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Struggling with CPAP issues
#1
Struggling with CPAP issues
I’m struggling with two interrelated issues. 

I started in March with a DreamStation 2 using an F30 mask. It went great for a few weeks but the I’ve found it difficult to tolerate the silicone in the mask. My skin gets clammy and sensitive, while the silicone edge tends to cut into my skin. I’ve tried a Wisp, but it’s clear I start mouth breathing. 

The second issue is that after my first followup with the clinician a couple of weeks ago, she observed that I’m getting more central apneas. These were negligible during my sleep study, but I’m seeing half my apneas as central and my AHI has been running between 8 and 12 on the nights I can tolerate the mask. 

As a result, my clinician set me up for a non-venting mask. The respiratory therapist from the DME gave me a 1 foot extension with an exhaust valve at the end, and told me to tape over the vents on the F30. The extension goes between the mask and the regular hose, so I assume the idea is to just move the CO2 away from my face. 

But now I want to try a gel mask to see if that will improve my comfort. I’m willing to pay out of pocket and order online. But I have no idea if this nonventing strategy will work with other mask brands.  I don’t have that much confide me in the respiratory therapist because he kept saying latex instead of silicone and didn’t have any interest in addressing that issue first. 

Any suggestions on whether a gel mask might improve my comfort?  Or maybe one that actually covers my nose instead of the F30?  And if so, will it be safe to cover its vents and use with my extension vent?

Thanks for any help!
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#2
RE: Struggling with CPAP issues
(05-24-2022, 12:24 PM)K2write Wrote: I started in March with a DreamStation 2 using an F30 mask. It went great for a few weeks but the I’ve found it difficult to tolerate the silicone in the mask. My skin gets clammy and sensitive, while the silicone edge tends to cut into my skin. I’ve tried a Wisp, but it’s clear I start mouth breathing. 

Try something like Lansinoh, which is a lanolin cream. You can find it in baby aisle of the drug store, sold as a salve for nursing mothers.

Quote:The second issue is that after my first followup with the clinician a couple of weeks ago, she observed that I’m getting more central apneas. These were negligible during my sleep study, but I’m seeing half my apneas as central and my AHI has been running between 8 and 12 on the nights I can tolerate the mask. 

It's likely that those central apneas will go away as you adapt to CPAP therapy. The more you use it, the faster and better you'll adapt.

Quote:As a result, my clinician set me up for a non-venting mask. The respiratory therapist from the DME gave me a 1 foot extension with an exhaust valve at the end, and told me to tape over the vents on the F30. The extension goes between the mask and the regular hose, so I assume the idea is to just move the CO2 away from my face. 

I've never heard of such a device. The purpose of the vents on the F30 is to keep the tubing purged of exhaled air. Taping them over seems stupid and is contrary to the manufacturer's warning, for a very good reason.

Plus I don't see how a "non-venting" mask will treat central apneas.

Quote:But now I want to try a gel mask to see if that will improve my comfort. I’m willing to pay out of pocket and order online. But I have no idea if this nonventing strategy will work with other mask brands.  I don’t have that much confide me in the respiratory therapist because he kept saying latex instead of silicone and didn’t have any interest in addressing that issue first. 

I would try the gel mask. Get it from your equipment provider. Your insurance will cover extra masks during your adaptation period. It's quite common to have to try several masks before finding one that works best for you. Meanwhile, try the lanolin cream. I wouldn't tape over the vents on either mask, or use that 1 foot extension thingie until we find out what it is. Your best strategy for fighting the centrals is to get a comfortable fitting mask and that you use it as much as possible. Whenever you're sleeping, is my advice.
Sleepster

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#3
RE: Struggling with CPAP issues
Also, contact your doctor's office and ask just which mask they're prescribing. It sounds like your equipment provider is trying to pull a fast one on you by having you tape over the vent holes on your existing mask. They've entered into a contract with your insurance company to provide you with the right equipment, even if it cuts into their profits.
Sleepster

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#4
RE: Struggling with CPAP issues
What he did was increase the amount of CO2 that you rebreathe to increase your blood CO2 concentration to remain above your apneic threshold.

Not having seen your charts I don't know if this is appropriate for you but I and others on this forum have coached a few members on this direction. Search both our wiki and forum for EERS, Enhanced Expiratory Rebreatheing System. http://www.apneaboard.com/wiki/index.php...Eers&go=Go

There is a form of central apnea that occurs because too much CO2 is flushed from your system. It is the need to remove this CO2 that provides our main drive to breathe.
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#5
RE: Struggling with CPAP issues
(05-24-2022, 02:21 PM)Sleepster Wrote: Try something like Lansinoh, which is a lanolin cream. You can find it in baby aisle of the drug store, sold as a salve for nursing mothers.

Thanks, I’ll try that.

(05-24-2022, 02:35 PM)Gideon Wrote: Not having seen your charts I don't know if this is appropriate for you but I and others on this forum have coached a few members on this direction.  Search both our wiki and forum for EERS, Enhanced Expiratory Rebreatheing System. http://www.apneaboard.com/wiki/index.php...Eers&go=Go

I can post OSCAR images if that would help, but I wouldn’t know which days to post. I’m still learning how to work with OSCAR.   In the meantime, I’ll follow that link about EERS.  


I’ll also give my DME another call.  When I went for the venting change, I asked about gel mask but he didn’t have any for me to try. If they don’t stock them, I’ll look elsewhere.
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