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Somnolence, what do you know please?
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SnuffySleeper Offline

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Sex: Male
Location: Ontario

Post: #11
RE: Somnolence, what do you know please?
Another thing that helps me, I have that tired feeling ALL THE TIME, is not to eat a big meal. Not eating so much that you have that "full" feeling helps me not feel tired as well. Just small meals and grazing snacks like nuts and yogurt help.

I know that feeling and it's horrible, and everyday I have to fight it off.
05-08-2014 07:39 PM
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trish6hundred Offline

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Machine: Resmed S9 AutoSet for Her
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Other Comments: I started CPAP in 2008. Totally blind since birth.

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Location: Missouri, USA

Post: #12
RE: Somnolence, what do you know please?
Hi Gabby,
Give it time, you haven't been on CPAP that long; I'm sorry you are still so very tired but keep on trying. You say that you are afraid that if you go to bed early, you won't sleep through the night and will wake up earlier than you want to but I'm curious, have you tried that?
I understand what you are saying about exercise, I don't like it very much either, knowing how important it is. It's good that you are trying to cut back on meds if you can.
Good luck to you and don't give up.

trish6hundred
05-08-2014 07:47 PM
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robertbuckley Offline

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Location: New York, NY

Post: #13
RE: Somnolence, what do you know please?
There are so many factors that can be effecting, drugs that can be hurting or helping... know that it can be a long road to get relief, and it is the practice of medicine the doctors are engaged in - sometimes they need to practice before they get it perfect. BUT you need to push them.
On the sleep side - apneas aside - are you getting good sleep? Did they see any Alpha wave intrusions/arousals while you were asleep? There are drugs like Gabapentin taken in the evening that can help with that and also any nerve pain. You also wrote about pain - My sleep doc told me once the greatest enemy she had was pain, It caused more fatigue problems for her patients than any other single factor.
On the wake side - has anyone suggested mild stimulants or experimented to see how you would respond to something like Provigil or Nuvigil ? Not saying they should - but the question needs to be asked. Are you depressed? My answer to that was I am depressed because I am tired. I am not tired because I am depressed. However, depression is a major cause of chronic fatigue.
Lots of factors, no easy answers. Good Luck.
05-09-2014 12:30 PM
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Gabby Offline

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Location: Sunshine Coast, Qld., Australia.

Post: #14
RE: Somnolence, what do you know please?
(05-08-2014 07:39 PM)SnuffySleeper Wrote:  Another thing that helps me, I have that tired feeling ALL THE TIME, is not to eat a big meal. Not eating so much that you have that "full" feeling helps me not feel tired as well. Just small meals and grazing snacks like nuts and yogurt help.

I know that feeling and it's horrible, and everyday I have to fight it off.

Thanks SnuufySleeper, due to one of my medications I don't eat very much, only small meals, thank goodness, so that is taken in to account. Although I have to say I sometimes eat too many sweet things which are going to stop from today.
Big diet starts today! No joke..

I am sorry you have this horrible tiredness, hang in there you never know what's around the corner, good luck and thank you.

Sleep Tight...
Gabby
05-09-2014 06:52 PM
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Gabby Offline

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Machine: ResMed AirSense 10 AutoSet For Her
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CPAP Software: SleepyHead

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Sex: Female
Location: Sunshine Coast, Qld., Australia.

Post: #15
RE: Somnolence, what do you know please?
(05-08-2014 07:47 PM)trish6hundred Wrote:  Hi Gabby,
Give it time, you haven't been on CPAP that long; I'm sorry you are still so very tired but keep on trying. You say that you are afraid that if you go to bed early, you won't sleep through the night and will wake up earlier than you want to but I'm curious, have you tried that?
I understand what you are saying about exercise, I don't like it very much either, knowing how important it is. It's good that you are trying to cut back on meds if you can.
Good luck to you and don't give up.

