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[Symptoms] Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
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TyroneShoes Offline

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Post: #11
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
There was a really great movie in 1969 called "The Reivers"; few people have ever seen it, but it was just terrific. 1905 Memphis, a bright yellow "Wynton Flyer" automobile, and a great adventure. Narrated by the incomparable Burgess Meridith, directed by the great Mark Rydell, music by pre-Star Wars John Williams in his first score.

In a climactic scene where a young boy is about to have a head-to-head horse race with an adult, the adult taunts him as his horse actively prances around the young boy's horse just before the race, saying "Scared, kid?"

Steve McQueen, in my favorite role of his, pulls the young boy aside and tells him "You can be scared if you want - you can't help that - but don't be afraid, son."

That moment still sticks with me. In dark moments I think about that distinction. If you are scared, it means you are hypersensitive to dangerous conditions, which is a good thing, because it means you are highly motivated to actively deal with things to the best of your ability. But if you are afraid, you are just emotionally paralyzed, you are frozen in fear, and your fear may be getting in the way of you acting in your best interests.

From what you post here, you are scared; not afraid. While never comfortable, that may actually be a good thing, even the best thing. It is all right to be scared, because it appears that it is motivating you to do everything possible to deal with the problem. So you are on the right path here. Just don't let it keep you from doing what you need to do. IOW, don't be afraid.

Part of what scares me is when I don't understand what is going on. I think in this case, that the more you discover why this is happening, the more comforted and the less scared you will be. Being scared may be, in this case, a temporary condition, meaning if you act properly on the motivation, it will likely pass. Being afraid implies a state of non-action, that may not pass.

So be thankful that you are scared rather than afraid, deal, and move forward. It sounds like you have the wherewithal to do all of that pretty effectively.

Good luck; we're always here for you.
(This post was last modified: 01-13-2015 09:15 PM by TyroneShoes.)
01-13-2015 09:12 PM
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Tez62 Offline

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Post: #12
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
(01-13-2015 07:47 PM)ConfusedInRI Wrote:  
(01-13-2015 06:49 PM)quiescence at last Wrote:  I have the same model, and you can record the whole night and then upload it into the supplied SPO2 Assistant software, 'gear and I will help you. What I have yet to figure out is whether I can record, and have the alarm set at the same time.

Anyway, did you load the software disk onto a computer?

Thank you so much. You are a sweetheart to help me like this. I haven't loaded the software yet, but I will do so. I just need to find out if I can run the recorder and the alarm at the same time. By the way, I don't know if I before mentioned this, but I am currently on Augmentin for Bronchitis, and I also take a low dose of Klonopin (but trying to taper down from my .5 a day,) and I almost never take it right before bed, because I know it can affect breathing and slow it down.

Here is the result of my report from ResMed, in case you are interested in checking it out:

Device: ApneaLinkAir
Recording with oxygen eval: 8:47 PM to 4:47 AM
Events Index: AHI: 2.4 Apnea: 2.2 Hypoapnea: 0.3
Events totals: Apnea 17 Hypoapnea: 2
Apnea Index: Obstructive: 0.1 Central:2.1 (they said this may have been due to movement or something akin.) Mixed: 0 Unclassified: 0
C Stokes resp: 0
Oxygen Desaturation: ODI: 3.0 Total: 23
Oxygen Desaturation percentage: Baseline - 98 Avg - 95 Lowest - 80
Oxygen saturation time percentage: 90%sat: 6, 85%sat 4, 80%sat 0
88%sat 5, 88% time - hr 0:23
Breaths total: 6566 Avg min: 14.1 Snores: 156
Pulse bpm: Min: 44 Avg: 78

Max: 237 (he said this was likely a mistake or happened when I moved or shoved the machine, as that likely would have woken me up.



(01-13-2015 07:34 PM)quiescence at last Wrote:  I will test in an hour or so, to see if we can record at the same time as the alarm is on.

Thank you, kindly. Thanks You rock. Smile

ConfusedInRI, just going by straight figures you don't have Obstructive or Central Sleep Apnea, your AHI needs to be above 5 to have mild sleep apnea, having said that there are 70 - 80 other sleep disorders that you could have.
I would push for a sleep study in a clinic or hospital and get proper results, personally I don't like home sleep studies and I would look for another Dr perferably a Sleep Specialist and one that you can work with you and you with them.

