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Too Late for CPAP?
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OldCoot Offline


Posts: 15
Joined: Jun 2016

Machine: ResMed AirSense 10 Autoset
Mask Type: Nasal pillows
Mask Make & Model: unsure
Humidifier: unsure
CPAP Pressure: 5-20
CPAP Software: Other Software

Other Comments:

Sex: Male
Location: SC USA

Post: #61
RE: Too Late for CPAP?
You guys are not going to believe this...

Since my last hospital stay in early July I've been doing much better. I have no idea why. Nothing's changed. Still on oxygen at night. My cardiologist added a low-dose of a steroid diuretic. But that's it. I'm sleeping through the night and have a fair amount of energy during the day.

My cardiologist offered to put me on in-home hospice care, but I elected not to do it. When my sons heard about it they asked what I'd like to do before "the end" and I told them I'd like to spend more time with the grand kids and ride a motorcycle again. They encouraged me to find a scooter, so I did. Here it is getting the oil changed in my son's garage...

[Image: MySonsQuickLube.jpg~original]

And after lunch with a good friend...

[Image: FirstRide_WithLarry02.jpg~original]

Here's my dilemma now... Back in May my internal medicine doc scheduled a sleep study for me in August (in addition to the one I did in-home in June). I finally did it, and yesterday I saw the sleep doctor. He wants me to go back on a CPAP machine.

I keep remembering the phrase, don't fix it if it ain't broke... What do you think?
09-02-2016 08:48 AM
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richb Online

Advisory Members

Posts: 592
Joined: Jun 2015

Machine: Resmed AirCurve 10 ASV
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: Built in
CPAP Pressure: Epap 6 Ipap 8 Auto ASV
CPAP Software: ResScan SleepyHead

Other Comments: Idiopathic Central Apnea

Sex: Male
Location: Vermont

Post: #62
RE: Too Late for CPAP?
Congestive Heart Failure can cause Apnea symptoms. In particular CHF can cause Periodic Breathing and Cheyne Stokes Respiration. (Reported as Clear Airway and Periodic Breathing by you in an earlier post.) Treating your CHF can greatly improve your night's sleep without the use of CPAP. Straight CPAP has little impact on Cheyne Stokes Respiration and Periodic Breathing. An ASV machine can make things worse especially if your ejection fraction is below 35%. You might want to use your machine as a diagnostic tool so that you can monitor your Periodic Breathing.


Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here:
(This post was last modified: 09-02-2016 09:26 AM by richb.)
09-02-2016 09:26 AM
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Maskup Sleepwell Offline

Preferred Members

Posts: 55
Joined: Aug 2016

Machine: Respironics Dreamstation Auto BiPAP
Mask Type: Full face mask
Mask Make & Model: Resmed AirFit F10 FFM
Humidifier: Dreamstation Heated Humidifier
CPAP Pressure: EP 16-20 IP 17.5-20 PS 1.5-4.0
CPAP Software: SleepyHead EncorePro

Other Comments: Untreated AHI 48.0 - Treated AHI 1.1 (30 day average)

Sex: Male
Location: Santa Clarita, California

Post: #63
RE: Too Late for CPAP?
If the 5-20 pressure in your profile is accurate, that could be a big part of the problem ... download Sleepyhead and we can see what's going on.
09-02-2016 12:02 PM
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chill Offline

Advisory Members

Posts: 953
Joined: Mar 2016

Machine: DreamStation X500
Mask Type: Full face mask
Mask Make & Model: I have a Walk-in Mask Closet (F&P Simplus most nights)
Humidifier: DreamStation
CPAP Pressure: 15
CPAP Software: SleepyHead

Other Comments: CPAP True Believer

Sex: Male
Location: Vancouver, Canada

Post: #64
RE: Too Late for CPAP?
I don't know enough about CHF to offer useful advice, but I was very happy to see you are feeling better and getting out for a ride again! That brightened my day.
09-02-2016 01:14 PM
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Sleeprider Offline
Wiki Editor
Advisory Members

Posts: 3,866
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #65
RE: Too Late for CPAP?
Really glad to see you feeling better, and getting active. I ride a Yamaha FJR so, I think you have found the best therapy.

With regard to sleep studies and CPAP we know from your previous experience, that it made you feel worse, and that the CPAP data confirmed you were actually doing worse with positive pressure than without it. Enjoy your life and family. The idea that CPAP could be beneficial has been tried and proven a failure. My question to the doctor is, "what do you think we did wrong, and how will it be different this time". It wasn't for lack of effort or compliance on your part. I would not consider another trial unless your doctor can answer that question.

Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
09-02-2016 09:21 PM
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