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storywizard Offline

Advisory Members

Posts: 350
Joined: Jul 2014

Machine: ResMed VPAP Adapt S9
Mask Type: Nasal pillows
Mask Make & Model: P10 taped to face
Humidifier: included with machine
CPAP Pressure: CPAP 11cm
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Vancouver, BC, Canada

Post: #1
Thanks!
Had a visit with a sleep doc today, boy am I glad I had been on this board and got some heads up on the attitude out there..
Did not want to see Sleepyhead data, stuck to mainstream medical attitude, ie, the patient knows nothing...
I was surprised he put me forward for the overnight sleep study, just a straight respiratory study, no titration...
Anyway, just wanted to thank you all for educating me, it made the experience a lot easier...

Sleep study, 24 Oct...

Storywizard
09-23-2014 08:07 PM
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OMyMyOHellYes Online

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Posts: 915
Joined: Mar 2013

Machine: Respironics 560 Auto
Mask Type: Nasal mask
Mask Make & Model: Resmed Mirage FX
Humidifier: Respironics System One (no heated hose)
CPAP Pressure: 08.0-15.0 cm/H2O
CPAP Software: EncoreBasic

Other Comments:

Sex: Male
Location: Texas

Post: #2
RE: Thanks!
Oh.... Some of them HATE that.

OMM
09-23-2014 08:41 PM
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Evpraxia Offline

Advisory Members

Posts: 313
Joined: Aug 2014

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift LT for Her - Nasal Pillows System
Humidifier: ResMed H5i
CPAP Pressure: 7-17
CPAP Software: ResScan SleepyHead

Other Comments: Cat Staff, bibliophile, love Classical & Byzantine music

Sex: Female
Location: Pacific Northwest USA

Post: #3
RE: Thanks!
Storywizard,

Since YOU are the one who are living in YOUR body you have the right to have a say in your treatment; though not all medical people agree. Ah well. Smiles, persistence and knowledge will win.

Evpraxia in the Pacific Northwest USA
Diagnosed: 44 AHI when supine, O2 down to 82%
Treated since 20 Sept 2014:: 0.7 AHI, Settings 7-15, EPR on Full Time at Level 3
Better living through CPAP/APAP machines!
09-23-2014 08:51 PM
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zoecat5 Offline

Members

Posts: 19
Joined: Aug 2014

Machine: Resmed S9 Auto
Mask Type: Nasal mask
Mask Make & Model: Airfit P10
Humidifier: H51
CPAP Pressure: 10
CPAP Software: SleepyHead

Other Comments: Diagnosed Aug 2014, AHI in study was 52

Sex: Female
Location: White Rock, BC

Post: #4
RE: Thanks!
Wow Storywizard, that doesn't sound like the best appointment - where are you going for your study - VGH or Abbotsford?
09-23-2014 09:57 PM
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storywizard Offline

Advisory Members

Posts: 350
Joined: Jul 2014

Machine: ResMed VPAP Adapt S9
Mask Type: Nasal pillows
Mask Make & Model: P10 taped to face
Humidifier: included with machine
CPAP Pressure: CPAP 11cm
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Vancouver, BC, Canada

Post: #5
RE: Thanks!
This is at the UBC sleep clinic...

it was a little disappointing but not surprising...:-)

Storywizard
09-23-2014 10:02 PM
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zoecat5 Offline

Members

Posts: 19
Joined: Aug 2014

Machine: Resmed S9 Auto
Mask Type: Nasal mask
Mask Make & Model: Airfit P10
Humidifier: H51
CPAP Pressure: 10
CPAP Software: SleepyHead

Other Comments: Diagnosed Aug 2014, AHI in study was 52

Sex: Female
Location: White Rock, BC

Post: #6
RE: Thanks!
I'll be interested to hear how it goes - keep us posted.
09-23-2014 10:23 PM
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Galactus Online

Advisory Members

Posts: 1,384
Joined: Jan 2014

Machine: Phillips Respironics System One PRS1 DS760P Auto BiPAP
Mask Type: Nasal pillows
Mask Make & Model: ResMed Airfit P10 Nasal Pillow
Humidifier: System One Heated Humidifier + Climate Line
CPAP Pressure: E/I 13/20 PS 4/7 BiFlex 3
CPAP Software: SleepyHead EncoreBasic

Other Comments: Sleep can be a good thing.

Sex: Male
Location: USA

Post: #7
RE: Thanks!
Best of luck to you.

My Primary Dr seems pretty happy that I have educated myself on the condition, and he freely discusses what he knows with me.

My Sleep Dr was awesome when I first met him as was the clinic, but the follow up hasn't been so well received. Frankly though, I just needed the diagnoses, the machine, and the script, now the rest is really in my hands.

The hardest part is communicating not that you are educated, but that you aren't insistent that you have something you don't have. I guess people read things see one thing and insist that is it and this si why they seem to get annoyed. I reference a favorite episode of friends when the Dr tells Joey he has Kidney Stones, and Joey tries everything he can think of to say maybe it is something else and the Dr keeps going back to Kidney Stones. I think they get way too much of that and so they shut down a bit. If you can show you can speak with him logically on the subject they generally change their tune.

The funny part is this whole SA thing reminds me of Having Kids vs getting a drivers license. Anyone can have a kid, no learning required, but you can't get a drivers license without some schooling. In the same way anyone can get SA be handed a machine and told virtually nothing. Whereas a Diabetic would never be told- Here's a meter and some insulin go home with no information or schooling.

If everyone thinks alike, then someone isn't thinking.
Everyone knows something, together we could know everything.
09-23-2014 10:47 PM
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JimZZZ Offline

Advisory Members

Posts: 370
Joined: Dec 2013

Machine: ResMed S9 AutoSet
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: ResMed H5i (not using)
CPAP Pressure: 9 - 14
CPAP Software: ResScan SleepyHead

Other Comments: CareFusion PureSom Ultra Chinstrap

Sex: Male
Location: Western North Carolina

Post: #8
RE: Thanks!
I've never met my sleep doctor. One time I got the receptionist to go ask him a question! The PA is nice although he is mostly interested in talking about his farm...

This forum and the Mayo Clinic website are my primary sources of info.
09-24-2014 04:45 AM
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