Post Reply 
The PAP Police, "THEY DO NOT EXIST!
Author Message
OMyMyOHellYes Offline

Advisory Members

Posts: 915
Joined: Mar 2013

Machine: Respironics 560 Auto
Mask Type: Nasal mask
Mask Make & Model: Resmed Mirage FX
Humidifier: Respironics System One (no heated hose)
CPAP Pressure: 08.0-15.0 cm/H2O
CPAP Software: EncoreBasic

Other Comments:

Sex: Male
Location: Texas

Post: #21
RE: The PAP Police, "THEY DO NOT EXIST!
(04-30-2015 08:36 PM)BiLevel48 Wrote:  Ohhhhh, I am so sorry. I do not mean to yell. In fact my intention is not to yell. I do not use capitals as yelling. I have had a habbit for years of when I am attempting to imphasize something, I without knowing it always use all caps.

But we have HTML tags for that sort of thing.
05-01-2015 06:34 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
AlanE Offline

Advisory Members

Posts: 1,491
Joined: Mar 2015

Machine: ResMed AirSense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: P10 & Mirage Liberty backup
Humidifier: Built-in
CPAP Pressure: 10-14
CPAP Software: ResScan SleepyHead

Other Comments: ʕ•ᴥ•ʔ So Long, and Thanks for All the Fish

Sex: Male
Location: Southwest Florida

Post: #22
RE: The PAP Police, "THEY DO NOT EXIST!
ooo the colors.



Using FlashAir W-03 SD card in machine. Access through wifi with FlashPAP or Sleep Master utilities.

I wanted to learn Binary so I enrolled in Binary 101. I seemed to have missed the first four courses. Big Grinnie
05-01-2015 07:54 AM
Find all posts by this user Post Reply Quote this message in a reply
DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,819
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #23
RE: The PAP Police, "THEY DO NOT EXIST!
and bold, italics or simply *splats* if you're feeling lazy Big Grin

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
05-01-2015 09:58 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
PsychoMike Offline

Advisory Members

Posts: 551
Joined: Aug 2013

Machine: ResMed S9 AutoSet
Mask Type: Other
Mask Make & Model: Varies with mood, ResMed F10 is my primary
Humidifier: ResMed H5i
CPAP Pressure: 12-17
CPAP Software: SleepyHead

Other Comments: asthma, cyclist upgraditis, just a little crazy (honest :D )

Sex: Male
Location: Alberta, Canada

Post: #24
RE: The PAP Police, "THEY DO NOT EXIST!
Gotta love the lack of knowledge of physicians and the medical mafia of the DME world. Realistically, the average physician gets what, a day (?) over the course of their degree to learn about the entire spectrum of sleep disordered breathing, treatment and such. They have no clue, but if they can make referrals they a) don't need to know about it and b) can still charge for services rendered. There's no motivation for them to learn more about it or do it themselves....as a result of not knowing it themselves, they generally don't trust the patient to figure it out.

The DME's are probably the single biggest source of the "illegal to change" lie. If you're not coming in, they're not making money. I was told by my DME that a) I couldn't make changes to my machine, b) that for warranty I had to go through them alone (not anyone else who deal with that brand of machine) and c) that an AHI of <5 was "good enough" (I'm an UARS patient...my RDI is ~9x what my AHI is...even at an AHI of 1, I'm still being sleep disrupted by "almost apnea" events 9x per hour).

Folks, I'll agree with the sentiments of many of the people posting on this board: This is about your health. Get educated and get proactive. The average doc doesn't have the time or knowledge to get you the best treatment possible (assuming that they are engaged enough to care and want to help) and the DME sees you as an income source. If you want to have the best chance of successfully treating your OSA or UARS, you need to play a significant role in your treatment. I am very fortunate...through education from places like this, looking at my information using programs like Sleepyhead and being willing to methodically go through and adjust my pressures based on my results, I have taken an AHI of 6 + RDI of 50 down to an AHI <0.1 and feel way, way better for it.

This is your health, folks....don't settle for "whatever."
(This post was last modified: 05-01-2015 11:50 AM by PsychoMike.)
05-01-2015 11:48 AM
Find all posts by this user Post Reply Quote this message in a reply
retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #25
RE: The PAP Police, "THEY DO NOT EXIST!
(04-30-2015 08:24 PM)trailrider Wrote:  Bilevel, could you please not use capitals when typing. After a day at work I come home to relax...and your posts read like someone is yelling at me. I understand you are excited to have found this board and are enthusiastic. May I suggest smilies, italics or bold instead?

