Post Reply 
So here's the thing
Author Message
AlanE Offline

Advisory Members

Posts: 1,496
Joined: Mar 2015

Machine: ResMed AirSense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: P10 & Mirage Liberty backup
Humidifier: Built-in
CPAP Pressure: 10-14
CPAP Software: ResScan SleepyHead

Other Comments: ʕ•ᴥ•ʔ So Long, and Thanks for All the Fish

Sex: Male
Location: Southwest Florida

Post: #1
So here's the thing
My wife insists that since I get 7+ hours of sleep a day I must be well rested and the fact that I am not must mean I am crazy/insane/stupid/hateful - insert your insult here. I'm really at the point where I want to just toss the cpap aside and pray that I die in my sleep. Extreme? yeah maybe but why do those that do not understand what we go through, insist we must be making this up? That we use the fact that we have this thing called "apnea" to justify a bad mood/lack of energy/insert some reason to justify calling us a sloth/lazy/expletive here - I'm about ready to give up.Dont-know

She has lupus and her medication (steroids amongst other things) causes her to gain weight. You would never catch me saying anything in regards to that.

I toss in the towel.. waiter - check please. Crazy



Using FlashAir W-03 SD card in machine. Access through wifi with FlashPAP or Sleep Master utilities.

I wanted to learn Binary so I enrolled in Binary 101. I seemed to have missed the first four courses. Big Grinnie
04-23-2015 08:06 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,388
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #2
RE: So here's the thing
Your choice of course. Do you look at the data to see if there is a reason you're not feeling better? Other health issues? Sounds like things are pretty tough and CPAP does not necessarily cure depression. Sounds like you need to find additional help.

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
04-23-2015 08:16 PM
Find all posts by this user Post Reply Quote this message in a reply
worn_out_in_lebanon Online

Advisory Members

Posts: 271
Joined: Jan 2015

Machine: Resmed A10 Autoset
Mask Type: Full face mask
Mask Make & Model: F20 (newest Resmed ffm)
Humidifier: Included, ClimateLine tubing
CPAP Pressure: 13-15, EPR:0
CPAP Software: SleepyHead

Other Comments: I.T. Project Manager. Started CPAP therapy March 16, 2015. Untreated AHI 39.

Sex: Male
Location: TN

Post: #3
RE: So here's the thing
Even without apnea/cpap in the mix, different people need different amounts of sleep. Those who get by on 6-7 hours can't understand those who need 8-9 hours...

Plus it takes a while to "come back" after so many months/years of sleeping badly. Not sure how long "a while" is, but pretty sure it's not a couple of weeks.
04-23-2015 08:30 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Mark Douglas Offline

Advisory Members

Posts: 513
Joined: Apr 2015

Machine: Sys 1 (60) RemStar BiPAP Auto with Bi-Flex 760P Auto Bi-Level (Variabl
Mask Type: Nasal mask
Mask Make & Model: PR Wisp
Humidifier: PR Sys One heated
CPAP Pressure: RiseTime 3 Fxd E-9.0 / I-11.5
CPAP Software: SleepyHead EncoreBasic

Other Comments: Hashimoto's thyroiditis.

Sex: Male
Location: SW Ohio

Post: #4
RE: So here's the thing
I spent my whole life being a "good boy" and I am now going to tale care of me!
Alan I'm thinking you too.
.
If you do not take care of yourself you cannot take care of anyone else.
.
If you are mobile I prescribe at least a 20 min a day x 2 walk outside. In my case it's more like an amble than a walk LOL
.
And yes it sounds like you need someone to talk to.
.
If you need 10 hrs sleep to feel good then do it.
.
Tell her I said so.

I use my PAP machine nightly and I feel great!
Updated: Philips Respironics System One (60 Series)
RemStar BiPAP Auto with Bi-FlexModel 760P -
Rise Time x3 Fixed Bi-Level EPAP 9.0 IPAP 11.5 (cmH2O)
04-23-2015 09:14 PM
Find all posts by this user Post Reply Quote this message in a reply
retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #5
RE: So here's the thing
(04-23-2015 08:06 PM)AlanE Wrote:  I'm really at the point where I want to just toss the cpap aside and pray that I die in my sleep.

Yep... That'll teach her by gum.......


(04-23-2015 08:06 PM)AlanE Wrote:  She has lupus and her medication (steroids amongst other things) causes her to gain weight. You would never catch me saying anything in regards to that.

No you won't. And that's very commendable. Steroids cause lots of stuff, not just weight gain. I'm sure you are aware of that. One of the things it can cause is mood changes, or more simply put making one less than nice at all times.

