The Big Day
Tomorrow is the big day. I'll have my first meeting with the sleep therapist at the Asheville VA. My sleep study is complete and this will be the first opportunity I have to activate my therapy. I hope he/she is an understanding, helpful sort. I feel greatly empowered from all of my readings here on this website. I can't imagine going to this meeting cold turkey, relying only on what is told to me by the therapist.
I am on the horns of a dilemma. I had a referring doctor who is not a a respiratory specialist. In fact, he readily acknowledges that some of the patients for whom he has prescribed apnea treatment know more than he does on the topic. In his referral and prescription he looked to my sleep study which recommended "autotitrating CPAP set to CPAP @ 6 cm H2O." Accordingly, that is what his prescription for me is. Reading posts on here I see repeated recommendations that we undertake our own care, irrespective of recommendations. That we look up the user's manual and operating instructions for our particular machine and begin a self titration study. The recommendation I most recently read suggested setting the machine at 5.0 for the first night, 5.2 for the second night, and so on until I arrive at the correct pressure for my personal needs. All of this without regard to the actual prescription.
My referral doc is an open minded sort whom I know away from the medical profession. I told him about the above scenario asking what he thought. He replied that my machine, whatever the brand is, will be autotitrating and will be initially set to 6.0, to comply with the prescription. This setting, he said, is sufficiently close to the 5.0 I read about that any difference would be inconsequential. Then, since the machine autotitrates, it will take care of the rest on it's own.
First question: If i go through with the self titration should I tell my therapist of my intentions?
I must say, from a purely comfort standpoint, I like my referring doc's suggestion. I worry that if I begin changing settings on the machine I'll end up with readings that the sleep lab cannot later interpret. Also, I'm not sure how easy it will be to schedule follow-up visits at the sleep clinic if something goes wrong. So... I lean toward letting the autotitration do its thing.
I would certainly welcome input from others on this matter.
Kind regards to all my fellow apnea patients.
RE: The Big Day
Thanks. Yes, I've read and digested the article you suggest. I've also printed out portions of it and intend to take it to my "fitting". Thanks for the input.
RE: The Big Day
If the prescription is for 6cm minimum pressure and 20cm maximum pressure I'd say that's a good place to start. You'll of course have to fine tune the pressures once you have some data to work with. Now if they set the machine to a fixed pressure of 6cm than I would change it to auto and use the pressures I mentioned before. Congrats on the new machine.
RE: The Big Day
While I haven't had it happen to me, I've seen many posts here about the DME telling the patient that it is against the law to change the settings. If they do, please ask for a copy of that law.
RE: The Big Day
Thanks Wally. I appreciate all input.
04-25-2018, 08:51 AM
(This post was last modified: 04-25-2018, 08:52 AM by Mosquitobait.)
RE: The Big Day
I went into the first DME appointment letting them know that I can and will make my own settings changes as needed. What I don't know how to do is to select the best mask for my face and sleep habits. Make sure you understand their mask exchange policy. There have been too many posters here on the board who have understood that they could exchange a mask within 30 days only to arrive and find out it's every six months and they don't actually let you exchange.
Be sure to take the time to read anything you sign. Your appointment is not very long and after verifying you have the right machine with zero machine hours, focus your appointment on getting the right mask.