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Thoughts on adjusting own pressure?
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sleepypaul Offline

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Posts: 5
Joined: Dec 2014

Machine: ResMed Elite
Mask Type: Full face mask
Mask Make & Model: unsure
Humidifier: H5i
CPAP Pressure: 10
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location:

Post: #1
Thoughts on adjusting own pressure?
Hello, I was diagnosed with mild sleep apnea after an overnight sleep study. AHI of 25. At my follow-up titration--another overnight, sleep doc determined a setting of 10 was ideal. My AHI was below 5. After that one night with CPAP, I literally felt 20 years younger the next day. I went for a 20 mile bike ride, cut the grass for over an hour, and didn't need my ritual weekend nap. I was psyched!

I then got a Resmed Escape set to 10. After a few days of no major improvement in sleepiness and some googling, I discovered I could monitor own AHI using Sleepyhead, but not with the Escape. I also had to show compliance for at least a month for the unit to become "mine" and not a rental. So after a week on CPAP and without any arm twisting, my DME switched me to the Elite.

Now I can use Sleepyhead but find it just as convenient to have the Elite report my AHI on the screen. I had my 6 week follow-up today and my average AHI with CPAP is 6.7 which isn't news to me. I have better than 93% compliance. I reported to the DME that I hoped to be feeling better and so he prescribed another overnight titration and that they'd probably have to increase the pressure.

My insurance covers 85% of the studies and machine. 15% is still a lot. I told him that even at 15% for another study, it was adding up. He immediately reduced my burden to 7.5% and I scheduled the appt.

So I realize this number of 10 is a prescription and even with traditional medications, doctors may have to adjust the dosage. But considering that I am capable of adjusting my own pressure and that these fine tunings aren't cheap, would it be OK to just try it and monitor my AHI for a few days after each adjustment to see if there is an improvement? I haven't read up if the pressure can be adjusted in decimal or whole number increments but does going to 11 (insert Spinal Tap joke here) sound reasonable? If I can get below 5 consistently, I'll cancel the appt.

Thanks,
Paul
12-16-2014 05:35 PM
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zonk Offline

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Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #2
RE: Thoughts on adjusting own pressure?
Pressure adjustment explained here .. http://www.apneaboard.com/adjust-cpap-pr...re-on-cpap

Ask the doctor to write you a script for "S9 AutoSet" and include "dispense as written"

The AutoSet take all the guess work out of the equation and make life that much easier

Welcome and best of luck
12-16-2014 05:48 PM
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DariaVader Offline
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Posts: 1,827
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #3
RE: Thoughts on adjusting own pressure?
better to spend your money on an APAP. It can bring your AHI down with the minimum pressure necessary, and adjust up as needed.
12-16-2014 05:49 PM
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justMongo Offline

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Posts: 3,853
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #4
RE: Thoughts on adjusting own pressure?
Small increments. That machine can be adjusted in 0.2 cm-H2O increments.
http://www.apneaboard.com/adjust-cpap-pr...re-on-cpap

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-16-2014 05:52 PM
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Crimson Nape Offline

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Posts: 1,332
Joined: Oct 2014

Machine: ResMed S9 Autoset
Mask Type: Other
Mask Make & Model: P-10 / F&P Simplus / DreamWear
Humidifier: H5i w/Climateline
CPAP Pressure: 8 - EPR 3
CPAP Software: SleepyHead

Other Comments: CMS-50F & 50IW

Sex: Male
Location: Georgia

Post: #5
RE: Thoughts on adjusting own pressure?
Welcome to the Board!

Please take this with a grain of salt. It is just my opinion. At this point in time, I'd follow your doctor's advice. Put yourself in your doctor's place. How would you feel if you were trying to help somebody and they ignored you and went off and did something else? Give him/her a chance, hopefully they've had more experience than you do at this point. After you have some mileage on the CPAP and have a track record of sleep data, you might use it to suggest modifications.

Statistics prove that people who have more birthdays live longer.
12-16-2014 05:54 PM
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trish6hundred Online

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Posts: 6,452
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #6
RE: Thoughts on adjusting own pressure?
Hi sleepypaul,
WELCOME! to the forum.!
Much success to you with your CPAP therapy, hang in there for more responses to your post.

trish6hundred
12-16-2014 06:27 PM
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PaulaO2 Offline
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Posts: 8,067
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #7
RE: Thoughts on adjusting own pressure?
It is illegal as heck and the CPAP police will come after you!

Okay, they don't exist but some suppliers and doctors like to make us think that we do.

I'd hesitate to pay yet more for another sleep test. The supplier is also the sleep center? That's not often a good thing. That's like a state auto emissions inspection place also just happening to sell mufflers and catalytic converters and various vacuum sensors.

Take that 7.5% and see if you can get an Autoset from Supplier #2 on our Supplier's List (link at top of every page). You don't need one with a humidifier since you have one with the Elite. Or, better yet, tell the supplier/clinic that you would rather do the titration at home. Get them to give you or loan you an Autoset.

Yes, you can adjust the pressure on your own, titrate yourself. It takes time but it's cheap.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-16-2014 07:32 PM
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Ghost1958 Offline

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Posts: 957
Joined: Aug 2014

Machine: PRS1 Series Sixty Auto Aflex
Mask Type: Nasal mask
Mask Make & Model: F&P Eson
Humidifier: PRS1 with Heated Hose
CPAP Pressure: 10.5 min 16 max
CPAP Software: SleepyHead EncoreBasic

Other Comments: Moderate to Severe SA Obstructive. Rapid O2 desat off the machine.

Sex: Male
Location: KY

Post: #8
RE: Thoughts on adjusting own pressure?
If you want your AHI down and pressures correct in a short time youll do it yourself.

If you want it take a long time to never you will have a doc prescribe a new pressure each time. Each change will usually take a week to actually get done. And it will probably be wrong as they seldom do what you ask without adding something of their own to it.

Get an auto pap watch your software. No need for 2nd or 3rd titrations or really even the first except to rule out complex or central apena. Pressure wise they are basically useless as they are normally wrong. And auto machine treating OA will do as good or better job helping you get the right pressures as one night in a sleep lab. JMO
12-16-2014 08:43 PM
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archangle Offline
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Posts: 3,159
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: ResMed S9 H5i
CPAP Pressure: 16-20
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments: Happy PAPper

Sex: Undisclosed
Location: USA

Post: #9
RE: Thoughts on adjusting own pressure?
The Auto PAP is nice, but in terms of finding "THE" right pressure, you can probably do that fine by just adjusting your pressure on your Elite and seeing what makes it better or worse.

Don't make really big pressure adjustments in a short period of time.

Also, don't get overly concerned about having a really low AHI number.

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
12-17-2014 02:35 PM
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saltydawg2 Offline

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Posts: 92
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Machine: Resmed S9 autoset
Mask Type: Full face mask
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CPAP Pressure: 11.8 min-14 max
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: North Carolina

Post: #10
RE: Thoughts on adjusting own pressure?
There were these two buzzards sitting on a power line over a desolate road in west Texas; lot's of those. They stayed, no cars for a long, long time. One buzzard looked over at the other buzzard, and said, "Patience, HELL! Let's kill something! I have learned recently that you need to be proactive in your treatment. In 3 months, I have seen my doctor three times. That was not often enough to find a sweet spot; to make me feel that the "stupid mask thing" was working. With the help on this forum, I can at least see the numbers down lower than they ever have been. The rest, I am confident, will come.
12-17-2014 07:04 PM
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