Post Reply 
So far so good? SleepyHead report #1
Author Message
vsheline Online

Advisory Members

Posts: 1,908
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #11
RE: So far so good? SleepyHead report #1
(11-16-2014 06:22 PM)Lambsydoats Wrote:  So...I start trying again to get in to see my sleep doc/his PA to answer my questions about why all the centrals and what's the Cheyne-Stokes all about? (Remember--I had centrals without any pressure, and I don't think I've suffered any TBIs or had any strokes or anything.)

Wikipedia article on CSR:
http://en.wikipedia.org/wiki/Cheyne–Stokes_respiration

With me, I think the reason I have centrals and CSR is because my pulse is slow, and my circulation is slow. Slow circulation is one of the things which tends to make respiration unstable. When sleeping it is not unusual for my pulse to be in the 40's or 30's. Very rarely, it may dip a little below 30 beats per minute while asleep.

(My cardiologist is keeping an eye on it, in case I need a pacemaker soon.)

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
(This post was last modified: 11-16-2014 10:59 PM by vsheline.)
11-16-2014 10:49 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #12
RE: So far so good? SleepyHead report #1
Just a PSA on sleep hygeine:

It is not a good thing to read or watch TV while in bed. The bed should be used for two things: sleeping and sexual activities . Nothing else. The body remembers where it is and what it was doing. To sleep best, you should only go to bed when tired. Put on the mask and lay down. By going to bed earlier, putting on the mask, and then reading, you are not teaching the body and brain what to do. So on the nights you go to bed and you don't read, but you lay right down, you may not fall asleep. Your body says "Where's the book? We aren't ready yet." It has gotten used to the book being the sleeping pill or the step before.

Read the book elsewhere if you need to unwind before laying down. Watch TV elsewhere, too. Television is even worse than a book because of the way it engages our brains in a totally different way.

Make putting on the mask part of your "time to go to sleep" ritual. Our body and brain grow to accept it easier this way.

Google "Sleep Hygiene" for a plethora of tips and articles.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
11-17-2014 01:55 PM
Find all posts by this user Post Reply Quote this message in a reply
Lambsydoats Offline

Preferred Members-2

Posts: 117
Joined: Oct 2014

Machine: ResMed AirSense 10 AutoSet for Her
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit ™ P10 Nasal Pillow
Humidifier: AirSense 10 AutoSet for Her-integrated
CPAP Pressure: 8
CPAP Software: SleepyHead

Other Comments: Initially: AHI=52; 2nd: AHI=18; CPAP 11-10-14; as of 8-18-15: AHI consistently under 5.0

Sex: Female
Location: Southwest Michigan, USA

Post: #13
RE: So far so good? SleepyHead report #1
Paula, all very good reminders about maintaining good sleep habits. Especially now that my mind MUST work with the rest of my body to help therapy do its thing.

Thank you.

To all, to each, a fair good-night,
And pleasing dreams, and slumbers light.
Scott—Marmion. L’Envoy. To the Reader.

Diagnosed with OSA September 2014
AHI=18
Lowest SpO2: 79%
11-17-2014 06:21 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Lambsydoats Offline

Preferred Members-2

Posts: 117
Joined: Oct 2014

Machine: ResMed AirSense 10 AutoSet for Her
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit ™ P10 Nasal Pillow
Humidifier: AirSense 10 AutoSet for Her-integrated
CPAP Pressure: 8
CPAP Software: SleepyHead

Other Comments: Initially: AHI=52; 2nd: AHI=18; CPAP 11-10-14; as of 8-18-15: AHI consistently under 5.0

Sex: Female
Location: Southwest Michigan, USA

Post: #14
RE: So far so good? SleepyHead report #1
The fact that most of my apneas are "clear airway" certainly has me concerned! The fewest I have had is 28, and the most, 40.

Without those, I would easily be in the normal range for apneas. It makes me wonder if a CPAP is even necessary for my particular mix of apneas.

What kinds of tests are there to determine the cause of central and/or clear-airway AHIs? (I'm off to don my researcher hat yet again....)

Lamb

To all, to each, a fair good-night,
And pleasing dreams, and slumbers light.
Scott—Marmion. L’Envoy. To the Reader.

