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Still struggling..but I'm here
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mzdawn74 Offline

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Post: #1
Still struggling..but I'm here
I know I post probably way too much but I'm still struggling and feeling very hopeless at this point. I have to many issues going on right now, and everything seems so overwhelming.

I still can't sleep for more than a few hours at night, even after trying melatonin, ambien, and last night ativan. I have an appointment scheduled with my former psychiatrist on the 27th, but that's almost 2 weeks away. Hopefully he can prescribe something to help with this anxiety and insomnia.

I don't know how much longer I can continue to go on like this. Everything is getting more and more difficult day by day. Watching tv, movies, reading posts on this forum, having conversations, and just everyday tasks are so difficult due to the lack of concentration, memory loss, and OVERALL cognitive impairment.

How will this machine ever work if I'm not sleeping? How will my body ever start to heal with little to no sleep. I don't expect you all to come up with a cure for me, as I know I have to rely on my doctors for help it that area.

But, what I am looking for is reassurance. I've read so many stories on here of people who have some similarites, but never an exact match. That gets my mind to start spinning out of control, and gets difficult to stop. It worries me that I haven't seen any type of stabilization or improvement in my symptoms and I've now been on the machine for 11 days. I see so many other's comment how much better they feel after the 1st night...

I feel like I'm so far in the tunnel that there will never be any light at the end..Dont-know
07-16-2015 06:08 AM
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49er Offline

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Post: #2
RE: Still struggling..but I'm here
(07-16-2015 06:08 AM)mzdawn74 Wrote:  I know I post probably way too much but I'm still struggling and feeling very hopeless at this point. I have to many issues going on right now, and everything seems so overwhelming.

I still can't sleep for more than a few hours at night, even after trying melatonin, ambien, and last night ativan. I have an appointment scheduled with my former psychiatrist on the 27th, but that's almost 2 weeks away. Hopefully he can prescribe something to help with this anxiety and insomnia.

I don't know how much longer I can continue to go on like this. Everything is getting more and more difficult day by day. Watching tv, movies, reading posts on this forum, having conversations, and just everyday tasks are so difficult due to the lack of concentration, memory loss, and OVERALL cognitive impairment.

How will this machine ever work if I'm not sleeping? How will my body ever start to heal with little to no sleep. I don't expect you all to come up with a cure for me, as I know I have to rely on my doctors for help it that area.

But, what I am looking for is reassurance. I've read so many stories on here of people who have some similarites, but never an exact match. That gets my mind to start spinning out of control, and gets difficult to stop. It worries me that I haven't seen any type of stabilization or improvement in my symptoms and I've now been on the machine for 11 days. I see so many other's comment how much better they feel after the 1st night...

I feel like I'm so far in the tunnel that there will never be any light at the end..Dont-know

Dawn,

Your fears are understandable but it is too soon to panic. I do recall a story of a poster from another forum who struggled big time and was at alot higher pressure. To make a long story short, things greatly improved for her. If the medications aren't helping, perhaps you want to stop taking them and wait for your appointment with your psychiatrist?

Hang in there.

49er
07-16-2015 06:30 AM
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mollete Offline

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Post: #3
RE: Still struggling..but I'm here
(07-16-2015 06:30 AM)49er Wrote:  If the medications aren't helping, perhaps you want to stop taking them...
Please note that medical advice such as this can be dangerous and not permitted on the forum.

Admin please note.
07-16-2015 07:36 AM
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49er Offline

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Post: #4
RE: Still struggling..but I'm here
(07-16-2015 07:36 AM)mollete Wrote:  
(07-16-2015 06:30 AM)49er Wrote:  If the medications aren't helping, perhaps you want to stop taking them...
Please note that medical advice such as this can be dangerous and not permitted on the forum.

Admin please note.

You took that out of context. I said if they aren't helping, perhaps Dawn wants to stop taking them and wait to consult with her psychiatrist. In other posts, I have clarified everything regarding meds by suggesting that Dawn consider meds in consultation with her psychiatrist.

Look forward to hearing clarification from the administrator as obviously, I don't want to unintentionally do anything that could be construed as being dangerous.
(This post was last modified: 07-16-2015 07:52 AM by 49er.)
07-16-2015 07:49 AM
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Sleeprider Offline
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Post: #5
RE: Still struggling..but I'm here
If you're able to get outside and do even a little bit of physical activity, or just be away from the house, TV, movies, forum, it would probably help you more than anything we can recommend. You've said you have problems with depression, and cooping yourself up is a sure-fire way to instill a good funk and obsess on "issues". Go to the beach, enjoy a lunch away from home, walk in the park. Go do something, anything, forget about your issues for a while, and you might be tired enough when you get back home, to sleep. Most of all, this would be a good time for some face time with friends, even if you don't want to.

That's the best I've got, because your CPAP therapy is working great. Just let it happen.

