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Therapy is not working!!!
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erossco Offline

Members

Posts: 6
Joined: Feb 2015

Machine: resmed airsense 10
Mask Type: Full face mask
Mask Make & Model: unsure
Humidifier: unsurr
CPAP Pressure: 5 to 20
CPAP Software: Other Software

Other Comments:

Sex: Male
Location:

Post: #11
RE: Therapy is not working!!!
Opalrose, my AHI has been about 7 to 9. As for increasing the pressure, I have adjusted it several times, always returning it to the original setting, after no success. I honestly did not think this was going to be that hard to do. You said the breathing with nasal pillows should be natural. What do you mean by that? I really am very close to giving up. This has been one of the most emotionally wrenching things I have experienced. My sleep is awful when I try to use the machine.
09-24-2015 07:58 PM
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erossco Offline

Members

Posts: 6
Joined: Feb 2015

Machine: resmed airsense 10
Mask Type: Full face mask
Mask Make & Model: unsure
Humidifier: unsurr
CPAP Pressure: 5 to 20
CPAP Software: Other Software

Other Comments:

Sex: Male
Location:

Post: #12
RE: Therapy is not working!!!
What is Sleepyhead and how do you use it?
09-24-2015 08:07 PM
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Crimson Nape Offline

Monitors

Posts: 1,324
Joined: Oct 2014

Machine: ResMed S9 Autoset
Mask Type: Other
Mask Make & Model: P-10 / F&P Simplus / DreamWear
Humidifier: H5i w/Climateline
CPAP Pressure: 8 - EPR 3
CPAP Software: SleepyHead

Other Comments: CMS-50F & 50IW

Sex: Male
Location: Georgia

Post: #13
RE: Therapy is not working!!!
(09-24-2015 08:07 PM)erossco Wrote:  What is Sleepyhead and how do you use it?
Sleepyhead is an analytical sleep software that uses the data the CPAP records during a session.
Here's the link:
http://www.sleepfiles.com/SH2/

This is the same as the link at the top of the page

Statistics prove that people who have more birthdays live longer.
(This post was last modified: 09-24-2015 08:21 PM by Crimson Nape.)
09-24-2015 08:10 PM
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OpalRose Offline

Monitors

Posts: 3,159
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #14
RE: Therapy is not working!!!
(09-24-2015 07:58 PM)erossco Wrote:  Opalrose, my AHI has been about 7 to 9. As for increasing the pressure, I have adjusted it several times, always returning it to the original setting, after no success. I honestly did not think this was going to be that hard to do. You said the breathing with nasal pillows should be natural. What do you mean by that? I really am very close to giving up. This has been one of the most emotionally wrenching things I have experienced. My sleep is awful when I try to use the machine.

erossco,
Your profile says your pressure setting is 5-20. But you state that you have adjusted it many times. Without monitoring or using software, what gauge were you using to change your pressure. I ask, because the norm would be to set your minimum pressure at 2 below your 90% pressure, and your max setting should be set higher that the 90% number, or can be left at 20.

You should be able to get your AHI below 5 with the correct settings. If you can download the SLeepyhead Software, and then import the information from your SD card, then we can take a look at your graphs and see what is going on. I think the link for sleepyhead was given to you in a prior post.

In the meantime, I would raise that minimum setting to 6 and set EPR to 2. That should help you when you exhale.

Try the above before giving up on nasal pillow mask.

There are a lot of other masks available. You could try a nasal mask.
Do what you have to do to make it work for you.

OpalRose
09-24-2015 08:38 PM
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lmoretti Offline

Preferred Members

Posts: 75
Joined: May 2015

Machine: PR System One 60 with AFlex
Mask Type: Nasal pillows
Mask Make & Model: Resmed P10
Humidifier: PR
CPAP Pressure: 9
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location:

Post: #15
RE: Therapy is not working!!!
With nasal pillows you often need to pull the mask away from the nose after air is flowing to allow the pillows to "fluff" up. I find if I forget it's much harder to breath as the cushion is collapsed and sometimes blocks the nostrils.
09-25-2015 09:38 AM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #16
RE: Therapy is not working!!!
(09-24-2015 07:58 PM)erossco Wrote:  Opalrose, my AHI has been about 7 to 9. As for increasing the pressure, I have adjusted it several times, always returning it to the original setting, after no success.
Can you also tell us what the rest of data showing (further down the sleep report) ... hours, AHI, total AI, central AI, pressure, leak

