Post Reply 
[Symptoms] Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
Author Message
JVinNE Offline

Advisory Members

Posts: 262
Joined: Jan 2015

Machine: ResMed Aircurve 10 ASV Bilevel
Mask Type: Full face mask
Mask Make & Model: F&P Simplus aka Facedigger
Humidifier: HumidAir™ with climate line
CPAP Pressure: Min EPAP 5 Max IPAP 13 PS 1-2
CPAP Software: SleepyHead

Other Comments: New, ASV Barbie, now with morning fart action.

Sex: Female
Location: New England

Post: #1
Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
Hello, I'm new to this forum. I'm a 47 year old woman, and I've had some Apnealike issues for a couple of years.

I just did a ResMed in home test. My Apneas were 17 in 7 hours of testing time, and I had 2 Hypos. I snored 156 times, but the thing I am most frightened of is my low pulse ox reading of 80%. Average was 95%, but on my home pulse ox, which I purchased from a medical supply store; that has an alarm on it, and a wristwatch and rubber fingertip sensor, I often wake up startled with readings of 71, and sometimes even dipping down into the 60s. My doctor says I don't have Sleep Apnea significant enough to require a CPAP, but how can they say that with such low oxygen levels?

Please help. I'm so scared, and I won't sleep without my own ox on, at least until I can get another doctor to recommend me to an overnight study.

Thank you.
(This post was last modified: 01-13-2015 06:33 PM by JVinNE.)
01-13-2015 06:32 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Crimson Nape Offline

Monitors

Posts: 1,332
Joined: Oct 2014

Machine: ResMed S9 Autoset
Mask Type: Other
Mask Make & Model: P-10 / F&P Simplus / DreamWear
Humidifier: H5i w/Climateline
CPAP Pressure: 8 - EPR 3
CPAP Software: SleepyHead

Other Comments: CMS-50F & 50IW

Sex: Male
Location: Georgia

Post: #2
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
Welcome to the forum!

What software are you using to read your O2 levels? If it is a strip chart? Is it showing these low levels as a spike or more like a top hat? If they are spikes, then that can be caused from moving or hitting the probe.

Statistics prove that people who have more birthdays live longer.
01-13-2015 06:37 PM
Find all posts by this user Post Reply Quote this message in a reply
JVinNE Offline

Advisory Members

Posts: 262
Joined: Jan 2015

Machine: ResMed Aircurve 10 ASV Bilevel
Mask Type: Full face mask
Mask Make & Model: F&P Simplus aka Facedigger
Humidifier: HumidAir™ with climate line
CPAP Pressure: Min EPAP 5 Max IPAP 13 PS 1-2
CPAP Software: SleepyHead

Other Comments: New, ASV Barbie, now with morning fart action.

Sex: Female
Location: New England

Post: #3
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
(01-13-2015 06:37 PM)sgearhart Wrote:  Welcome to the forum!

What software are you using to read your O2 levels? If it is a strip chart? Is it showing these low levels as a spike or more like a top hat? If they are spikes, then that can be caused from moving or hitting the probe.

I wake up from the alarm and see the number right on the screen; talking about my own ox, not the one from the ResMed study.

The one I use at home is Acc U Rate® CMS 50F PLUS Wrist Pulse Oximeter (Ver 3.7) with SnugFit probe. I can't tell if it is a spike or a top hat. Please help me to understand this. I am thankful you have responded, as this is pretty scary for me.
(This post was last modified: 01-13-2015 06:42 PM by JVinNE.)
01-13-2015 06:41 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #4
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
Stay the course. One night of home testing may not be telling the whole story. Talk to your doc about your fears with the low saturation numbers. If he doesn't feel you are a candidate for cpap, then he needs to refer you to someone that can address your o2 levels appropriately.

I have "severe" (they keep calling it that) emphysema, and my o2 levels can get a little dicey once in awhile. But I have found that with CPAP my numbers perk along all night in the 92-94 range just fine. So even if I didn't have any apnea events, and to be sure I don't have many, I would continue to use the cpap at night. During the day when I feel crummy I can take other action if need be.

Also, there have been some nifty studies that show icu patients with really nasty breathing issues can often do better if placed on straight cpap rather than oxygen.