This is your life and your future so make sure you do everything you have to to get the results that will set your mind at ease.

You are the most important person here and keep going till you find the answer you are looking for.Smile
(This post was last modified: 01-13-2015 09:50 PM by Tez62.)
01-13-2015 09:45 PM
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JVinNE Offline

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Humidifier: HumidAir™ with climate line
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CPAP Software: SleepyHead

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Sex: Female
Location: New England

Post: #13
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
(01-13-2015 09:45 PM)Tez62 Wrote:  
(01-13-2015 07:47 PM)ConfusedInRI Wrote:  
(01-13-2015 06:49 PM)quiescence at last Wrote:  I have the same model, and you can record the whole night and then upload it into the supplied SPO2 Assistant software, 'gear and I will help you. What I have yet to figure out is whether I can record, and have the alarm set at the same time.

Anyway, did you load the software disk onto a computer?

Thank you so much. You are a sweetheart to help me like this. I haven't loaded the software yet, but I will do so. I just need to find out if I can run the recorder and the alarm at the same time. By the way, I don't know if I before mentioned this, but I am currently on Augmentin for Bronchitis, and I also take a low dose of Klonopin (but trying to taper down from my .5 a day,) and I almost never take it right before bed, because I know it can affect breathing and slow it down.

Here is the result of my report from ResMed, in case you are interested in checking it out:

Device: ApneaLinkAir
Recording with oxygen eval: 8:47 PM to 4:47 AM
Events Index: AHI: 2.4 Apnea: 2.2 Hypoapnea: 0.3
Events totals: Apnea 17 Hypoapnea: 2
Apnea Index: Obstructive: 0.1 Central:2.1 (they said this may have been due to movement or something akin.) Mixed: 0 Unclassified: 0
C Stokes resp: 0
Oxygen Desaturation: ODI: 3.0 Total: 23
Oxygen Desaturation percentage: Baseline - 98 Avg - 95 Lowest - 80
Oxygen saturation time percentage: 90%sat: 6, 85%sat 4, 80%sat 0
88%sat 5, 88% time - hr 0:23
Breaths total: 6566 Avg min: 14.1 Snores: 156
Pulse bpm: Min: 44 Avg: 78

Max: 237 (he said this was likely a mistake or happened when I moved or shoved the machine, as that likely would have woken me up.



(01-13-2015 07:34 PM)quiescence at last Wrote:  I will test in an hour or so, to see if we can record at the same time as the alarm is on.

Thank you, kindly. Thanks You rock. Smile

ConfusedInRI, just going by straight figures you don't have Obstructive or Central Sleep Apnea, your AHI needs to be above 5 to have mild sleep apnea, having said that there are 70 - 80 other sleep disorders that you could have.
I would push for a sleep study in a clinic or hospital and get proper results, personally I don't like home sleep studies and I would look for another Dr perferably a Sleep Specialist and one that you can work with you and you with them.

This is your life and your future so make sure you do everything you have to to get the results that will set your mind at ease.

You are the most important person here and keep going till you find the answer you are looking for.Smile
01-13-2015 10:00 PM
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JVinNE Offline

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Posts: 262
Joined: Jan 2015

Machine: ResMed Aircurve 10 ASV Bilevel
Mask Type: Full face mask
Mask Make & Model: F&P Simplus aka Facedigger
Humidifier: HumidAir™ with climate line
CPAP Pressure: Min EPAP 5 Max IPAP 13 PS 1-2
CPAP Software: SleepyHead

Other Comments: New, ASV Barbie, now with morning fart action.

Sex: Female
Location: New England

Post: #14
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
(01-13-2015 09:45 PM)Tez62 Wrote:  
(01-13-2015 07:47 PM)ConfusedInRI Wrote:  
(01-13-2015 06:49 PM)quiescence at last Wrote:  I have the same model, and you can record the whole night and then upload it into the supplied SPO2 Assistant software, 'gear and I will help you. What I have yet to figure out is whether I can record, and have the alarm set at the same time.

