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Strange Diagnosis and shady process?
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Phill Offline

Preferred Members

Posts: 90
Joined: Nov 2015

Machine: ResMed S9 Auto Set
Mask Type: Full face mask
Mask Make & Model: ResMed AirFit F10
Humidifier: ResMed H5i, with heated hose
CPAP Pressure: unsure
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: UK, sunny south coast.

Post: #11
RE: Strange Diagnosis and shady process?
"I was on my back the whole night with it, which made me wonder if the experiment was flawed".

This exactly what I felt, in fact in the formal complaint I have raised with the hospital, along with various other issues, I said, "Using equipment which would be hardly likely to enable the user to get a representative nights sleep, with or without Sleep Apnoea".

And this! we believe our doctor/medic relationship has broken down.Dielaughing


3/ Series of consultations with a member of the department. Equipment was provided in a manner which can best be described as grudging, first appointment the CPAP machine, next appointment, after complaining of dry mouth I was provided with a humidifier, next appointment I pointed out that if I raised the humidity to a comfortable level as far as dry mouth was concerned I ended up with a face wash, the answer to this was to give me an insulated sleeve for the airline, this failed to solve the problem, and no further assistance was offered.
I forcefully pointed out that something was wrong as I was waking most mornings in the early hours, this was ignored and I was offered another appointment in 6 weeks or 12 months, the impression both my wife and I got from this was “live with it”.
(This post was last modified: 08-22-2016 09:43 AM by Phill.)
08-22-2016 08:53 AM
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gargoyle999 Offline

Members

Posts: 11
Joined: Aug 2016

Machine: Resmed AirSense 10 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Resmed AirFit P10 and F10
Humidifier: built in with ClimateLine
CPAP Pressure: 4-20 but runs around 8
CPAP Software: ResScan SleepyHead

Other Comments: Started CPAP Therapy Aug 12, 2016

Sex: Male
Location: Lakeville, MN

Post: #12
RE: Strange Diagnosis and shady process?
I don't think I should even need a 'prescription' to have one of these things. But I'm not fan of government over regulation so..

I did an at home test for two nights. My AHI was 3.8. Still got my 'note'. My AHI is about the same with the CPAP. I didn't think I had sleep apnea anyway so that is not my concern. I'm using it because I snore really loud and all night and that can't be good for me and I know it is not good for my wife who has to be a 'pillow head'.

I don't snore when using it so my wife is happy. I feel like I'm sleeping better and that I'm more rested. I've only had it for about a week and a half but I got used to the gear after a couple days.

So I believe a CPAP isn't just for someone with high AHI.
08-22-2016 09:35 AM
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Caseous Offline

Members

Posts: 9
Joined: Aug 2016

Machine: Air Sense 10
Mask Type: Nasal mask
Mask Make & Model: Mirage Micro
Humidifier: Unsure
CPAP Pressure: 4-20
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: United States

Post: #13
RE: Strange Diagnosis and shady process?
Yikes. I feel like I'm already caught in some sort of Terry Gilliam movie with all this stuff. I Hope that you get someone who actually pays attention to you! Thanks for the info!
08-22-2016 09:36 AM
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Caseous Offline

Members

Posts: 9
Joined: Aug 2016

Machine: Air Sense 10
Mask Type: Nasal mask
Mask Make & Model: Mirage Micro
Humidifier: Unsure
CPAP Pressure: 4-20
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: United States

Post: #14
RE: Strange Diagnosis and shady process?
Good news! My Awesome GP is on this and thinks this is all crazy. He got me an appointment with a good sleep doctor and hopefully I'll get some better information there. Many thanks for your responses!

CC
08-22-2016 09:48 AM
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kwhenrykerr Online
Wiki Editor
Advisory Members

Posts: 243
Joined: May 2016

Machine: DreamStation Auto, AirSense 10 Auto
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: Philips, AirSense 10
CPAP Pressure: 12-20
CPAP Software: SleepyHead

Other Comments: 2L added oxygen with CMS50F to check usage

Sex: Male
Location: Florida

Post: #15
RE: Strange Diagnosis and shady process?
Glad to here that your GP is helping. Smile and be as nice as you can. As the saying goes " you catch more flys with honey than with salt ".
Okay

Just my personal opinion. My posts are not medical advice or a statement of fact. Please consult a qualified physician or other qualified medical personnel. Please comply with all applicable laws, codes, regulations, and protocols.
08-23-2016 02:42 AM
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