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So Frustrated!
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Sleepin'Sam Offline

Members

Posts: 5
Joined: Jun 2013

Machine: Respironics Auto DS560
Mask Type: Nasal pillows
Mask Make & Model: Swift "For Her"
Humidifier: Res Auto DS560
CPAP Pressure: 5-20cm/H2O
CPAP Software: SleepyHead

Other Comments:

Sex: Undisclosed
Location:

Post: #11
RE: So Frustrated!
(06-29-2012 02:45 PM)kbenning Wrote:  Last year I was diagnosed with sleep apnea. I tried every mask there was and could not use them due to sinus pain. I saw my ENT and was diagnosed with a deviated septum. In March of this year I had surgery to correct it.

I was told to wait a couple months for healing and to have another sleep study. I did so and I not only have apnea still but worse? They put me on the cpap and I woke up every 15-30 minutes throughout the night. We ended the night about 1 1/2 hours early because I had really had enough. I was so exhausted and irritated.

I've been using my cpap at home. The left side of my nose keeps draining. Once I finally seem to get that cleared up I put the CPAP on and I instantly feel like there is massive pressure in my nose and eyes. I turn the machine on and have an ocean sound in my left ear. KRKRKRKRRRRR. I tried extending the ramp time hoping maybe I could just get to sleep. My contact in respiratory at the home pharmacy place says that he has never heard of someone having that sound in their ear while on the CPAP. His tone indicates he is thinking I just don't want to use it which is not the case. Yeah, I'd love to not have sleep apnea but it is what it is and I just want it to work and move on with my life.

During the day my left side of my nose always feels like something is up in there, not totally blocking the breathing but it's not flowing properly. If by chance I do fall asleep with the cpap on, I am constantly waking just like during my sleep study. I go through about 3 hours of that then I take it off because quite frankly I feel like I sleep more with it off.

I just want some sleep! I would give almost anything to wake up feeling rested. Sad It makes me want to cry. I am seeing the ENT specialist next week. I need to tell him also that every time I swallow (even spit) I get a pressure and fluttering in both my ears. I've been on the nasal steroids prior to and after surgery which give me massive headaches so they had me discontinue them. I'm not sure what else to do at this point. I just hope that the ENT specialist takes me seriously and can understand what I am telling him. I really need this resolved.


Talk to your doctor about decongestants, allergy-poof your room, maybe a CT scan to see if there is an ear or nasal issue undiagnosed Smile Feel better.
06-05-2013 10:11 PM
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MsDixie Offline

Preferred Members

Posts: 37
Joined: Apr 2013

Machine: REMstar Auto A-Flex system One
Mask Type: Nasal pillows
Mask Make & Model: Bella Swiift FX
Humidifier: Respironics System One / heated hose
CPAP Pressure: 9
CPAP Software: EncoreBasic Compliance Manager

Other Comments: Have tried the Swift FX , Wisp Nasal mask, now Bella Swift

Sex: Female
Location: Mississippi

Post: #12
RE: So Frustrated!
I agree with archangel - the oracle mask for the mouth only is what I'd try until the other is resolved.

Bless your heart I know you have got to be frustrated glad you found this forum.
Hang in there!
06-06-2013 11:17 AM
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PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,067
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #13
RE: So Frustrated!
Just in case y'all didn't notice, the original post was from over a year ago.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
06-06-2013 03:44 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #14
RE: So Frustrated!
(06-06-2013 03:44 PM)PaulaO2 Wrote:  Just in case y'all didn't notice, the original post was from over a year ago.
It was not me bumped up the thread this time, I was sleeping Coffee
06-06-2013 04:41 PM
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