In the meantime, don't be scared. Do be proactive. For instance take steps to sleep on you side, not your back. Be sure the head of your bed is elevated some. ....and use your oximeter, writing down your results to put in front of the doc.
01-13-2015 06:46 PM
Find all posts by this user Post Reply Quote this message in a reply
quiescence at last Offline

Advisory Members

Posts: 753
Joined: Nov 2014

Machine: REMstar System One with Autoflex
Mask Type: Full face mask
Mask Make & Model: Quattro AirFit F10
Humidifier: yes typical setting = 4
CPAP Pressure: 5-13 Autotritrating CPAP
CPAP Software: SleepyHead EncoreBasic

Other Comments: CMS-50F Plus oximeter /w SPO2 Assistant software. Avowed mouth-breather switching to nose-breathing

Sex: Male
Location: US

Post: #5
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
I have the same model, and you can record the whole night and then upload it into the supplied SPO2 Assistant software, 'gear and I will help you. What I have yet to figure out is whether I can record, and have the alarm set at the same time.

Anyway, did you load the software disk onto a computer?

Dedicated to QALity sleep.
You'll note I am listed as an Advisory Member. I am honored to be listed as such. See the fine print - Advisory Members as a group provide advice and suggestions to Apnea Board administrators and staff concerning Apnea Board operation and administrative policies. Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
01-13-2015 06:49 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
JVinNE Offline

Advisory Members

Posts: 262
Joined: Jan 2015

Machine: ResMed Aircurve 10 ASV Bilevel
Mask Type: Full face mask
Mask Make & Model: F&P Simplus aka Facedigger
Humidifier: HumidAir™ with climate line
CPAP Pressure: Min EPAP 5 Max IPAP 13 PS 1-2
CPAP Software: SleepyHead

Other Comments: New, ASV Barbie, now with morning fart action.

Sex: Female
Location: New England

Post: #6
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
(01-13-2015 06:46 PM)retired_guy Wrote:  Stay the course. One night of home testing may not be telling the whole story. Talk to your doc about your fears with the low saturation numbers. If he doesn't feel you are a candidate for cpap, then he needs to refer you to someone that can address your o2 levels appropriately.

I have "severe" (they keep calling it that) emphysema, and my o2 levels can get a little dicey once in awhile. But I have found that with CPAP my numbers perk along all night in the 92-94 range just fine. So even if I didn't have any apnea events, and to be sure I don't have many, I would continue to use the cpap at night. During the day when I feel crummy I can take other action if need be.

Also, there have been some nifty studies that show icu patients with really nasty breathing issues can often do better if placed on straight cpap rather than oxygen.

In the meantime, don't be scared. Do be proactive. For instance take steps to sleep on you side, not your back. Be sure the head of your bed is elevated some. ....and use your oximeter, writing down your results to put in front of the doc.

I admit it, I am a bit scared, and I will continue to use my own ox, but I don't know if I can record and have the alarm on at the same time, and honestly, that alarm means so much more to me. The other night, when I was falling asleep, I got woken up several times by it, and one of the readings was 71. I cannot imagine why my doctor did not recommend a CPAP with oxygen that low, and by the way, my doctor is NOT the nicest guy. I went to his office today to pick up the report from the sleep center, and he would not even talk with me for 5 minutes. He didn't even have any patients at the time. It's sad, and fairly obvious to me that he doesn't really care about me.

PS. I never sleep on my back, always on my side, and if I sleep on my tummy, I make sure I'm propped up well and my airway is not in the pillow.
01-13-2015 07:31 PM
Find all posts by this user Post Reply Quote this message in a reply
quiescence at last Offline

Advisory Members

Posts: 753
Joined: Nov 2014

Machine: REMstar System One with Autoflex
Mask Type: Full face mask
Mask Make & Model: Quattro AirFit F10
Humidifier: yes typical setting = 4
CPAP Pressure: 5-13 Autotritrating CPAP
CPAP Software: SleepyHead EncoreBasic

Other Comments: CMS-50F Plus oximeter /w SPO2 Assistant software. Avowed mouth-breather switching to nose-breathing

Sex: Male
Location: US

Post: #7
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
I will test in an hour or so, to see if we can record at the same time as the alarm is on.

Dedicated to QALity sleep.
You'll note I am listed as an Advisory Member. I am honored to be listed as such. See the fine print - Advisory Members as a group provide advice and suggestions to Apnea Board administrators and staff concerning Apnea Board operation and administrative policies. Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
01-13-2015 07:34 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
JVinNE Offline

Advisory Members

Posts: 262
Joined: Jan 2015

Machine: ResMed Aircurve 10 ASV Bilevel
Mask Type: Full face mask
Mask Make & Model: F&P Simplus aka Facedigger
Humidifier: HumidAir™ with climate line
CPAP Pressure: Min EPAP 5 Max IPAP 13 PS 1-2
CPAP Software: SleepyHead

Other Comments: New, ASV Barbie, now with morning fart action.