Anyway, did you load the software disk onto a computer?

Thank you so much. You are a sweetheart to help me like this. I haven't loaded the software yet, but I will do so. I just need to find out if I can run the recorder and the alarm at the same time. By the way, I don't know if I before mentioned this, but I am currently on Augmentin for Bronchitis, and I also take a low dose of Klonopin (but trying to taper down from my .5 a day,) and I almost never take it right before bed, because I know it can affect breathing and slow it down.

Here is the result of my report from ResMed, in case you are interested in checking it out:

Device: ApneaLinkAir
Recording with oxygen eval: 8:47 PM to 4:47 AM
Events Index: AHI: 2.4 Apnea: 2.2 Hypoapnea: 0.3
Events totals: Apnea 17 Hypoapnea: 2
Apnea Index: Obstructive: 0.1 Central:2.1 (they said this may have been due to movement or something akin.) Mixed: 0 Unclassified: 0
C Stokes resp: 0
Oxygen Desaturation: ODI: 3.0 Total: 23
Oxygen Desaturation percentage: Baseline - 98 Avg - 95 Lowest - 80
Oxygen saturation time percentage: 90%sat: 6, 85%sat 4, 80%sat 0
88%sat 5, 88% time - hr 0:23
Breaths total: 6566 Avg min: 14.1 Snores: 156
Pulse bpm: Min: 44 Avg: 78

Max: 237 (he said this was likely a mistake or happened when I moved or shoved the machine, as that likely would have woken me up.



(01-13-2015 07:34 PM)quiescence at last Wrote:  I will test in an hour or so, to see if we can record at the same time as the alarm is on.

Thank you, kindly. Thanks You rock. Smile

ConfusedInRI, just going by straight figures you don't have Obstructive or Central Sleep Apnea, your AHI needs to be above 5 to have mild sleep apnea, having said that there are 70 - 80 other sleep disorders that you could have.
I would push for a sleep study in a clinic or hospital and get proper results, personally I don't like home sleep studies and I would look for another Dr perferably a Sleep Specialist and one that you can work with you and you with them.

This is your life and your future so make sure you do everything you have to to get the results that will set your mind at ease.

You are the most important person here and keep going till you find the answer you are looking for.Smile

Perhaps it is nighttime Asthma? I have an appointment
with a pulmonologist at the end of the month.
01-13-2015 10:03 PM
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JVinNE Offline

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Posts: 262
Joined: Jan 2015

Machine: ResMed Aircurve 10 ASV Bilevel
Mask Type: Full face mask
Mask Make & Model: F&P Simplus aka Facedigger
Humidifier: HumidAir™ with climate line
CPAP Pressure: Min EPAP 5 Max IPAP 13 PS 1-2
CPAP Software: SleepyHead

Other Comments: New, ASV Barbie, now with morning fart action.

Sex: Female
Location: New England

Post: #15
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
(01-13-2015 10:00 PM)ConfusedInRI Wrote:  
(01-13-2015 09:45 PM)Tez62 Wrote:  
(01-13-2015 07:47 PM)ConfusedInRI Wrote:  Thank you so much. You are a sweetheart to help me like this. I haven't loaded the software yet, but I will do so. I just need to find out if I can run the recorder and the alarm at the same time. By the way, I don't know if I before mentioned this, but I am currently on Augmentin for Bronchitis, and I also take a low dose of Klonopin (but trying to taper down from my .5 a day,) and I almost never take it right before bed, because I know it can affect breathing and slow it down.

Here is the result of my report from ResMed, in case you are interested in checking it out:

Device: ApneaLinkAir
Recording with oxygen eval: 8:47 PM to 4:47 AM
Events Index: AHI: 2.4 Apnea: 2.2 Hypoapnea: 0.3
Events totals: Apnea 17 Hypoapnea: 2
Apnea Index: Obstructive: 0.1 Central:2.1 (they said this may have been due to movement or something akin.) Mixed: 0 Unclassified: 0
C Stokes resp: 0
Oxygen Desaturation: ODI: 3.0 Total: 23
Oxygen Desaturation percentage: Baseline - 98 Avg - 95 Lowest - 80
Oxygen saturation time percentage: 90%sat: 6, 85%sat 4, 80%sat 0
88%sat 5, 88% time - hr 0:23
Breaths total: 6566 Avg min: 14.1 Snores: 156
Pulse bpm: Min: 44 Avg: 78

Max: 237 (he said this was likely a mistake or happened when I moved or shoved the machine, as that likely would have woken me up.