Diagnosed with OSA September 2014
AHI=18
Lowest SpO2: 79%
11-17-2014 06:43 PM
Find all posts by this user Post Reply Quote this message in a reply
Lambsydoats Offline

Preferred Members-2

Posts: 117
Joined: Oct 2014

Machine: ResMed AirSense 10 AutoSet for Her
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit ™ P10 Nasal Pillow
Humidifier: AirSense 10 AutoSet for Her-integrated
CPAP Pressure: 8
CPAP Software: SleepyHead

Other Comments: Initially: AHI=52; 2nd: AHI=18; CPAP 11-10-14; as of 8-18-15: AHI consistently under 5.0

Sex: Female
Location: Southwest Michigan, USA

Post: #15
Clear Airway Events!
Last night, I had 34 clear-airway events!

Today is a snow day. When our city's major university is closed, so is the agency for which I work. I hope I can get to the sleep center tomorrow for my appointment!

By the way, in case the thought had crossed your mind, yes...I am obese. My entire adult life, I was a size 2-4. And then when I turned 52, things really started to go haywire. I've been on meds (including steroids several times) that caused my body to change altogether. My normal body temp is well below 98.6, I gained 60 pounds (10 of which I've lost in the past couple of months--yay) and, after all kinds of tests, was diagnosed with an abundance of maladies. One of them is fibromyalgia. I used to exercise every morning and night (mat and weights), and then I couldn't even bend my knees without excruciating pain that would last for weeks. My wrists were painful and incredibly unstable. Bottom line? I have felt like I'm 100 years old. I get that exercise is good, but when even the least little movement leaves me in unrelenting pain, hard choices need to be made.

My weight is a sad, sad consequence.

My PCP told me that when fibro was first diagnosed, one doctor in particular proved that he could manifest its symptoms in test subjects by sleep deprivation. I am so praying that I can get my sleep apnea under control and see all (most of) these health issues dissolve.

Until then, is it the chicken or the egg?

Lamb

To all, to each, a fair good-night,
And pleasing dreams, and slumbers light.
Scott—Marmion. L’Envoy. To the Reader.

Diagnosed with OSA September 2014
AHI=18
Lowest SpO2: 79%
11-18-2014 07:50 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
vsheline Online

Advisory Members

Posts: 1,908
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #16
RE: So far so good? SleepyHead report #1
(11-17-2014 06:43 PM)Lambsydoats Wrote:  The fact that most of my apneas are "clear airway" certainly has me concerned! The fewest I have had is 28, and the most, 40.

Without those, I would easily be in the normal range for apneas. It makes me wonder if a CPAP is even necessary for my particular mix of apneas.

Hi Lamb,

Without CPAP your obstructive apneas would be much worse.

If the average number of central apneas per hour (CAI) when being treated and actually asleep, not when just masked up but not yet asleep, is not at least 5.0 then I think insurance companies in USA will not cover an ASV machine, which is the best type of CPAP machine for treating any combination of obstructive sleep apnea plus central apneas or CSR or Periodic Breathing.

I've heard some insurance companies don't cover ASV machines unless the CAI is at least 10 or 15, which would be higher than your CAI is now.

The point is your present CAI is borderline now.

During the first weeks and months, as we get used to the CPAP therapy our CAI tends to go down. So, hopefully, your CAI will be even lower in a few more weeks or months.

So, unless some of the CA events are extremely long in duration, I don't think your doctor will be very concerned yet. Nor should you be worried yet, I think.

If your CAI during CPAP treatment remains for weeks and months at the borderline of mild mixed/complex sleep apnea, I think your doctor would either order an ASV titration or would try lowering the pressure a little to try to find an optimal lower pressure which may raise your Obstructive Apnea Index (OAI) a little but may also lower your CAI a lot.

In fact, you could ask the doc now to lower the pressure a little (like perhaps 8 instead of your present 9 cm H2O), with the idea of raising it again in a month or so, after you've gotten more accustomed to CPAP therapy.

In any case, I suggest it is best to not let yourself become alarmed, and to do research on what types of health conditions tend to cause CA events, and to let us know what you discover.

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
(This post was last modified: 11-18-2014 01:39 PM by vsheline.)
11-18-2014 12:39 PM
Find all posts by this user Post Reply Quote this message in a reply
Lambsydoats Offline

Preferred Members-2

Posts: 117
Joined: Oct 2014

Machine: ResMed AirSense 10 AutoSet for Her
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit ™ P10 Nasal Pillow
Humidifier: AirSense 10 AutoSet for Her-integrated
CPAP Pressure: 8
CPAP Software: SleepyHead

Other Comments: Initially: AHI=52; 2nd: AHI=18; CPAP 11-10-14; as of 8-18-15: AHI consistently under 5.0

Sex: Female
Location: Southwest Michigan, USA

Post: #17
RE: So far so good? SleepyHead report #1
(11-18-2014 12:39 PM)vsheline Wrote:  Without CPAP your obstructive apneas would be much worse.

