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The absolute need for software
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Ghost1958 Offline

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Posts: 957
Joined: Aug 2014

Machine: PRS1 Series Sixty Auto Aflex
Mask Type: Nasal mask
Mask Make & Model: F&P Eson
Humidifier: PRS1 with Heated Hose
CPAP Pressure: 10.5 min 16 max
CPAP Software: SleepyHead EncoreBasic

Other Comments: Moderate to Severe SA Obstructive. Rapid O2 desat off the machine.

Sex: Male
Location: KY

Post: #1
Exclaimation The absolute need for software
Im posting this to give a bit of a warning to those who dont run software and do thing like rip off masks etc.
I had in a year of cpap never ripped off a mask.
My titration presssure is 15 with a ffm frim sleep study.
My ahi runs on a ffm around 1.5 to 3.
Nasal pressure is less ahi of 1 or less.
Long story short id been using a ffm last week . My machine set at 14 min 18 max.
Two days ago i woke ripping the mask off, and almost unable to sit up. Dizzy panting for breathe.
I regained enough strentgth then ran the sd card thru sleepy head. Which i hadnt done for a few days.
At my lab titrated pressure min and 3 over that max my ahi numbers were 1.5 to 3.
Looking deeper my OA events were running 30 to 55 seconds in duration. Some in back to back clusters.
The one that woke me that morning ripping the mask off lasted 2 MINUTES and 20 seconds.
At brain damage level and over half way to dieing time wise.
So still using the ffm, though i usually use nasal. But my min is 15 max at 19.5 no flex and back under control.
Moral of the story?
Were I depending on Ahi alone and some DME to be watching out for me Id never have known what happened o how serious.
The docs prescribed levels were 8 min to 18 max.
Id be a vegatable long ago while even using the machine every night if i had depended on that.
Get software, check it often.
Under 5 ahi isnt a sure bet all is well.
Hope this helps someone. I
10-26-2015 10:36 PM
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eseedhouse Offline

Advisory Members

Posts: 879
Joined: Dec 2014

Machine: ResMed Airsense 10 Autoset
Mask Type: Full face mask
Mask Make & Model: SimPlus
Humidifier: ResMed
CPAP Pressure: 7-10
CPAP Software: SleepyHead

Other Comments: Also on supplemental O2 at 3L/min. while sleeping.

Sex: Male
Location: Victoria, British Columbia

Post: #2
RE: The absolute need for software
(10-26-2015 10:36 PM)Ghost1958 Wrote:  Im posting this to give a bit of a warning to those who dont run software and do thing like rip off masks etc.
I had in a year of cpap never ripped off a mask.
My titration presssure is 15 with a ffm frim sleep study.
My ahi runs on a ffm around 1.5 to 3.
Nasal pressure is less ahi of 1 or less.
Long story short id been using a ffm last week . My machine set at 14 min 18 max.
Two days ago i woke ripping the mask off, and almost unable to sit up. Dizzy panting for breathe.
I regained enough strentgth then ran the sd card thru sleepy head. Which i hadnt done for a few days.
At my lab titrated pressure min and 3 over that max my ahi numbers were 1.5 to 3.
Looking deeper my OA events were running 30 to 55 seconds in duration. Some in back to back clusters.
The one that woke me that morning ripping the mask off lasted 2 MINUTES and 20 seconds.
At brain damage level and over half way to dieing time wise.
So still using the ffm, though i usually use nasal. But my min is 15 max at 19.5 no flex and back under control.
Moral of the story?
Were I depending on Ahi alone and some DME to be watching out for me Id never have known what happened o how serious.
The docs prescribed levels were 8 min to 18 max.
Id be a vegatable long ago while even using the machine every night if i had depended on that.
Get software, check it often.
Under 5 ahi isnt a sure bet all is well.
Hope this helps someone. I

I agree. I always look at the time of events. If you have only one OA but it lasts long enough to cause brain damage you're AHI will be nice and low, but you will be in bad shape. Contra-wise an AHI over 5 but with all the events at 10 or 11 seconds might not do you any harm unless there are really a huge lot of them.