______________________________________________
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(This post was last modified: 07-16-2015 08:43 AM by Sleeprider.)
07-16-2015 08:42 AM
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me50 Offline

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Post: #6
RE: Still struggling..but I'm here
(07-16-2015 08:42 AM)Sleeprider Wrote:  If you're able to get outside and do even a little bit of physical activity, or just be away from the house, TV, movies, forum, it would probably help you more than anything we can recommend. You've said you have problems with depression, and cooping yourself up is a sure-fire way to instill a good funk and obsess on "issues". Go to the beach, enjoy a lunch away from home, walk in the park. Go do something, anything, forget about your issues for a while, and you might be tired enough when you get back home, to sleep. Most of all, this would be a good time for some face time with friends, even if you don't want to.

That's the best I've got, because your CPAP therapy is working great. Just let it happen.

I agree. Physical activity will certainly make a person tired and fall asleep and hopefully stay asleep, nice, peaceful, restful sleep.

Ride a bike, walk a mile, clean, volunteer at a pet shelter or vet, volunteer at a homeless shelter (that is enough to make one appreciate what they have and forget about what they don't have).
07-16-2015 08:58 AM
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Kakkles Offline

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Post: #7
RE: Still struggling..but I'm here
Hi dawn...I am only on day 2 of cpap tx and while I am able to sleep with my nasal mask on, I still wake up a few times in night and wake up with slight headaches. I know it is a process, and will take time.

I think if you don't focus so much on what's working for others and just focus on your well being, you may not feel so overwhelmed. Often comparing your RX to others can be anxiety provoking because it seems things work for everyone else but you. And most times that's not the case. Even tho it feels like it. Anxiety is a horrible thing.

2weeks will go fast, and you can hopefully get good tx for your issues.

I agree exercise is good...no caffeine after lunch ...getting out of the house off this forum for a bit to clear your mind. Deep breathing exercises, where you close your eyes and deep breathe, feeling the parts of your body working to calm you.

When I go to bed I have a hard time falling asleep. So I put on a program on my iPad called noisli and it plays sound of nature that helps lull me to sleep and takes my mind off of the day's events. It's an app you can download. Might be something to help?

I wish you well and pray things look up for you soon! Hang in there and know people are out here rooting for you!Smile
07-16-2015 09:53 AM
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PaytonA Offline
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Post: #8
RE: Still struggling..but I'm here
Please do not be disheartened. It took me 6 months or more before I slept well with the CPAP. It took me several years before I got my therapy straightened out and on the right track. Some of that several years was before finding this forum and accelerating my learning curve. Before that, I thought that the place to get information on this therapy was the respiratory therapists at my DME especially since the RT supervisor is a hose head. The biggest problem was that I could never get hold of any of them.

A lot of good advice here. Good meditation can always be helpful and physical activity as well. Does not have to be anything dramatic. Just do what you can. Finding an activity that gets your mind fully focused on the activity could be helpful as well.

Hang in there. We are all rooting for you.

Best Regards,

PaytonA
07-16-2015 10:41 AM
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SaldusMiegas Offline

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Post: #9
RE: Still struggling..but I'm here
(07-16-2015 06:08 AM)mzdawn74 Wrote:  But, what I am looking for is reassurance.

I feel like I'm so far in the tunnel that there will never be any light at the end..Dont-know

Dear mzdawn74,

Let me also chime in to reassure you.

Things may seem a lot worse than they are because you are actively researching and learning about your problems. That means every day you know more about what's wrong than you did the day before, maybe tried one more thing that hasn't helped, bumped into one more wall or jumped one more hurdle and you are not yet to the finish line. We won't use the word obsession but let's agree that you are much more focused on your problems than maybe you were a short time ago. That's not a bad thing, but can you see how this can make them appear bigger even though they are the same as they were before you began to study them?

What if you were to reframe how you see this whole situation?

Here are some thoughts that I hope are helpful:

1. you are now more aware of the problems *and* you also have more information than ever before about potential solutions

2. you are actively pursuing the solutions that will help you get better, and you are learning more about them every day as well

3. not all solutions work the same for everyone, so you are working through the alternatives to find your best ones, and believe me your solutions are out there

4. you mention some key dates (next psych appt, doctor back in the office, etc) and these make you feel hopeless because of how far, far away they are with all the problems facing you today

5. one of the things that makes people spin out and panic is they feel like they have no control over what's happening and too many issues staring them in the face uncertain if they could ever be resolved. let's break this down into smaller, discrete parts so they are not so big and scary.

6. part of gaining composure about all this is to know that you are working each issue and you have defined a way ahead for each one

7. So, first, realize that you are taking control of what is happening. some dates are not today, but you have made definite appointments with doctors who work with you on each issue on a certain date, and you are taking steps every day that you believe will improve your situation such as using your CPAP machine and taking prescribed meds. Don't discount this, some people curl up in a fetal position, but you are taking charge and doing things to help yourself.

8. sometimes it helps to tell yourself I won't panic about this today, and give yourself a date with permission to revisit that decision. It's too hard to say I won't panic about all my problems ever, but it might be okay to say one at a time I won't panic about this one problem today, and pick a day (after you meet with the doc for each issue) to say on that day I will reconsider my situation on this one issue. Do that for each one of your issues separately. It might help to write them down with actions and dates so you can look back and reassure yourself that these are not loose ends but each one has a way ahead.