You can set "period" to "1 day" to see last night data, default set on 1 month
Period options ... 1 day / 1 week / 1 month / 3 months / 6 months / 1 year
09-25-2015 04:24 PM
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kaiasgram Offline

Advisory Members

Posts: 241
Joined: Aug 2013

Machine: S9 VPAP Auto
Mask Type: Nasal pillows
Mask Make & Model: Aloha
Humidifier: H5i
CPAP Pressure: 8-10
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Northern California

Post: #17
RE: Therapy is not working!!!
erossco, when CPAP therapy doesn't get off to a great start you have to be willing to take a systematic and often very detailed approach to troubleshooting in order to make it work for you. So far we're getting only limited information from you about what's been happening.

Trying different pressure settings only makes sense if you're basing those changes on data provided by the machine and giving the changes adequate time before drawing any conclusions. We usually don't talk about changing pressures unless we have seen some SleepyHead reports that point to the need for different pressures.

If you are willing to get SleepyHead up and running there's a lot we can help you with. It may or may not have made sense to change your pressure(s) depending on what type of apnea events you've been having. For example, we don't increase the pressure if all or most of the events are central or "clear airway" because pressure doesn't treat those events.

I encourage you to start using SleepyHead now and posting reports here -- Even one screenshot can show us what pressure changes you've made and for how long, whether you're using exhale relief, what your leak numbers have been, and more. Mask fit/comfort is critical too -- at the same time, if therapy is ineffective and sleep is a mess, it may be harder to really evaluate the 'goodness-of-fit' of the mask.
09-26-2015 03:07 PM
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erossco Offline

Members

Posts: 6
Joined: Feb 2015

Machine: resmed airsense 10
Mask Type: Full face mask
Mask Make & Model: unsure
Humidifier: unsurr
CPAP Pressure: 5 to 20
CPAP Software: Other Software

Other Comments:

Sex: Male
Location:

Post: #18
RE: Therapy is not working!!!
I do not know what medium and 95% pressure is. I went to pick up the machine February of this year. She fit me with the mask and said good luck. That was it. I do not know if the mask fits properly or not. That is partially why I went to the nasal pillows. Thought they would be easier to use since I am a nose breather. I did try practicing with them about an hour before I went to bed. That helped a little.
09-29-2015 08:45 PM
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erossco Offline

Members

Posts: 6
Joined: Feb 2015

Machine: resmed airsense 10
Mask Type: Full face mask
Mask Make & Model: unsure
Humidifier: unsurr
CPAP Pressure: 5 to 20
CPAP Software: Other Software

Other Comments:

Sex: Male
Location:

Post: #19
RE: Therapy is not working!!!
After reading several posts on here, I realize most people who write in have access to their initial sleep study. I was never given that. I had a home sleep study done. The results were mailed to my doctor, who in turn referred me to Lincare. I have not seen any results whatsoever.
09-29-2015 08:56 PM
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kaiasgram Offline

Advisory Members

Posts: 241
Joined: Aug 2013

Machine: S9 VPAP Auto
Mask Type: Nasal pillows
Mask Make & Model: Aloha
Humidifier: H5i
CPAP Pressure: 8-10
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Northern California

Post: #20
RE: Therapy is not working!!!
(09-29-2015 08:56 PM)erossco Wrote:  After reading several posts on here, I realize most people who write in have access to their initial sleep study. I was never given that. I had a home sleep study done. The results were mailed to my doctor, who in turn referred me to Lincare. I have not seen any results whatsoever.

Ah, ok. Your sleep study report is part of your medical records. You can get a copy of the report from your doctor -- you're legally entitled to it, you just have to request it. When you do that also request a copy of your CPAP prescription -- that too is part of your medical record.

Meantime, I encourage you to download SleepyHead and start posting screenshots of your data. It will show us all the information we're asking questions about (leak, median and 95% pressure, etc.) and will likely also give us some ideas about whether and how to adjust the pressure settings.

Your experience is pretty typical and it's the reason forums like this exist. Most of us got minimal help from the medical professionals involved, and less-than-minimal help from the DME that supplies the equipment. But if you stick around and if you're willing to put in some time there's a good chance you can get this crazy therapy working for you.
09-29-2015 10:30 PM
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