My internal calm thanks you!

It's ok TR... I was awake. No harm, no fowl. (WHAT?, Another Duck joke?)

(05-01-2015 11:48 AM)PsychoMike Wrote:  Gotta love the lack of knowledge of physicians and the medical mafia of the DME world. Realistically, the average physician gets what, a day (?) over the course of their degree to learn about the entire spectrum of sleep disordered breathing, treatment and such. They have no clue, but if they can make referrals they a) don't need to know about it and b) can still charge for services rendered. There's no motivation for them to learn more about it or do it themselves....as a result of not knowing it themselves, they generally don't trust the patient to figure it out.

The DME's are probably the single biggest source of the "illegal to change" lie. If you're not coming in, they're not making money. I was told by my DME that a) I couldn't make changes to my machine, b) that for warranty I had to go through them alone (not anyone else who deal with that brand of machine) and c) that an AHI of <5 was "good enough" (I'm an UARS patient...my RDI is ~9x what my AHI is...even at an AHI of 1, I'm still being sleep disrupted by "almost apnea" events 9x per hour).

Folks, I'll agree with the sentiments of many of the people posting on this board: This is about your health. Get educated and get proactive. The average doc doesn't have the time or knowledge to get you the best treatment possible (assuming that they are engaged enough to care and want to help) and the DME sees you as an income source. If you want to have the best chance of successfully treating your OSA or UARS, you need to play a significant role in your treatment. I am very fortunate...through education from places like this, looking at my information using programs like Sleepyhead and being willing to methodically go through and adjust my pressures based on my results, I have taken an AHI of 6 + RDI of 50 down to an AHI <0.1 and feel way, way better for it.

This is your health, folks....don't settle for "whatever."

Good B.O.T. Mike....
05-01-2015 12:01 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
novatom Offline

Preferred Members

Posts: 89
Joined: Jan 2015

Machine: 460 PR System One REMStar 60 Series Pro CPAP Machine
Mask Type: Nasal pillows
Mask Make & Model: Philips Nuance Pro
Humidifier: PR System One Heated Humdifier
CPAP Pressure: 6
CPAP Software: SleepyHead Other Software

Other Comments: Professional journalist. Started CPAP on Jan. 1, 2015.

Sex: Male
Location: Reston, Va.

Post: #26
RE: The PAP Police, "THEY DO NOT EXIST!
Thank you for raising this issue. I am currently in the 4th month of CPAP therapy and am confronting the dilemma of raising the pressure on my machine. Since starting Jan. 1, and despite two follow up visits with my doctor, my pressure remains at 6. I had my last visit in March. My average AHI is just over 5 and frankly I think that's too high, but my doctor seems to think it's fine (he didn't say that outright but the fact that my average AHI was just under 5 at my last visit seems to indicate that he thinks so). Since then, my average AHI has actually gone up a bit and I don't feel as I'm getting the full effect of the therapy. I don't understand why he doesn't want to raise my pressure. That is the biggest mystery to me.

My situation is compounded by my chronic insomnia, which despite seeing some improvement early in the therapy, has returned. I don't think raising the pressure will improve the length of my sleep, but dammitall, last night, after much soul searching, I watched the Youtube video, stared at my machine and ALMOST changed the pressure but I backed down.

I think my doctor is a decent man but I could see him cringe when I would mention that I was checking out forums online for more information on CPAP. He seems to dismiss a lot of it. I don't feel threatened but I know I should NOT be afraid of his reaction if he finds out I changed the pressure. I have my next follow up in June. Someone on another board suggested that I just try and raise it to 7, see what happens and, if I'm that intimidated by the reaction I get at my next visit in June, just put it back to 6 before the visit. Could he find out that I raised it anyways? If my average AHI goes down as a result, I won't change it back and won't say a thing. I hope that happens and if so, can't wait to see the look on his face when he finds out the pressure has been changed by me.