Sex: Female
Location: New England

Post: #8
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
(01-13-2015 06:49 PM)quiescence at last Wrote:  I have the same model, and you can record the whole night and then upload it into the supplied SPO2 Assistant software, 'gear and I will help you. What I have yet to figure out is whether I can record, and have the alarm set at the same time.

Anyway, did you load the software disk onto a computer?

Thank you so much. You are a sweetheart to help me like this. I haven't loaded the software yet, but I will do so. I just need to find out if I can run the recorder and the alarm at the same time. By the way, I don't know if I before mentioned this, but I am currently on Augmentin for Bronchitis, and I also take a low dose of Klonopin (but trying to taper down from my .5 a day,) and I almost never take it right before bed, because I know it can affect breathing and slow it down.

Here is the result of my report from ResMed, in case you are interested in checking it out:

Device: ApneaLinkAir
Recording with oxygen eval: 8:47 PM to 4:47 AM
Events Index: AHI: 2.4 Apnea: 2.2 Hypoapnea: 0.3
Events totals: Apnea 17 Hypoapnea: 2
Apnea Index: Obstructive: 0.1 Central:2.1 (they said this may have been due to movement or something akin.) Mixed: 0 Unclassified: 0
C Stokes resp: 0
Oxygen Desaturation: ODI: 3.0 Total: 23
Oxygen Desaturation percentage: Baseline - 98 Avg - 95 Lowest - 80
Oxygen saturation time percentage: 90%sat: 6, 85%sat 4, 80%sat 0
88%sat 5, 88% time - hr 0:23
Breaths total: 6566 Avg min: 14.1 Snores: 156
Pulse bpm: Min: 44 Avg: 78

Max: 237 (he said this was likely a mistake or happened when I moved or shoved the machine, as that likely would have woken me up.



(01-13-2015 07:34 PM)quiescence at last Wrote:  I will test in an hour or so, to see if we can record at the same time as the alarm is on.

Thank you, kindly. Thanks You rock. Smile
(This post was last modified: 01-13-2015 07:50 PM by JVinNE.)
01-13-2015 07:47 PM
Find all posts by this user Post Reply Quote this message in a reply
quiescence at last Offline

Advisory Members

Posts: 753
Joined: Nov 2014

Machine: REMstar System One with Autoflex
Mask Type: Full face mask
Mask Make & Model: Quattro AirFit F10
Humidifier: yes typical setting = 4
CPAP Pressure: 5-13 Autotritrating CPAP
CPAP Software: SleepyHead EncoreBasic

Other Comments: CMS-50F Plus oximeter /w SPO2 Assistant software. Avowed mouth-breather switching to nose-breathing

Sex: Male
Location: US

Post: #9
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
yep . it works. do alarm and do record. I also downloaded it to the computer and viewed it. hurray it works.

remember the oximeter will delete the previous recording if you start recording again.

please go take a 20 minute nap with the alarm set and record it. we'll get you set for the night.

QAL

Dedicated to QALity sleep.
You'll note I am listed as an Advisory Member. I am honored to be listed as such. See the fine print - Advisory Members as a group provide advice and suggestions to Apnea Board administrators and staff concerning Apnea Board operation and administrative policies. Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
(This post was last modified: 01-13-2015 09:01 PM by quiescence at last.)
01-13-2015 08:36 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
trish6hundred Offline

Advisory Members

Posts: 6,452
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #10
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
Hi ConfusedInRI,
WELCOME! to the forum.!
I'm sorry to hear that your doc doesn't seem to care about you. Unfortunately, that's not uncommon. Maybe you could try to find another one if you don't get any better results.
Hang in there for more suggestions and much success to you.

trish6hundred
01-13-2015 09:08 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  Dr. Wants To Do A 24-Hour Test harmon k 6 204 Yesterday 02:55 PM
Last Post: robysue
  2015 peer reviewed article comparing a bench test of 11 APAPs robysue 4 298 12-06-2016 07:06 AM
Last Post: cands
  new to cpap and oxygen worried 8 253 12-02-2016 05:53 PM
Last Post: kwhenrykerr
  Can home care provider make our machine unusable? LPN2012 10 388 12-01-2016 05:22 AM
Last Post: LPN2012
  Pulse Oxygen Sensor muddywaters 6 336 11-27-2016 07:23 PM
Last Post: kwhenrykerr
  [Pressure] How to set EPR Levels yogigupta 24 17,514 11-16-2016 12:10 AM
Last Post: ladytimes
Rainbow [Diagnosis] They want me to use a CPAP with oxygen concentrator Apneaprincess 47 7,769 11-11-2016 05:18 PM
Last Post: David44142

Forum Jump:

Who's Online (Complete List)