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[Symptoms] Still tired and sleepy
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Sleepster Offline
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Posts: 4,991
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #21
RE: Still tired and sleepy
(09-22-2014 11:31 AM)drpjfitz Wrote:  I am new to this forum and only been diagnosed/using CPAP for about a month. I've been fairly compliant with the CPAP but am still struggling with sleepiness and tiredness.

That can happen to some of us. We are so used to having sleep apnea that our minds have been trained to keep waking us up to breathe. It's a behavior learned from decades of untreated sleep apnea.

You can break the habit but only if you want to re-train your brain. Your brain has to be convinced that it's safe to sleep, and that you won't stop breathing as soon as you fall into a deep sleep.

Every time you sleep without the machine you reverse that training process and your brain says "See, I told you it wasn't safe to sleep."

It may be that you have no memory of these awakenings, but they are happening, they are disturbing your rest, interfering with your cognitive functions during the day, and making you feel tired. You have to make a commitment to being 100% compliant. Your life in on the line here. In addition to feeling lousy due to lack of sleep, you also run a much higher risk of heart disease, hypertension, and stroke.

Once you get past the compliance hurdle, the next thing is getting your leaks under control. Then, and only then, can you start worrying about your AHI.

Getting a comfortable mask will help with compliance and leaks, but only you can make that commitment to 100% compliance.

Quote:The information on the Respironics System One indicates an AHI of about 6. Woult this be enough to cause ongoing sleepiness?

The goal is to get it under 5, but it's not that big of a deal because as you adapt your AHI will naturally drop. If you were diagnosed with very severe apnea the doctor may be happy to see a AHI under 10, especially during the first month.

Good luck and by all means download your data and look at it. The more you know about it the better you'll be able to communicate with your doctor.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
09-22-2014 09:12 PM
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PaytonA Offline
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Posts: 3,005
Joined: Dec 2013

Machine: ResMed S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: H5i(distilled-top up)
CPAP Pressure: VAuto MinE14.0 MaxI 20.6 PS4.0
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Orange County,California

Post: #22
RE: Still tired and sleepy
They are Texans............Bless their hearts.
09-22-2014 09:44 PM
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bwexler Offline

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Posts: 563
Joined: Mar 2012

Machine: PRS 1 BiPAP autoSV Advanced, with Heated Tube humidifier
Mask Type: Nasal mask
Mask Make & Model: Sleepweaver √Član
Humidifier: Resperonics Heated Tube humidifier
CPAP Pressure: Max pressure 25.0 cm H20, Max
CPAP Software: SleepyHead EncorePro

Other Comments: CMS 50i with Software for SpO2

Sex: Male
Location: San Marcos, CA, USA

Post: #23
RE: Still tired and sleepy
Sleepster I have been 100% compliant the past year and close to that for 4 years.
My average AHI is 1.7 this past year. Original test was AHI = 83.
I am still tired and off to se a "doctor" in the morning chasing some answers.
09-22-2014 09:58 PM
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drpjfitz Offline

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Posts: 18
Joined: Sep 2014

Machine: REMsta Pro C-flex+
Mask Type: Full face mask
Mask Make & Model: ResMed F10
Humidifier: Respironics heated
CPAP Pressure: 8
CPAP Software: Not using software

Other Comments:

Sex: Female
Location: Dallas TX

Post: #24
RE: Still tired and sleepy
Thanks, Sleepster. This forum is really helping to increase my motivation to be compliant. I've just got to stick with this and tweak things as I go along. Looking forward to seeing the sleep doctor tomorrow afternoon.

Bewilder----have they ruled out a Vitamin D deficiency? That was one of the dirt things treated for me before the sleep apnea was diagnosed.

Pam
09-23-2014 08:01 PM
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trish6hundred Offline

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Posts: 6,430
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #25
RE: Still tired and sleepy
Hi drpjfitz,
I know this has been a bit of a strugle for you but, try like anything, to keep your mask on all night. Each time you tell yourself you can't sleep with this thing on, and you take your mask off, you send your brain a mixed message.
Now if your mask is uncomfortable, don't be shy about trying as many masks as you need to 'till you find the one that is right for you.
I hope this helps you and that you have a good apointment at your sleep doc.

trish6hundred
09-23-2014 09:14 PM
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Evpraxia Offline

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Posts: 313
Joined: Aug 2014

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift LT for Her - Nasal Pillows System
Humidifier: ResMed H5i
CPAP Pressure: 7-17
CPAP Software: ResScan SleepyHead

Other Comments: Cat Staff, bibliophile, love Classical & Byzantine music

Sex: Female
Location: Pacific Northwest USA

Post: #26
RE: Still tired and sleepy
I do not know about other sleep labs, but the one my hubby and I went to gives a free follow-up visit during the day time for a mask nap trial - trying different masks to see what works. Check to see if the lab you went to will do the same. Worst they can do is say no.

Evpraxia in the Pacific Northwest USA
Diagnosed: 44 AHI when supine, O2 down to 82%
Treated since 20 Sept 2014:: 0.7 AHI, Settings 7-15, EPR on Full Time at Level 3
Better living through CPAP/APAP machines!
09-23-2014 09:51 PM
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