Uh...oh yeah. How soon we forget. Man, apparently my CPAP hasn't helped my brain function just yet.

Sigh.Oh-jeez

To all, to each, a fair good-night,
And pleasing dreams, and slumbers light.
Scott—Marmion. L’Envoy. To the Reader.

Diagnosed with OSA September 2014
AHI=18
Lowest SpO2: 79%
11-18-2014 01:00 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
PaytonA Online
Wiki Editor
Monitors

Posts: 3,007
Joined: Dec 2013

Machine: ResMed S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: H5i(distilled-top up)
CPAP Pressure: VAuto MinE14.0 MaxI 20.6 PS4.0
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Orange County,California

Post: #18
RE: Clear Airway Events!
(11-18-2014 07:50 AM)Lambsydoats Wrote:  Today is a snow day. When our city's major university is closed, so is the agency for which I work.

Which university if you do not mind my asking. Western Michigan University?
11-18-2014 01:46 PM
Find all posts by this user Post Reply Quote this message in a reply
Lambsydoats Offline

Preferred Members-2

Posts: 117
Joined: Oct 2014

Machine: ResMed AirSense 10 AutoSet for Her
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit ™ P10 Nasal Pillow
Humidifier: AirSense 10 AutoSet for Her-integrated
CPAP Pressure: 8
CPAP Software: SleepyHead

Other Comments: Initially: AHI=52; 2nd: AHI=18; CPAP 11-10-14; as of 8-18-15: AHI consistently under 5.0

Sex: Female
Location: Southwest Michigan, USA

Post: #19
RE: Clear Airway Events!
(11-18-2014 01:46 PM)PaytonA Wrote:  
(11-18-2014 07:50 AM)Lambsydoats Wrote:  Today is a snow day. When our city's major university is closed, so is the agency for which I work.

Which university if you do not mind my asking. Western Michigan University?

Yep--WMU. Kalamazoo College is even closed. That happens every, oh, three decades or so.

To all, to each, a fair good-night,
And pleasing dreams, and slumbers light.
Scott—Marmion. L’Envoy. To the Reader.

Diagnosed with OSA September 2014
AHI=18
Lowest SpO2: 79%
11-18-2014 04:24 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
PaytonA Online
Wiki Editor
Monitors

Posts: 3,007
Joined: Dec 2013

Machine: ResMed S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: H5i(distilled-top up)
CPAP Pressure: VAuto MinE14.0 MaxI 20.6 PS4.0
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Orange County,California

Post: #20
RE: Clear Airway Events!
(11-18-2014 04:24 PM)Lambsydoats Wrote:  
(11-18-2014 01:46 PM)PaytonA Wrote:  
(11-18-2014 07:50 AM)Lambsydoats Wrote:  Today is a snow day. When our city's major university is closed, so is the agency for which I work.

Which university if you do not mind my asking. Western Michigan University?

Yep--WMU. Kalamazoo College is even closed. That happens every, oh, three decades or so.

I asked because I lived in the Ann Arbor area and the Detroit area. Went to high school and college in the Detroit area.

Best Regards,

PaytonA
11-19-2014 12:26 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  One good night, now leak issues? sleepyguy99 8 354 12-03-2016 02:17 PM
Last Post: sleepyguy99
  First SleepyHead report for S9 Autoset Lanco 41 1,699 11-27-2016 05:11 AM
Last Post: Newbee2016
  What report from SleepyHead for FAA? gkainz 5 261 11-23-2016 09:50 PM
Last Post: KSMatthew
  in need of a good sleep specialist dolt 10 387 11-18-2016 05:09 PM
Last Post: richb
  A Good Thing Mr. Van Winkle 10 390 11-17-2016 07:29 AM
Last Post: OpalRose
Question [Diagnosis] Sleep Study Report: Lowest Desaturation vs Lowest Saturation blueelement2016 4 255 11-09-2016 02:37 AM
Last Post: blueelement2016
  Looking for advice on new machine, good for travel - and adapting to life without PAP Hazel 8 479 11-08-2016 05:59 PM
Last Post: PsychoMike

Forum Jump:

Who's Online (Complete List)