and Periodic Breathing are related and are rare when not associated with Obstructive Apnea. Periodic Breathing and Hypopneas can contribute to O2 desaturations and disrupted sleep. When you are looking for a qualified Sleep Doctor you need to be sure that the Doctor is familiar with Central Apnea. I would continue to follow up on your sons care because the AHI number might not be telling the whole story. The way he feels and acts can also be good clues . Stay in touch.

Rich

Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here: http://www.apneaboard.com/wiki/index.php...SleepyHead
(This post was last modified: 09-19-2016 04:20 PM by richb.)
09-19-2016 03:52 PM
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0rangebear Offline

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Post: #15
RE: Sleep Apnea No Treatment for Child
(09-19-2016 01:41 PM)keela1979 Wrote:  We are going to the childrens hospital where I live, and seeing a Pediatric ENT. He is the same MD who did his T&A. He also did his sleep study at the sleep lab located at the Childrens Hospital.
Thanks


Good to hear. May the Good Lord be with you and you son

2004-Bon Jovi
it'll take more than a doctor to prescribe a remedy

Observations and recommendations communicated here are the perceptions of the writer and should not be misconstrued as medical advice.
09-20-2016 07:18 AM
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keela1979 Offline

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Post: #16
RE: Sleep Apnea No Treatment for Child
Thank you! I am praying also!Thanks
09-21-2016 06:42 PM
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keela1979 Offline

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Post: #17
RE: Sleep Apnea No Treatment for Child
Update:
We visited with his PCP. Lab work was drawn to make sure everything is normal. We also followed up with ENT. He can't do anything b/c his apenic events are central. We have an appointment at the sleep clinic in 2 weeks. Hopefully we can get some answers then. Thanks to everyone for your responses!
10-04-2016 11:08 AM
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Sleeprider Online
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Post: #18
RE: Sleep Apnea No Treatment for Child
Keela as a member you have access to the Members Only private files. Did you by any chance read the Evaluating Your Child for Sleep Apnea article? http://www.apneaboard.com/file_links121/...0Apnea.pdf

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10-04-2016 11:12 AM
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keela1979 Offline

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Post: #19
RE: Sleep Apnea No Treatment for Child
I just read it. Thank you. The major problem we have run into is that, all, except 1, of his episodes are central. The above article is discussing OSA. His ENT MD says he can't treat it. Hopefully we will get some answers at his upcoming appointment. The good thing is the sleep clinic he is visiting, has a pulmonologist and neurologist on staff. Thanks again!!
10-04-2016 02:28 PM
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Sleeprider Online
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Post: #20
RE: Sleep Apnea No Treatment for Child
Pediatric apnea is a tough subject and few of us have any familiarity with the issues. In adults, we treat CA with adaptive servo ventilation, and I can't even comment on the use of that approach for children. Wish you and your son the best of luck and good health. Hopefully this will pass, or a good solution will be found.

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10-04-2016 03:41 PM
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