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Taken my mask off the last three nights...
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remltr Offline

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Post: #1
Taken my mask off the last three nights...
...within two hours of going to sleep and I don't know why. Nothing in the data shows anything that would indicate a reason. The previous two nights to the last three everything was just fine, stayed on all night. I am confused. Anything that I should be looking for? This btw was using a ffm.
09-11-2013 06:45 AM
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me50 Offline

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Post: #2
RE: Taken my mask off the last three nights...
(09-11-2013 06:45 AM)remltr Wrote:  ...within two hours of going to sleep and I don't know why. Nothing in the data shows anything that would indicate a reason. The previous two nights to the last three everything was just fine, stayed on all night. I am confused. Anything that I should be looking for? This btw was using a ffm.

How long have you been using your CPAP and how long have you been using a FFM? I have done this before and I don't know why I did it. Maybe it is b/c you aren't used to the face mask yet? I dunno.
Can you download your data in Rescan and compare the data to what you have in sleepyhead for those 3 nights? Just a thought.
(This post was last modified: 09-11-2013 10:11 AM by me50.)
09-11-2013 10:10 AM
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justMongo Offline

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Post: #3
RE: Taken my mask off the last three nights...
I've tried nasal pillows and the nose only mask. Didn't work well for me.
I've been using the Mirage Quattro Pro FFM for 4 years.
Things that make it tolerable:
a comfortable cushion on the face.
if it leaks, I tighten the straps. I cannot stand any leak.
Only things that are sometimes uncomfortable:
Too hot air flow due to the humidifier.
Heatstrap makes my head hot on warm evenings.

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09-11-2013 12:02 PM
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remltr Offline

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Post: #4
RE: Taken my mask off the last three nights...
I have been on cpap for a month. I started out with this mask and have tried a couple ffm, including this one, a nasal pillow, a hybrid and an oral.
Although I am not totally comfortable with this mask, up until now it has been the overall best in terms of not waking up with leaks.

And now this issue arises. I don't want it to become a habit. I just wake up and there is the mask laying on bed next to me or on the floor. And then I am so tired that I don't put it back on, which I know I should. I may have to super glue it to my face.

I would stick with the nasal pillow except that I have to really tighten it to get it to stay in place and that puts a lot pressure on the bottom of my septum. Also the chin strap doesn't stay in place either.

I think the thing I need to do is be intubated every night and have my hands tied behind my back. That should keep the air flowing. The only problem with that is I live alone and no would be able to untie my hands in the morning.
09-11-2013 12:08 PM
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me50 Offline

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Post: #5
RE: Taken my mask off the last three nights...
I think the thing I need to do is be intubated every night and have my hands tied behind my back. That should keep the air flowing. The only problem with that is I live alone and no would be able to untie my hands in the morning.
[/quote]

well, if you can tie your hands at night, you would be able to untie them lol

seriously, I have posted about a new mask I was told about yesterday that is considered a full face mask but has the pillows that go in your nose with a piece that covers your mouth. It allows ease in reading or watching tv although I don't do that with my mask on as when I put the mask on, I am going to go to sleep. I think it may be called a mirage liberty but mine has not arrived here yet. Maybe your mask is not comfortable and that is why you are taking it off now. Just a thought. Sorry I don't have more solutions for you.
09-11-2013 12:17 PM
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PsychoMike Offline

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Post: #6
RE: Taken my mask off the last three nights...
Remltr, intubation might work, but the drugs to suppress the gag reflex suck Wink

My wife started off the same...she wasn't used to CPAP at all and, in moving during the night, would knock the mask slightly...then peel it off in her sleep because of a leak or because it was cinched down to prevent a leak, etc, etc.

Surprisingly, she found a cloth mask liner helped her a bit...less pressure / irritation from the mask itself let her adapt to wearing the ffm all night a bit better. She also added a couple pillows (partly to help with something else, partly to help her reduce the amount of movement). Just some thoughts Smile
09-11-2013 01:28 PM
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remltr Offline

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Post: #7
RE: Taken my mask off the last three nights...
(09-11-2013 12:17 PM)me50 Wrote:  seriously, I have posted about a new mask I was told about yesterday that is considered a full face mask but has the pillows that go in your nose with a piece that covers your mouth. It allows ease in reading or watching tv although I don't do that with my mask on as when I put the mask on, I am going to go to sleep. I think it may be called a mirage liberty but mine has not arrived here yet. Maybe your mask is not comfortable and that is why you are taking it off now. Just a thought. Sorry I don't have more solutions for you.

I looked at that mask on one of the commercial sites and it looks very similar to the hybrid I have, just more expensive. It it is hard to tell from the pictures I saw, but the pillow stems on the one you are describing appear to have a straight shaft where the one I have is accordion shaped which may allow a little more give in them, allowing for some variation in the distance between the mouthpiece where they are mounted and the nostril.

I only have one other option to try and that is the full face mask which surrounds the eyes, but I am a side sleeper, which may not work for me.
(09-11-2013 01:28 PM)PsychoMike Wrote:  Remltr, intubation might work, but the drugs to suppress the gag reflex suck Wink

My wife started off the same...she wasn't used to CPAP at all and, in moving during the night, would knock the mask slightly...then peel it off in her sleep because of a leak or because it was cinched down to prevent a leak, etc, etc.

Surprisingly, she found a cloth mask liner helped her a bit...less pressure / irritation from the mask itself let her adapt to wearing the ffm all night a bit better. She also added a couple pillows (partly to help with something else, partly to help her reduce the amount of movement). Just some thoughts Smile

Any info on where to obtain the cloth mask liner?
(This post was last modified: 09-11-2013 05:51 PM by remltr.)
09-11-2013 05:49 PM
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Shastzi Offline

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Post: #8
RE: Taken my mask off the last three nights...
Supplier #1 has a new type of cloth FFM available now.
"SleepWeaver Anew"
You might want to give that a try.

Cheers!

Smile

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09-12-2013 02:38 PM
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remltr Offline

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Post: #9
RE: Taken my mask off the last three nights...
(09-12-2013 02:38 PM)Shastzi Wrote:  Supplier #1 has a new type of cloth FFM available now.
"SleepWeaver Anew"
You might want to give that a try.

Cheers!

Smile

I was just looking at that, trying to get a feel on peoples feedback. I was doing that as I was contemplating trying a total face mask. This stuff is expensive to try out especially when the medical provider doesn't carry it and insurance won't cover any portion of it.

I am now more frustrated with this process and not sleeping well than I was before I had a sleep study done and didn't know I had an apnea issue. I tried the nasal pillows again last night in order to break the cycle with taking off the ffm three nights in a row. That lasted about 3 hours before it was leaking.
09-12-2013 02:47 PM
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remltr Offline

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Post: #10
RE: Taken my mask off the last three nights...
So I went to the doc yesterday and explained my frustration. He gave me a 30 day (with one refill) Rx for some sleep medication, forgot the name at the moment, starts with a "N" and is used for multiple purposes, including leg kicks which he said I had done during my sleep study.

Took one pill and slept most of the night with the ffm. Woke up once to find the lower part of the mask in my mouth. Must have started to take it off and stopped, I don't know. I may try a half pill tonight and see if that works as well. I feel if I can break the cycle and get some time under my belt with the mask (in effect getting used to it), I will finally get some restful sleep. I know I am still a rookie at this yet, but I don't suffer well waiting for results.
09-13-2013 04:16 PM
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