You're right. I am letting him and the DME intimidate me, but that's because I'm letting them do this to me. It shouldn't be difficult to make a decision.
(This post was last modified: 05-01-2015 02:29 PM by novatom.)
05-01-2015 01:56 PM
Find all posts by this user Post Reply Quote this message in a reply
AlanE Offline

Advisory Members

Posts: 1,491
Joined: Mar 2015

Machine: ResMed AirSense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: P10 & Mirage Liberty backup
Humidifier: Built-in
CPAP Pressure: 10-14
CPAP Software: ResScan SleepyHead

Other Comments: ʕ•ᴥ•ʔ So Long, and Thanks for All the Fish

Sex: Male
Location: Southwest Florida

Post: #27
RE: The PAP Police, "THEY DO NOT EXIST!
My doc seemed happy that I'm involved in my therapy. The DME isn't going to be happy when they discover they can't access my machine anymore. Smile

I know they're going to need the data to prove compliance. They are a couple miles away so no big deal if I have to bring it to them. Guess I'll need to copy the data off the flashair and back onto the resmed SD card.



Using FlashAir W-03 SD card in machine. Access through wifi with FlashPAP or Sleep Master utilities.

I wanted to learn Binary so I enrolled in Binary 101. I seemed to have missed the first four courses. Big Grinnie
(This post was last modified: 05-01-2015 02:08 PM by AlanE.)
05-01-2015 02:07 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
eseedhouse Offline

Advisory Members

Posts: 878
Joined: Dec 2014

Machine: ResMed Airsense 10 Autoset
Mask Type: Full face mask
Mask Make & Model: SimPlus
Humidifier: ResMed
CPAP Pressure: 7-10
CPAP Software: SleepyHead

Other Comments: Also on supplemental O2 at 3L/min. while sleeping.

Sex: Male
Location: Victoria, British Columbia

Post: #28
RE: The PAP Police, "THEY DO NOT EXIST!
(05-01-2015 01:56 PM)novatom Wrote:  I think my doctor is a decent man but I could see him cringe when I would mention that I was checking out forums online for more information on CPAP. He seems to dismiss a lot of it. I don't feel threatened but I know I should NOT be afraid of his reaction if he finds out I changed the pressure.

Well, you know what Red Green says - it's easier to ask for forgiveness than for permission.

Ed Seedhouse
VA7SDH

I am neither a Doctor, nor any other kind of medical professional.

Actually you know, it is what it isn't.
05-01-2015 04:31 PM
Find all posts by this user Post Reply Quote this message in a reply
BiLevel48 Offline

Preferred Members

Posts: 70
Joined: Mar 2015

Machine: ResMed VPAP S9 VPAP AUTO E0470
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel
Humidifier: H5I
CPAP Pressure: 18/10 MODE BiLevel
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location:

Post: #29
RE: The PAP Police, "THEY DO NOT EXIST!
(05-01-2015 06:34 AM)OMyMyOHellYes Wrote:  
(04-30-2015 08:36 PM)BiLevel48 Wrote:  Ohhhhh, I am so sorry. I do not mean to yell. In fact my intention is not to yell. I do not use capitals as yelling. I have had a habbit for years of when I am attempting to imphasize something, I without knowing it always use all caps.

But we have HTML tags for that sort of thing.

OH you do? HTML? You know what? I know the Internet pretty well, but what is an HTML tag, and how would I use it? You know, I know it sounds strange, but I have the Titration Protocols down pat for CPAP, BiLevel, ASV, BiLevel S/T, and AVAPS, and I could tell you a lot about PSG, and other medical terminology like the Management of Necrotizing Enterocolitis, as well as the propper use of HFOV, and ECMO, but I really don't know a thing about HTML tags. I don't even know what it stands for and yet I know Multiple Sleep latency test is what MSLT is short for, and I could tell you that the procedure where they have the patient perform certain tasks to verify propper sensor Callibration Prior to, and After the PSG is known as the BIO-CAL. I could not tell you one thing about HTML, but I wonder if it is the emotion options you have on here like Smiley, Frown, etc.
05-01-2015 06:41 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,819
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #30
RE: The PAP Police, "THEY DO NOT EXIST!
Hyper Text Markup Language. But you don't have to use HTML, just go to Preview Post and use the rich text tools provided. when you quote something you like, you will also see the code used to create the look. On the forum, tags are inside braces [] a b inside braces makes everything after it bold to stop bolding do a /b in the braces.

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
05-01-2015 07:47 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  [Diagnosis] PSG Computer simulator? DOES IT EXIST? BiLevel48 8 2,323 05-08-2015 02:08 PM
Last Post: Mark Douglas
  Does This Exist? (humidifier idea...) player 8 1,875 03-12-2015 05:54 PM
Last Post: Crimson Nape

Forum Jump:

Who's Online (Complete List)