Poll: O.S.A. Terminal or Other ???
Terminal
Disabled
A Serious Illness
A Mild Illness
A Condition
An Annoyance
None of the Above
Dont Know
Dont Care
[Show Results]
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Terminal Apnea
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Dreamcatcher Offline

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Post: #21
RE: Terminal Apnea
Maybe I should have said In the eyes of the Law are we disabled?
04-27-2012 11:31 AM
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greatunclebill Offline

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Machine: Respironics System one Auto A-Flex
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Location: L.A. (Lower Alabama)

Post: #22
RE: Terminal Apnea
(04-27-2012 11:31 AM)Dreamcatcher Wrote:  Maybe I should have said In the eyes of the Law are we disabled?

when speaking of laws about disability you'll have to look up the laws of your country or the country you are in at the time.
04-27-2012 11:51 AM
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PaulaO2 Offline
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Post: #23
RE: Terminal Apnea
In the US, in terms of the law, we are considered having a disability that allows us protection under the ADA.

Being disabled and having a disability are two different things. In my mind, that is.

PaulaO2
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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
04-27-2012 12:18 PM
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Cutter Offline

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Post: #24
RE: Terminal Apnea
Michael Hingson is an author and is also blind. He has written a book called "Thunder Dog" which describes his experience escaping Tower 1 on 9/11 with the aid of his dog, Roselle. He describes his blindness as an inconvenience. He describes sighted peoples response to his blindness as a disability. He is a very interesting man with some very interesting experiences and some enlightening ideas.

This post is a natural product. The slight variations in spelling and 
grammar enhance its individual character and beauty and in no way 
are to be considered flaws or defects.
 
(This post was last modified: 04-27-2012 04:16 PM by Cutter.)
04-27-2012 12:52 PM
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PaulaO2 Offline
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Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #25
RE: Terminal Apnea
Exactly. The day I decided to start using a wheelchair, I got my life back. I thought it would be depressing and limiting. Heck no! Other than idiot businesses still not in compliance with a 22 yr old law, I am free-er with the chair than without.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
04-27-2012 01:30 PM
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greatunclebill Offline

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Machine: Respironics System one Auto A-Flex
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CPAP Software: SleepyHead EncoreViewer

Other Comments: quattro fx full face

Sex: Male
Location: L.A. (Lower Alabama)

Post: #26
RE: Terminal Apnea
(04-27-2012 01:30 PM)PaulaO2 Wrote:  Exactly. The day I decided to start using a wheelchair, I got my life back. I thought it would be depressing and limiting. Heck no! Other than idiot businesses still not in compliance with a 22 yr old law, I am free-er with the chair than without.

i'm slowly getting there. with asthma, copd, lightheadedness and general as yet undiagnosed muscle weakness and some atrophy, i get tired, etc when i walk too far like up and down the aisles of walmart. so one day i started using the old people cart when in the big stores. it felt weird in the beginning, but i'm over it. it still feels weird walking in, using the cart, and then getting up and walking out. until you ride them things you don't realize how poorly the stores maintain/replace the batteries.
04-27-2012 02:10 PM
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Dreamcatcher Offline

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Machine: Resmed Autoset Spirit II with Quattro F/F & FX Masks
Mask Type: Full face mask
Mask Make & Model:
Humidifier: H4i
CPAP Pressure: 10 - 18 cmH20 (auto range)
CPAP Software: ResScan SleepyHead Other Software

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Sex: Male
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Post: #27
RE: Terminal Apnea
Hate COPD my brother had it, he seemed fine, we went round to see him and he was lying on the couch......... Blowing-nose He was only 50 Sad

I dont have time to be disabled and I hate labels
04-28-2012 12:35 AM
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greatunclebill Offline

Members-b

Posts: 549
Joined: Feb 2012

Machine: Respironics System one Auto A-Flex
Mask Type: Full face mask
Mask Make & Model:
Humidifier: System one
CPAP Pressure: 8-12
CPAP Software: SleepyHead EncoreViewer

Other Comments: quattro fx full face

Sex: Male
Location: L.A. (Lower Alabama)

Post: #28
RE: Terminal Apnea
(04-28-2012 12:35 AM)Dreamcatcher Wrote:  Hate COPD my brother had it, he seemed fine, we went round to see him and he was lying on the couch......... Blowing-nose He was only 50 Sad

I dont have time to be disabled and I hate labels

the older you get, the more fun it gets. i never had lung or breathing problems before age 60 except apnea. none. at age 60 i got adult onset asthma. it came out of nowhere when i couldn't breathe one morning. 2 years later at age 62 it has progressed to asthma and copd. copd is not a disease. copd is a catch-all term to describe asthmatic bronchitis or emphysema. in my case the doc said i am a hybrid. i have a little of each of asthma, asthmatic bronchitis and emphysema. every doctor i speak to attributes it to being a former smoker. i also have a history of somewhat limited exposure to workplace asbestos which hasn't shown up yet. hopefully it won't. it is called mesothelioma and is worse than all of this.
04-28-2012 08:21 AM
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Sleepster Offline
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Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

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Post: #29
RE: Terminal Apnea
(04-26-2012 12:37 PM)PaulaO2 Wrote:  "Reasonable Accommodation" does not mean they have to give you a cot but it does mean they should allow you to not schedule important meetings first thing in the morning or last thing in the afternoon.

Unless the scheduling of those meetings at those times is critical to the job function. Correct?

Sleepster
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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
04-28-2012 10:02 AM
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Sleepster Offline
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Posts: 4,995
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Machine: ResMed AirCurve10 VAuto
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Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #30
RE: Terminal Apnea
(04-26-2012 11:31 AM)Dreamcatcher Wrote:  And also why is death or dying of this illness, quite a sparce topic.

For two reasons, I think.

First of all, apnea-related deaths occur as a result of the accumulated effects of sleep apnea over an extended period of time. The cause of death is stroke, heart failure, or other cardiovascular disease. So, those things are listed as the cause of death, not the sleep-apnea which was the underlying cause.

Secondly, sleep apnea treatment is a relatively new concept in our society. For many of us, we are the first generation for which CPAP therapy is avaialble. It's takes a while for the condition to seep into the consciousness of our society and reach full recognition as a cause of death.

Take for example, smoking. A few generations ago when people died of lung cancer, the reported cause of death was lung cancer, not smoking. When, in the 1960's, it first became clear that smoking caused lung cancer, we started blaming lung cancer deaths on smoking.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
(This post was last modified: 04-28-2012 10:12 AM by Sleepster.)
04-28-2012 10:12 AM
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