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[Symptoms] side effects
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janewest45 Offline

New Members

Posts: 2
Joined: Feb 2016

Machine: ResMed
Mask Type: Nasal pillows
Mask Make & Model: Swift FX for Her
Humidifier: yes
CPAP Pressure: 4.0
CPAP Software: Not using software

Other Comments:

Sex: Female
Location: Pacific Northwest

Post: #1
side effects
Ok - The doctors gave me a cpap machine about a year ago. After three days and the worse sleep of my life I said NO. (Briefly, I was diagnosed with mild sleep apnea I believe the number was 13. A mouth device would not work due to the structure of my jaw, and teeth, etc.) Long story short all the things I read for optimal health and weight loss point me back to the cpap machine.
Here I am a week into it and I have yet to have a decent night sleep. I seem to do 45 min intervals.
Here is what I am noticing. When I wake up, I am tingling all over. This does not feel like a good tingle. I can feel it in my toes, and feet, my arms and fingers. It almost feels electrical or maybe I want to start cramping up. Has anyone else ever experience this.
Do you whistle when you breath out. It seems like I am breathing really hard.
I believe my machine is set on 3.5, I tried to lower it to 2.5 before but it seems like I could never catch my breath at that setting. Am I using this thing right?
I thought I would try to get some answer before I called Kaiser to make another appointment.
Thanks SHa_biggrin5

Jane
02-16-2016 10:06 PM
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OpalRose Offline

Monitors

Posts: 3,178
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #2
RE: side effects
Welcome to the forum janewest45,

First, we would need a little more information.
What machine are you using, make, model. Is it a Cpap or auto Cpap, bilevel?
What pressure it is set to? The lowest pressure is 4, and the highest is 20cm. A low setting of 4 will leave you feeling starved for air.

Someone here will be able to help if you give us a little more information.

Your profile says you are using ResScan software, can you give us some data from that software,
Like your AHI, breakdown of AHI: obstructive, hypopneas, clear airway, leak rate.

In regard to your concern about tingling all over; I've never heard of anything like that. Mabye something to discuss with your doctor.

OpalRose
(This post was last modified: 02-16-2016 10:38 PM by OpalRose.)
02-16-2016 10:34 PM
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janewest45 Offline

New Members

Posts: 2
Joined: Feb 2016

Machine: ResMed
Mask Type: Nasal pillows
Mask Make & Model: Swift FX for Her
Humidifier: yes
CPAP Pressure: 4.0
CPAP Software: Not using software

Other Comments:

Sex: Female
Location: Pacific Northwest

Post: #3
RE: side effects
Ok, I went for the book and I will update my profile to reflect. ResMed S9 Series w/ Swift FX for Her Nasal Pillow System.
I have the temp at 78, I have the Humidifier at 3.0 and I believe the thing is set at 4.0 and I have yet to figure out how to change that. what is AHI ? I am not sure how to get the data either. I dont think I get the data I think Kaiser gets it with the disk.
(This post was last modified: 02-16-2016 10:59 PM by janewest45.)
02-16-2016 10:57 PM
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justMongo Offline

Monitors

Posts: 3,851
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #4
RE: side effects
Look at the start switch -- what does it say just above it? That's the type of S9 you have.
It may say VPAP S, or AUTOSET, or VPAP Auto, or ELITE...

The S9 has an SD data card in a slot on the back. Usually blue in color.That can be read by your computer using available software.

If you're really set for 4 cm, then you are starving for air. Has to be more to it. First, find the type of machine.

AHI is Apnea, Hypoapnea Index -- the number of events per hour.
http://www.apneaboard.com/wiki/index.php..._%28AHI%29

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
(This post was last modified: 02-16-2016 11:42 PM by justMongo.)
02-16-2016 11:37 PM
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trish6hundred Offline

Advisory Members

Posts: 6,446
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #5
RE: side effects
Hi janewest45,
WELCOME! to the forum.!
Hang in there for more suggestions and answers to your questions and much success to you as you restart your CPAP therapy.

trish6hundred
02-17-2016 09:56 AM
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wolson Offline

Preferred Members

Posts: 92
Joined: Dec 2015

Machine: PRS1 C-Flex
Mask Type: Other
Mask Make & Model: Dreamwear
Humidifier: Remstar
CPAP Pressure: 10 cm H20 C-flex x3
CPAP Software: SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Red Canyon, Lander, Wyoming

Post: #6
RE: side effects
(02-16-2016 10:06 PM)janewest45 Wrote:  Ok - The doctors gave me a cpap machine about a year ago. After three days and the worse sleep of my life I said NO. (Briefly, I was diagnosed with mild sleep apnea I believe the number was 13. A mouth device would not work due to the structure of my jaw, and teeth, etc.) Long story short all the things I read for optimal health and weight loss point me back to the cpap machine.
Here I am a week into it and I have yet to have a decent night sleep. I seem to do 45 min intervals.
Here is what I am noticing. When I wake up, I am tingling all over. This does not feel like a good tingle. I can feel it in my toes, and feet, my arms and fingers. It almost feels electrical or maybe I want to start cramping up. Has anyone else ever experience this.
Do you whistle when you breath out. It seems like I am breathing really hard.
I believe my machine is set on 3.5, I tried to lower it to 2.5 before but it seems like I could never catch my breath at that setting. Am I using this thing right?
I thought I would try to get some answer before I called Kaiser to make another appointment.
Thanks SHa_biggrin5

Jane

I don't know what type of CPAP you have but set at 4 cm H20 is probably the lowest setting and is probably way too low to meet your needs. Have you ever had a titration done? What did your doctor suggest the pressure be set at?

My guess is that you need more pressure.

Another piece of information on hat would be needed is what type of apneas are you suffering. Treating obstructive apneas is somewhat different than treating central apneas.

I would also suggest downloading Sleepyhead software and uploading the data from your machine into it: you will get a wealth of useful information.

Sleep-well

Walt

Walter W. Olson, Ph.D., P.E.
Professor Emeritus
02-17-2016 07:28 PM
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