Hi Trish,
Thank you for your kind reply.
I am not worried about waking up earlier, ie 6,7am, I just don't want to wake in the middle of the night and not be able to get back to sleep. I will probably be ok.
I read somewhere to start the first night fifteen minutes earlier and then each night take another fifteen off. So I took fifteen off last night and will take thirty off tonight.
My husband and I have started a short walk this week and today I start a diet to lose ten kilos.
So the ball is in my court.
I have been given some great help and support from you good guys here and I am going to take it as I cannot go on living day to day like this.
Also several people have said to still give CPAP a chance to kick in which thrills me no end.
My machine, mask and I are going really well together I am happy to report.

I hope all is well in your court and thank you again.

Sleep Tight...
Gabby
05-09-2014 07:01 PM
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trish6hundred Offline

Advisory Members

Posts: 6,436
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #16
RE: Somnolence, what do you know please?
(05-09-2014 07:01 PM)Gabby Wrote:  
(05-08-2014 07:47 PM)trish6hundred Wrote:  Hi Gabby,
Give it time, you haven't been on CPAP that long; I'm sorry you are still so very tired but keep on trying. You say that you are afraid that if you go to bed early, you won't sleep through the night and will wake up earlier than you want to but I'm curious, have you tried that?
I understand what you are saying about exercise, I don't like it very much either, knowing how important it is. It's good that you are trying to cut back on meds if you can.
Good luck to you and don't give up.

Hi Trish,
Thank you for your kind reply.
I am not worried about waking up earlier, ie 6,7am, I just don't want to wake in the middle of the night and not be able to get back to sleep. I will probably be ok.
I read somewhere to start the first night fifteen minutes earlier and then each night take another fifteen off. So I took fifteen off last night and will take thirty off tonight.
My husband and I have started a short walk this week and today I start a diet to lose ten kilos.
So the ball is in my court.
I have been given some great help and support from you good guys here and I am going to take it as I cannot go on living day to day like this.
Also several people have said to still give CPAP a chance to kick in which thrills me no end.
My machine, mask and I are going really well together I am happy to report.

I hope all is well in your court and thank you again.
Hi Gabby,
Things are well here, thank you.
That sounds like a good plan as far as 15 minutes one night and 30 minutes the next. Good luck to you and keep on trying and yes, give CPAP time to kick in and it's good to hear that you, your mask and your machine are getting on well together.
Keep on keepin' on.

trish6hundred
05-09-2014 08:01 PM
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Gabby Offline

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Posts: 664
Joined: Dec 2013

Machine: ResMed AirSense 10 AutoSet For Her
Mask Type: Nasal pillows
Mask Make & Model: Philips Nuance Nasal Mask
Humidifier: ResMed AirSense 10 For Her
CPAP Pressure: 8-14
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Sunshine Coast, Qld., Australia.

Post: #17
RE: Somnolence, what do you know please?
(05-09-2014 12:30 PM)robertbuckley Wrote:  There are so many factors that can be effecting, drugs that can be hurting or helping... know that it can be a long road to get relief, and it is the practice of medicine the doctors are engaged in - sometimes they need to practice before they get it perfect. BUT you need to push them.
On the sleep side - apneas aside - are you getting good sleep? Did they see any Alpha wave intrusions/arousals while you were asleep? There are drugs like Gabapentin taken in the evening that can help with that and also any nerve pain. You also wrote about pain - My sleep doc told me once the greatest enemy she had was pain, It caused more fatigue problems for her patients than any other single factor.
On the wake side - has anyone suggested mild stimulants or experimented to see how you would respond to something like Provigil or Nuvigil ? Not saying they should - but the question needs to be asked. Are you depressed? My answer to that was I am depressed because I am tired. I am not tired because I am depressed. However, depression is a major cause of chronic fatigue.
Lots of factors, no easy answers. Good Luck.

Hi robertbuckley,
Thanks for your suggestion. My sleep pattern at night is great and I have wonderful AHI and leak results, could not ask for better. I have finally got mask and leaks worked out and it feels good.
Sleep Doctor and I spoke about stimulants but they would not agree with other medications and blood pressure, so big no no there. I was a bit disappointed with that result.
So it looks like it is down to the pain and the depression and meds.
I am determined to beat it and will work my backside off until I start noticing some positive results.
Thanks for taking the time to reply to me.
Good luck on your journey.

Sleep Tight...
Gabby
05-09-2014 08:09 PM
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