Ed Seedhouse
VA7SDH

I am neither a Doctor, nor any other kind of medical professional.

Actually you know, it is what it isn't.
10-26-2015 10:41 PM
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otrpu Offline

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Posts: 79
Joined: Jun 2015

Machine: AirSense 10 Autoset w/Oxi
Mask Type: Hybrid
Mask Make & Model: RespCareHYB500
Humidifier: ClimateLine, Socked, set 3
CPAP Pressure: 9-17
CPAP Software: SleepyHead

Other Comments: COPD

Sex: Male
Location: East of Rockies

Post: #3
RE: The absolute need for software
Ghost, you're probably right. I've been using CPAP for alittle over 10 years. Used the same "Brick" for 9 years. Awoke in a panic awhile back. . .had a nightmare that I was suffocating. . .ripped the ffm from my face. Broke the mask and the headgear. My sis gave me 10 year newer "Brick". Couldn't even hear it running. Was so impressed with the improvements in hardware I popped for a data capable ResMed AirSense 10 Autoset w/Oxi. Now learning how to use and decipher the software. Sleeping better than I have in a decade.

Cheers,
otrpu

Love your family, treat your friend(s) well, and don't waste your time. Everything else is just so much BS. Sleep-well
10-26-2015 11:02 PM
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Ghost1958 Offline

Advisory Members

Posts: 957
Joined: Aug 2014

Machine: PRS1 Series Sixty Auto Aflex
Mask Type: Nasal mask
Mask Make & Model: F&P Eson
Humidifier: PRS1 with Heated Hose
CPAP Pressure: 10.5 min 16 max
CPAP Software: SleepyHead EncoreBasic

Other Comments: Moderate to Severe SA Obstructive. Rapid O2 desat off the machine.

Sex: Male
Location: KY

Post: #4
RE: The absolute need for software
Thats part of the reason I thonk Docs should be required to only issue data capable machines.
And why it angers me so much that DMEs push bricks so hard.
10-26-2015 11:46 PM
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OpalRose Offline

Monitors

Posts: 3,168
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #5
RE: The absolute need for software
Ghost1958,
Thanks for sharing with us.

It's a little frustrating when I notice how many users don't use the free software available to them.
I think that some just don't want to be bothered or depend too much on their doctors and DME provider to make choices for them.

It takes time and patience to look at your graphs and understand the numbers. You are so right in saying it isn't just about getting a low AHI number. The duration of events is important.

For all new folk out there, and those of us that aren't so new at this; if you aren't feeling quite right, take a good look at the duration of your apnea events not just low AHI number.

If you own a brick, do whatever you need to do to save up for a data capable machine and download the free software available to you.

As far as DME still selling "bricks" in this day and age, it all about $$$$$$$. They do not have your best interest at heart, although I have no idea why a Doctor would not want you to have a data capable machine.Dont-know

Final Rant: Take control of your therapy.

OpalRose
(This post was last modified: 10-27-2015 08:04 AM by OpalRose.)
10-27-2015 08:02 AM
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stanleydean Offline

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Posts: 85
Joined: Aug 2014

Machine: Resmart CPAP
Mask Type: Full face mask
Mask Make & Model: Drive Medical Comfort Fit Deluxe
Humidifier: Resmart
CPAP Pressure: 10.5 cm H2O
CPAP Software: Not using software

Other Comments: No downloadable software available for Resmart. Partial data available via icodeconnect.com

Sex: Male
Location: Central Florida

Post: #6
RE: The absolute need for software
Ghost, Your post set into motion one of the most significant threads I have read since finding this forum. So glad you survived that close call.

I must be one of many who had a sleep study, eventually had equipment delivered that was selected, including mask type, by someone that had never seen me, gave a brief demo on how to use, had me sign some papers, patted me on the head and said good luck. Had I not found this forum I would still be totally unaware of what we need to do and what we can do to optimize our own therapy.