Thank you, kindly. Thanks You rock. Smile

ConfusedInRI, just going by straight figures you don't have Obstructive or Central Sleep Apnea, your AHI needs to be above 5 to have mild sleep apnea, having said that there are 70 - 80 other sleep disorders that you could have.
I would push for a sleep study in a clinic or hospital and get proper results, personally I don't like home sleep studies and I would look for another Dr perferably a Sleep Specialist and one that you can work with you and you with them.

This is your life and your future so make sure you do everything you have to to get the results that will set your mind at ease.

You are the most important person here and keep going till you find the answer you are looking for.Smile

Could also be GERD or silent reflux. I have an
appointment with my gastro guy this week.
01-13-2015 10:09 PM
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Tez62 Offline

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Post: #16
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
Just get them to knock out one thing at a time until you find the problem, then stick with your treatment
01-13-2015 10:11 PM
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quiescence at last Offline

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Post: #17
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
yeah, I was thinking that the study you had, was it at home or in a lab? Did they get EEG brain wave proof that you were actually sleeping? If a home study, your results might have been as good as they were, because you were not actually sleeping, and not relaxed enough to get the apneas or desaturations you get without the interference.

Dedicated to QALity sleep.
You'll note I am listed as an Advisory Member. I am honored to be listed as such. See the fine print - Advisory Members as a group provide advice and suggestions to Apnea Board administrators and staff concerning Apnea Board operation and administrative policies. Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
01-13-2015 11:47 PM
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archangle Offline
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Post: #18
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
You definitely need to record your nighttime SpO2 and look at the data.

Don't worry too much about the SpO2 short term. Those kinds of levels are more of a long term thing, not a thing where you're likely to die in the next few weeks.

Don't assume your problems are necessarily sleep apnea. It could be something else.

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
01-14-2015 10:21 AM
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Moriarty Offline

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Post: #19
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
Hi ConfusedInRI

I can understand your panic.

The one thing about your experience that I would like to take issue with is the Home 'Sleep Test'.

IMHO such a test is a useful screening test at best with the potential to be seriously misleading at worst.
I suggest that you would do well to arrange a referral to a full Sleep Test in a fully equipped lab where they can look at the full range of factors affecting sleep and respiration.

I hope you get the solution you need.

Cheers

David

Disclaimer: The 'Advisory Member' title is a Forum thing that I cannot change. I am not a doctor and my comments are purely my opinion or quote my personal experience. Regardless of my experience other readers mileage may vary.
01-15-2015 05:45 AM
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JVinNE Offline

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Post: #20
RE: Home test clears me, but oxygen sat levels are LOW. Please help. Scared.
(01-15-2015 05:45 AM)Moriarty Wrote:  Hi ConfusedInRI

I can understand your panic.

The one thing about your experience that I would like to take issue with is the Home 'Sleep Test'.

IMHO such a test is a useful screening test at best with the potential to be seriously misleading at worst.
I suggest that you would do well to arrange a referral to a full Sleep Test in a fully equipped lab where they can look at the full range of factors affecting sleep and respiration.

I hope you get the solution you need.

Cheers

David

Agreed. I am also going back to the gastro doc, and the ENT and Pulmonologist, because I am a mouth breather at night due to nasal allergies or problems.

Thank you for your kindness.


(01-14-2015 10:21 AM)archangle Wrote:  You definitely need to record your nighttime SpO2 and look at the data.

Don't worry too much about the SpO2 short term. Those kinds of levels are more of a long term thing, not a thing where you're likely to die in the next few weeks.

Don't assume your problems are necessarily sleep apnea. It could be something else.

Getting everything checked out. Thank you.
(This post was last modified: 01-15-2015 08:21 AM by JVinNE.)
01-15-2015 08:20 AM
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