But while stuff like that might EXPLAIN some of your stresses, it certainly doesn't mean you should simply accept this as your reality. You do need to find out how to make Alan the primary person in this narrative for awhile. To do that counseling sessions might be very helpful. If you cannot do that for yourself, then maybe you could send your wife to counseling? Then you could take a nap while she's gone.
04-23-2015 11:50 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
AlanE Offline

Advisory Members

Posts: 1,496
Joined: Mar 2015

Machine: ResMed AirSense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: P10 & Mirage Liberty backup
Humidifier: Built-in
CPAP Pressure: 10-14
CPAP Software: ResScan SleepyHead

Other Comments: ʕ•ᴥ•ʔ So Long, and Thanks for All the Fish

Sex: Male
Location: Southwest Florida

Post: #6
RE: So here's the thing
Thanks its frustrating to say the least. Everyone (those without apnea) thinks this machine is magical. Wear it one night and the next day you bound out of bed and run a marathon, you're this pleasant bundle of energy. I guess even I expected more from it.
I know the CPAP is working a little but right now for example, I've been awake for an hour and I'm tired. I need to go back to sleep but I have work in a bit. I'm due back at my doctor in a few days and we'll see what adjustments can be made to the machine to make it better.

Just looked at my data. no wonder...

[Image: screenshot-20150424-042026.png]

mask leak aside, it was a bad night.



Using FlashAir W-03 SD card in machine. Access through wifi with FlashPAP or Sleep Master utilities.

I wanted to learn Binary so I enrolled in Binary 101. I seemed to have missed the first four courses. Big Grinnie
04-24-2015 03:25 AM
Find all posts by this user Post Reply Quote this message in a reply
me50 Offline

Advisory Members

Posts: 2,559
Joined: Aug 2013

Machine: resmed S9 VPAP Auto
Mask Type: Nasal mask
Mask Make & Model: Wisp and Silicone Head gear
Humidifier: resmed H5i
CPAP Pressure: 18/8
CPAP Software: SleepyHead

Other Comments:

Sex: Undisclosed
Location: USA

Post: #7
RE: So here's the thing
what did your sleep study show? if you don't have the full report including data points, get it. Starting at pressure 5 is pretty low but I don't know what your sleep study showed as the optimal pressure. Check with your doctor FIRST, but, maybe something like somnapure to help you sleep until you can get this all figured out might help you but check with your doctor first, especially if you are on other medication
04-24-2015 03:39 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
worn_out_in_lebanon Online

Advisory Members

Posts: 271
Joined: Jan 2015

Machine: Resmed A10 Autoset
Mask Type: Full face mask
Mask Make & Model: F20 (newest Resmed ffm)
Humidifier: Included, ClimateLine tubing
CPAP Pressure: 13-15, EPR:0
CPAP Software: SleepyHead

Other Comments: I.T. Project Manager. Started CPAP therapy March 16, 2015. Untreated AHI 39.

Sex: Male
Location: TN

Post: #8
RE: So here's the thing
Looks like 10 is not enough pressure for you to control your apnea... You are maxing out at 10, holding there, and still getting a bunch of obstructions.
04-24-2015 07:49 AM
Find all posts by this user Post Reply Quote this message in a reply
Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,388
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #9
RE: So here's the thing
Well, you have your EPR cranked up to 3 so your effective minimum pressure is 4, and even when you hit the maximum pressure of 10, your real pressures are 7/10. This has left you with abundant clusters of apnea. The solution is to increase minimum pressure to at least 8 and start allowing maximum pressure to rise to where it needs to be to treat your problem of a collapsing airway. The thought here is perhaps 8/14 for a pressure range with EPR on 3 if that is comfortable for you.

I think your outlook could improve if you weren't strangling at night.

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
04-24-2015 08:07 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
OpalRose Offline

Monitors

Posts: 3,181
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #10
RE: So here's the thing
AlanE,
Are you able to post a pressure graph? I see a mask pressure and AHI graph. It would be good to see on the pressure graph how often your pressure is staying at 10.
Just taking a guess though, I don't see that a max setting of 10 if high enough, plus the starting pressure is too low.
Print out your chart and take with you to your doctor appt. If he doesn't want to change your pressure, then we can guide you here. Right now, with what we have to look at, you should be somewhere in a range of 7 to 14.

Just wanted to add that your wife is probably lashing out at you due to frustration over her own health issues. Your both in a tough position. It will be up to you to watch your data and get your pressure where it needs to be to take care of your apneas. And as far as sleep issues.....when I started, I was sleeping 9 to 10 hours and felt guilty about it, but after 6 months, I am waking up after 7-8 hours.
I know most of us are impatient, but it does even out after a bit.

OpalRose
(This post was last modified: 04-24-2015 08:42 AM by OpalRose.)
04-24-2015 08:37 AM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  A Good Thing Mr. Van Winkle 10 395 11-17-2016 07:29 AM
Last Post: OpalRose
  The Water Thing and the Hose harmon k 4 356 10-23-2016 08:01 PM
Last Post: surferdude2
  First Post: The worst thing about successful treatment... DerfNL 10 899 08-21-2016 06:52 AM
Last Post: cate1898
  I think this thing may work. 3rd night in Marc615 1 519 08-10-2015 10:31 AM
Last Post: Sleeprider
  One more thing for me to try not to forget PaytonA 7 2,468 04-28-2015 05:43 PM
Last Post: truetopath
  Friend's Respironics: What *IS* This Thing? Tabbycat 5 1,865 05-02-2014 10:56 AM
Last Post: Sleepster
  how to get a different CPAP after DME did their thing chuck taylor 10 2,252 03-15-2014 09:45 AM
Last Post: me50

Forum Jump:

Who's Online (Complete List)