Thanks for being a part of the solution.
10-27-2015 01:19 PM
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Homerec130 Offline

Advisory Members

Posts: 444
Joined: Mar 2012

Machine: Philips/Resperonics BiPAP auto SV Advanced System One (950P)
Mask Type: Full face mask
Mask Make & Model: ResMed Quatro FX
Humidifier: Philips Respironics System 1
CPAP Pressure: 6-16
CPAP Software: SleepyHead

Other Comments: But it is a dry heat.

Sex: Male
Location: Tucson, AZ

Post: #7
RE: The absolute need for software
Software is necessary. I have noticed my AHIs have been going up (from the low 2s to the low 3s), but I have still felt rested. Looking at my graphs I found that most of my events are at the beginning of the night for about the first hour, just enough to throw everything else off. It seems I have the tendency to fall asleep on my back then as the night progresses, I go and sleep on my side. Moral of the story, don't fall asleep on my back.

Homer
10-27-2015 01:39 PM
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Evpraxia Offline

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Posts: 313
Joined: Aug 2014

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift LT for Her - Nasal Pillows System
Humidifier: ResMed H5i
CPAP Pressure: 7-17
CPAP Software: ResScan SleepyHead

Other Comments: Cat Staff, bibliophile, love Classical & Byzantine music

Sex: Female
Location: Pacific Northwest USA

Post: #8
RE: The absolute need for software
Completely Agree!

Please folks, use the software!!

Some of the folks who have been here awhile know my father's story, folks new to the forum may not, so here goes.

My father was diagnosed with sleep apnea, given a machine and a mask and told "use it". He HATED the mask, and I mean HATED it. He refused to use the FFM or any other mask we tried; and my sister & I tried every mask available at the time. He finally was so affected by sleep apnea that he fell asleep at the wheel of his car, thank God it was at a stop light, and someone behind him started honking and he woke up. Result? His driver's license was pulled.

Often, when talking with him on the phone (1,000 miles away) he would fall asleep and I would have to try to wake him up over the phone, just try that sometime.

It gets worse, he is seen wondering down the middle of the residential street in front of his house at 2am and a week or so later he tries to work on his car in the middle of the night and falls asleep in the fender of the car. And, the dentist's office called him regarding an appointment, thinks he is having a stroke and calls 911 for him. Nope, no stroke, "merely" fell asleep during the call and tried to talk while kind-of waking up.

He ends up with heart damage and brain damage - he gets a replacement valve due to his heart damage and he is declared legally incompetent due to brain damage and I become his Legal Conservator; which means he can no longer sign ANYTHING, checks, legal agreements, etc. and that I become his Payee for his pensions checks and pay all his bills out of his funds FOR him.

So, please, PLEASE use the software and use the XPAP - don't give up! Be persistent about the treatment you need!

Evpraxia in the Pacific Northwest USA
Diagnosed: 44 AHI when supine, O2 down to 82%
Treated since 20 Sept 2014:: 0.7 AHI, Settings 7-15, EPR on Full Time at Level 3
Better living through CPAP/APAP machines!
10-27-2015 02:22 PM
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sonicboom Offline

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Posts: 474
Joined: May 2015

Machine: Airsense 10 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed AirFit P10, Dreamwear
Humidifier: Integrated
CPAP Pressure: 4.6-7.6
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Washington

Post: #9
RE: The absolute need for software
There is only one word for this thread and these posts - WOW

Coffee
10-27-2015 06:14 PM
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armando.ntg Offline

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Posts: 21
Joined: Jun 2015

Machine: Resmed Airsense S10 Autoset
Mask Type: Full face mask
Mask Make & Model: Resmed Airfit F10
Humidifier: Airsense S10
CPAP Pressure: 12 to 16 cmH2O
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Rio de Janeiro, Brazil

Post: #10
RE: The absolute need for software
I apologize if the question was too stupid, but how do you know just by looking at the graphics of the Sleepyhead what´s the duration of an OA, (for example, the OA at 08:12:16 (10) in the attached graphic)? Is it indicated by the numbers between brackets on events?
And besides, what number is considered "safe" and from what number is regarded as "dangerous"?
Thanks.

[Imgur](http://i.imgur.com/PHeKU25.png)
10-28-2015 09:09 AM
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