9. once you have all of your issues in a mental cubby hole with a date when you will allow yourself to worry about it again, then you might find it is less overwhelming because you won't be facing all these unresolved issues at the same time. Each one has a time frame and a plan.

10. now that you have determined when and in what order you are addressing all of your issues, you can put the ones you can't do something about today on the shelf and they won't cause you to panic anymore. Then you can focus on one that you *can* do something about today.

11. pick one thing you can do today that will improve your situation or bring you some small pleasure and do it. today. It will help lift your spirits and give you a better sense that things are not out of control because you are taking action.

12. maybe try wearing your pillows and turn on the machine while you are awake for some time during the day, it will help your body get used to it and remove one more thing that prevents you from sleeping at night. every little bit helps, and you might feel a little more in control because you are taking action to help.

13. trust that the machine is doing something beneficial, breathing new life into your tired body, filling you with life giving oxygen, giving your body what it needs to repair itself, every night. everyone doesn't get the same day 1 experience. Frankly I was one who had a great day 1, and on day 20 I was wishing day 1 would come back (you can read about it if you go look me up). Then after a little more time I reached a baseline where I feel much better, alert, clearheaded almost every day now. So realize that day 1 is not as important as getting better, and you are getting better.

14. Consider this: When you have an infection and take some antibiotics you don't usually feel better on day 1, right? But you trust that it's working even though you can't feel it yet, and you believe that after it's had time to work a little that the healing will come. Give this therapy a chance to run its course and trust that it is working inside you every day to make you better.

15. don't be afraid that you post here too much. You understand the limits of what this board can offer you (solid advice about everything apnea, lots of encouragement from people who have come before you, many of them deeply depressed, who took control of small things one at a time, and are now feeling better) and what it cannot (medical advice). So take advantage of this great resource for all the help and encouragement we can provide. There are hundreds of people who log on every day, so if some have given all the time they can give that day, there are others who will step up and engage with you. Most of us have been through some version of what you are going through and we are here to tell you that it's going to get better for you.

16. (arghh this is a long one, sorry..) Your profile says you are in San Diego, one of my favorite places I used to visit. When I would travel to San Diego on business one of my favorite things before or after work was to visit Shelter Island (or even stay in a hotel on the island). Each day I would take some time before or after work to walk or drive around, smell the fresh salt air, watch the boats and ships and birds, see the gentle dancing of the masts of all the sail boats docked in the harbor. I don't know about you but doing that got me off to a great day or helped me shed the crud from a day of meetings. It's a great way to clear out some head trash. But if that's not your thing, then do something that is. You deserve a break each day to clear your head just a little. And I know you probably don't feel like doing it. Near the end for me I lost interest in all the little things that used to bring me pleasure. Now it's been 90 days on CPAP therapy and they are gradually returning. So even if you don't feel like it, or have a hard time remembering what you like to do... dig through the cobwebs and find one of yours and then do it. Try to find one every day for however little time you have that day, just to try and reconnect with what makes life enjoyable for you. If you are too down and this seems to backfire, then back off, but think about it every day. I don't know how many days sooner I could have been doing things I used to like because I didn't look for them after starting CPAP therapy. You are on therapy and it's going to get better, so be on the lookout for these things each day and maybe you will find them sooner than I did.

mzdawn74, please know, think about, realize, that despite how it feels right now, you are on a good path and in good company (on this forum) of people who have faced similar issues and many of us knew the hoplessness and desperation you sense. You might not find one person who has precisely all of your issues, but I am certain that in different measures and mixes we collectively have been through what you are going through. And we are here to tell you that it's going to get better.

btw, did I mention don't give up because it's going to get better.

Saldus Miegas
(This post was last modified: 07-16-2015 11:32 AM by SaldusMiegas.)
07-16-2015 11:30 AM
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SuperSleeper Offline

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Post: #10
RE: Still struggling..but I'm here
(07-16-2015 07:36 AM)mollete Wrote:  
(07-16-2015 06:30 AM)49er Wrote:  If the medications aren't helping, perhaps you want to stop taking them...
Please note that medical advice such as this can be dangerous and not permitted on the forum.

Admin please note.

Of course, no one here should take any advice given in any public forum as "medical advice" (i.e., advice that is equal to that which a personal physician would give during a consultation).

That said, Apnea Board is designed as a venue for sleep apnea patients to help one another by handing out "advice" to fellow patients. But that doesn't mean that it's "medical advice". Rather, it's advice given out from the perspective of personal experience or personal opinion, not medical training.

Giving out "advice" is not 'against the rules' on Apnea Board. Heck, if it were against the rules, 90% of the threads would have to be deleted. Bigwink Too-funny

We have caveats posted all over the place on Apnea Board. They're in the rules that everyone is supposed to read when signing up as a member, they're at the bottom of all staff posts, they're at the bottom of every page on the forums, etc. If folks don't understand that we're not offering "medical advice" around here, then they lack common sense or need remedial English lessons. Smile

Here's a sample of the kind of caveat that is posted on EVERY page of this forum:

Quote:INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

Please read the above caveat for a full understanding.

Thanks

SuperSleeper
Apnea Board Administrator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

07-16-2015 12:01 PM
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