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Too Late for CPAP?
#61
You guys are not going to believe this...

Since my last hospital stay in early July I've been doing much better. I have no idea why. Nothing's changed. Still on oxygen at night. My cardiologist added a low-dose of a steroid diuretic. But that's it. I'm sleeping through the night and have a fair amount of energy during the day.

My cardiologist offered to put me on in-home hospice care, but I elected not to do it. When my sons heard about it they asked what I'd like to do before "the end" and I told them I'd like to spend more time with the grand kids and ride a motorcycle again. They encouraged me to find a scooter, so I did. Here it is getting the oil changed in my son's garage...

[Image: MySonsQuickLube.jpg~original]

And after lunch with a good friend...

[Image: FirstRide_WithLarry02.jpg~original]

Here's my dilemma now... Back in May my internal medicine doc scheduled a sleep study for me in August (in addition to the one I did in-home in June). I finally did it, and yesterday I saw the sleep doctor. He wants me to go back on a CPAP machine.

I keep remembering the phrase, don't fix it if it ain't broke... What do you think?
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#62
Congestive Heart Failure can cause Apnea symptoms. In particular CHF can cause Periodic Breathing and Cheyne Stokes Respiration. (Reported as Clear Airway and Periodic Breathing by you in an earlier post.) Treating your CHF can greatly improve your night's sleep without the use of CPAP. Straight CPAP has little impact on Cheyne Stokes Respiration and Periodic Breathing. An ASV machine can make things worse especially if your ejection fraction is below 35%. You might want to use your machine as a diagnostic tool so that you can monitor your Periodic Breathing.

Rich
Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here:  http://www.apneaboard.com/wiki/index.php...SleepyHead

Download Sleepyhead
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Post from Imgur


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#63
If the 5-20 pressure in your profile is accurate, that could be a big part of the problem ... download Sleepyhead and we can see what's going on.
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#64
I don't know enough about CHF to offer useful advice, but I was very happy to see you are feeling better and getting out for a ride again! That brightened my day.
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#65
Really glad to see you feeling better, and getting active. I ride a Yamaha FJR so, I think you have found the best therapy.

With regard to sleep studies and CPAP we know from your previous experience, that it made you feel worse, and that the CPAP data confirmed you were actually doing worse with positive pressure than without it. Enjoy your life and family. The idea that CPAP could be beneficial has been tried and proven a failure. My question to the doctor is, "what do you think we did wrong, and how will it be different this time". It wasn't for lack of effort or compliance on your part. I would not consider another trial unless your doctor can answer that question.
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