(03-31-2014 01:13 PM)WakeUpTime Wrote:
(03-30-2014 10:07 PM)herbm Wrote: Some of us are also finding that with CPAP we CAN sleep on our back for the first time in years or even decades.
Trying to be a non-backsleeper, is like asking me to drive a car with my nose. I think I'd sooner purchase one of those hospital beds that bend the back up into a chair-like position that to seep on my side. I'm really hoping to make CPAP work without having to change sleeping positions -- but to read almost everyone else's reports, it seems almost everyone became a non-backsleeper.
(03-30-2014 09:40 PM)becker44a Wrote: The Dr. who wrote my Sleep study report is an idiot or worse: the Sleep study AHI was higher by a factor of 20 when supine - and she omitted any mention of position in the report. I had to request a re-review of the data, and the Sleep Tech had the data all along. Evidently the Sleep Dr. didn't believe I should know about this. Grrrrrr !!!
My "sleep report" was a story without actual data (except for the summary # of apneas) that basically said what I told the doctor and what the sleepover concluded. When I asked the sleep dr for the graphs, charts and other data, he said "we don't supply that as people don't understand it anyway". I wonder if there's more in the total clinic analysis report that might be truly insightful. My sleep study coordinator didn't suggest trying other sleeping positions. I can see now why that might provide very useful information.
Getting your AHI down to almost-ZERO in only a few weeks is truly amazing. In your case, sleeping with CPAP is a 100% cure. It seems like everyone else struggles and tweaks masks, settings, etc., for years.
After reading here that it is common for OSA to be worse when supine, I started reviewing the S9 data, plus keeping a journal, and remembered waking up on my back a few times, with a correspondingly high AHI. I concluded on my own that supine was a bad thing for me. Then I started trying the techniques gleaned from this forum about avoiding the back position. That is when the AHI started to fall. First, I ran across a deal on a pair of large, heavy memory-foam pillows (2 for $10), and decided that would be a cheap experiment. I started wedging those behind me, and began to see some improvement. Next came the Tee-shirt/tennis ball attempt - again some improvement, but not enough. Then the backpack experiment. Voila!! - immediately the AHI dropped to less than 1. It isn't consistently that low, but is averaging less than 2 most of the time. For someone who was having trouble getting below 10, that was huge. Each new thing lasts a few nights, then seems to lose some effectiveness, as the novelty wears off. But it became CRYSTAL CLEAR that this was a key to my OSA. I decided then to try to get the data from my sleep study, just to see if there was any correlation with what I was finding experimentally. It took some persistence, and a number of the people involved didn't even seem to understand what I wanted, or why. Eventually, they reconnected me with the Sleep Tech who ran my Sleep study. She was very forthcoming, and that is when I discovered that the actual sleep study showed an AHI of 58.8 when supine, and non-supine was 3 (a factor of 19.6)! Needless to say, I was infuriated that the Sleep Dr. chose to exclude these facts from me. If I ever find her name on a report associated with me again, it will be summarily rejected. I believe this Sleep Dr. survives and thrives on patient ignorance, and I pity her patients that don't involve themselves as I have.
At this point, I still have a few mask issues, although the leaks are usually quite low. But the average pressure is so much less when I stay off my back, that everything is easier, more comfortable - aerophagia, leaks, exhaling, everything. If I can win the battle of the back, I think I will have won this war.
(03-31-2014 01:13 PM)WakeUpTime Wrote: When I asked the sleep dr for the graphs, charts and other data, he said "we don't supply that as people don't understand it anyway".
At this point, if a Sleep Dr. said this to me, my response would be "It's MY data, I'm entitled to it, and I want it". Whether I am able to understand it or not should not be any of his concern. If I want to read it myself, or if I want to ask some else for a 2nd opinion, is none of his business. If I had known then what I know now (how many times have we said that), and gotten that data at the beginning, I believe I would be around a month ahead of where I am. At least, I have it now, and I know I am looking in the right direction!
I hope you can find some key to your OSA that you can overcome and live with comfortably. Please keep us informed.