RE: Something to Grapple with: How Wily Lyme Disease Prowls the Body
I mentioned before, I contracted Lyme's in 2013. With symptoms of fever, headache and fatigue, I went to an urgent care center who diagnosed a urinary tract infection, and sent me home to take Cipro (antibiotic). The Cipro did beat back the Lymes, enough for me to return to work, but shortly afterward, I woke with numbness on one side of my face. I was referred for a CT scan which was negative for stroke or other physical abnormality, and released. I completed the course of Cipro. A few weeks later, we were moving into our new home, and I was so fatigued, I could not lift boxes. The first night after moving in, I woke with tingling in my fingers, double vision and headache.
We went to the emergency room, and I was admitted for diagnostics. That first night in the hospital, I was in pain, and had not pain reliever, and I slept fitfully. In the morning I awoke to find half my face was paralyzed (Bell's Palsy). I was seeing neurologists, pulmonologists, opthamologists, interists, infectious disease specialists, and they would all meet in the morning and talk about my "interesting" case. By the second day, I had bilateral facial paralysis and could no longer chew food, talk, and swallowing was getting difficult. Endless blood tests, CT scans, MRI and doppler ultrasounds, did not reveal anything. On the third day, it was concluded I had some kind of infection, and was placed in isolation. Among many other tests, a lumbar puncture was performed. Finally on the 4th day, the doctor walks in and announces, "the good news is, you don't have AIDS, Gonorrhea or syphalis". I'm certain my wife and mother in law were impressed. They found the Lyme's infection in the spinal fluid. By this time, I required a a walker, wore an eye patch for the double vision, and was in pretty bad shape.
I started intravenous antibiotics in the hospital, was fitted with a PICC line and sent home for over a month of antibiotic therapy. I didn't return to work for another two months and when I did, I was still weak and suffering cognitive issues. I was fired for performance the next month, shortly after my 1-year anniversary at that job. I was never employed again, and lived off substantial savings we had accumulated until I retired last December. It seemed I should have gotten disability, but how do you claim for something you can't see. I'm generally healthy, have my strength back with less endurance, but Lymes ended my career and changed my life.
Lyme's sucks, and you never know how it will affect you, or how it might resurface years after the infection is gone. Relavent to this discussion, my Lymes did not show up in the blood tests, and was not diagnosed until it was found in the cerebro-spinal fluid.
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(This post was last modified: 08-26-2016 07:35 AM by Sleeprider.)