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Strange Happenings 3rd week w/CPAP
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weepingwillow601 Offline

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Posts: 6
Joined: Mar 2013

Machine: Remstar Pro Cflex+
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: Philips Resperonics System One
CPAP Pressure: 11
CPAP Software: EncorePro

Other Comments:

Sex: Female
Location:

Post: #1
Strange Happenings 3rd week w/CPAP
I wonder if anyone else has experienced a couple of things that happened in the last week of use. My first 2 weeks went really well and I still (most days) feel a whole lot better than my pre-CPAP days. A few nights ago, in the middle of the night, my eyes flew wide open and it was as if I was paralyzed. I was conscious of the fact that I wasn't breathing. I could feel the air rushing down my throat and I remember the thought going through my head that I needed to breathe, which I did. It was kind of scary. And it felt difficult to take a deep breath for a few minutes. Then..

Last night, I awoke myself snoring with my cpap on!! What is up with that?

Anybody else ever experienced these kind of things?
03-21-2013 08:32 PM
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Shastzi Offline

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Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #2
RE: Strange Happenings 3rd week w/CPAP
humm. Sounds like a nasty obstructive?
How are your leak numbers? You're not blowing air out your mouth are you?

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

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03-21-2013 08:58 PM
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weepingwillow601 Offline

Members

Posts: 6
Joined: Mar 2013

Machine: Remstar Pro Cflex+
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: Philips Resperonics System One
CPAP Pressure: 11
CPAP Software: EncorePro

Other Comments:

Sex: Female
Location:

Post: #3
RE: Strange Happenings 3rd week w/CPAP
My leak numbers were 0. I do have to use a chinstrap to keep my trap shut... And I have to put it on pretty tight to control that. It is so bad that in 3 weeks time, I am on my 2nd chinstrap. The first one was of a polyester (sort of) fabric and velcro. I stretched it out pretty quick. This second one has more non stretchy cloth to it and hugs the chin but I think I might still be getting this big mouth open during the night because I am waking with a dry mouth more often.. :/
03-21-2013 09:09 PM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #4
RE: Strange Happenings 3rd week w/CPAP
uh oh. open dry mouth = losing pressure, that leads to obstructives moving back in.

You might need to graduate to a full face mask or one of the hybrids.
I still get the dry mouth bit sometimes but with the FFM I dont lose pressure so the nasty apneas are kept at bay.

Wink

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

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03-21-2013 09:24 PM
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Weebee Offline

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Posts: 10
Joined: Mar 2013

Machine: ResMed Escape II
Mask Type: Full face mask
Mask Make & Model: ultra mirage full face
Humidifier: Hi4
CPAP Pressure: 17
CPAP Software: Not using software

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Sex: Male
Location: Newark NY

Post: #5
RE: Strange Happenings 3rd week w/CPAP
Yup, sounds like it's time for a full face mask. These aren't really that bad.
03-21-2013 11:22 PM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #6
RE: Strange Happenings 3rd week w/CPAP
Though the FFM's are notorius for leaks, I seldom have trouble.
Most of the time I get zero leaks everynight for days on end.
The only thing I do is clean all sealing surfaces *every day* and clean the face too, right before using.

Finding the right masks that would fit properly and comfortably was an expensive trial but I found 3 out of 5 that work for me!
Smile

It seems a bit odd that you are not logging any leaks with your software though. The dry mouth is a good sign your getting mouth leaks though.
If SleepyHead could check out your data that would be something good for grins & giggles. Wink

Hang in there!


Okay

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
(This post was last modified: 03-22-2013 08:18 AM by Shastzi.)
03-22-2013 08:17 AM
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weepingwillow601 Offline

Members

Posts: 6
Joined: Mar 2013

Machine: Remstar Pro Cflex+
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: Philips Resperonics System One
CPAP Pressure: 11
CPAP Software: EncorePro

Other Comments:

Sex: Female
Location:

Post: #7
RE: Strange Happenings 3rd week w/CPAP
My printout from DME said No major leaks.. So I guess I could have had leaks just not major enough to show? I don't particularly like not being able to check my own data. Especially when I had to fork out so many $$$ for it between copay and deductible.. Sad

I awoke this morning and my chinstrap was on the floor. Guzzled down a half a bottle of water.. Might have to go to full mask..
03-22-2013 06:54 PM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #8
RE: Strange Happenings 3rd week w/CPAP
Mmhmm I have the same problem with chinstraps. They usually ended up somewhere else. Smile

"No Major Leaks" isn't what you want to know. You want to know about *all* the other little leaks that dry your mouth out and could be robbing you of therapy pressure.

*Checks the Remstar manual*
Hmmm....
I'm not sure if your machine collects robust enough statistics to be able to answer that question.
It only logs statistics on leaks that are "so large the machine cannot compensate" That's nice but...
That wont help you much and it also does not tell you *when* these leaks occured.
Example: suppose you get up and pull the hose off to go in to the bathroom at 2am leaving the blower running.
That's a big leak but you know that it's harmless since you know *WHY* it happened.

Anyone else here have more experience with the Remstar Pro Cflex+?

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
03-22-2013 10:10 PM
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cowboy1970 Offline

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Posts: 66
Joined: Jun 2012

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Puritan Bennett Breeze
Humidifier: H5i
CPAP Pressure: around 11 now (2/20/13)
CPAP Software: ResScan

Other Comments: Try not to think about a spider crawling up your nose from inside your tubing as your drift off. lol

Sex: Male
Location: Tacoma, WA

Post: #9
RE: Strange Happenings 3rd week w/CPAP
Hey! I clicked on this thread because of the title. I was expecting a paranormal activity type situation. Bummer. I guess I'm the only one whose CPAP machine whispers all night for me to do bad things with frozen dairy products.

Anyway....a couple times in my life, I have awoken to not being able to move or open my eyes. I was completely paralyzed. I would feel the urge to move into a new sleeping position because of an aching shoulder or something and then panic when I realized that I could not get my body to move. My heart would be beating like a drum and I would feel sheer terror at the thought of not snapping out of it. Kinda like being claustrophobic in your own body. Months later I would begin to feel that same thing and immediately panic like I was free-falling out of my body. Like I wasn't connected to it at all.

It has rarely happened but it was the scariest thing ever. I would spend hours trying to move my arm or open my eyes...anything. Closest I have ever experienced to what you are talking about.

Now I am actually a little concerned that by rethinking through that experience will somehow cause it to happen tonight. I hadn't even thought about it in years, but thought of it instantly when I read the initial post in this thread.
03-23-2013 02:19 AM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #10
RE: Strange Happenings 3rd week w/CPAP
No paranoral activity here today, Cowboy. Smile
You might have a touch of the old "Sleep Paralysis" though. There might be some meds to take for that. Not sure though.
:/

Just don't cross the particle streams and we should be ok. Smile
(Ghost Busters)

Cheers!

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
03-23-2013 07:23 AM
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