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Total Newbie - Help!!! Please...
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trish6hundred Offline

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Posts: 6,450
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #11
RE: Total Newbie - Help!!! Please...
Hi Josh,
WELCOME! to the forum.!
Much success to you as you start CPAP therapy.

trish6hundred
11-01-2015 08:42 PM
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cpetku Offline

Preferred Members

Posts: 31
Joined: Oct 2015

Machine: Resmed Airsense 10 Auto
Mask Type: Nasal pillows
Mask Make & Model: Mirage Swift™ II & Ruby Chin Strap
Humidifier: Airsense 10 with FlashPAP
CPAP Pressure: 8 - 14 cmH2O
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: USA - Michigan

Post: #12
RE: Total Newbie - Help!!! Please...
Hi Josh,

I did the self diagnosis as well but consulted with my PCP using overnight oximetery charts recorded with a contech CMS50IW. I bought a gently used Airsense 10 from Craigslist and new masks online (order mask and headgear separately to avoid prescriptions). I've been monitoring my progress for the past two weeks using the Sleepyhead software and my Oximetery readings. What I can tell you is my O2 Levels at night have stabilized with fewer drops. I used a small range 6-12) on the auto pap for a few nights to figure out what adjustments to make (8-14). I feel a little better (less dizziness/drowsiness in the day) and hope with time to feel a lot better. I do not think I could have made any progress with a non-data manual machine as there are just too many variables to consider. This includes understanding when the settings from the machine are actually causing issues (e.g., centrals) or when the machine is adjusted too low and the apneas continue to occur. If you choose to do this without a Dr. or a sleep study, it's really important to get a data capable auto machine. In my case the machine and masks(2) ran about $500.
11-01-2015 09:02 PM
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Josh Offline

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Posts: 24
Joined: Nov 2015

Machine: Respironics REMStar Auto A-Flex 551P
Mask Type: Nasal mask
Mask Make & Model: Respironics Easylife
Humidifier: built in
CPAP Pressure: Auto
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: Toronto, ON

Post: #13
RE: Total Newbie - Help!!! Please...
So... Would the Remstar Auto A-flex be a better solution?
11-01-2015 09:02 PM
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OpalRose Offline

Monitors

Posts: 3,181
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #14
RE: Total Newbie - Help!!! Please...
(11-01-2015 09:02 PM)Josh Wrote:  So... Would the Remstar Auto A-flex be a better solution?


Yes, 550 or 560 series.
Check Supplier #2, see suppliers list top of page. You may find a deal on new open box.

Also, depending on your budget, some of the other suppliers are offering deep discounts on the PR system one 560 series with AFLEX.

OpalRose
11-01-2015 09:07 PM
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kaiasgram Offline

Advisory Members

Posts: 242
Joined: Aug 2013

Machine: S9 VPAP Auto
Mask Type: Nasal pillows
Mask Make & Model: Aloha
Humidifier: H5i
CPAP Pressure: 8-10
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Northern California

Post: #15
RE: Total Newbie - Help!!! Please...
(11-01-2015 09:02 PM)Josh Wrote:  So... Would the Remstar Auto A-flex be a better solution?

Depends which Remstar model, there are several. The older Remstars would not be supported by the software most of us use. Model 550 or 560 would both work. Are you looking at a particular machine? Can you check on the model number?

EDIT: Opal Rose posted while I was typing. Smile
(This post was last modified: 11-01-2015 09:31 PM by kaiasgram.)
11-01-2015 09:11 PM
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Sleepster Offline
Wiki Editor
Moderators

Posts: 4,995
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #16
RE: Total Newbie - Help!!! Please...
I recommend one of the ResMed S9 or a Philips Respironics System One (PRS1) models. Both of these are now old in the sense that each of the two manufacturers has introduced an newer line. But make sure you get a fully data-capable machine.

Look here for some good information: http://www.apneaboard.com/wiki/index.php...ne_Choices

You should be able to find one on craigslist if you live close to a high-population area. You will have to keep checking and be ready to grab one when it becomes available. Like if you see an ad on a Friday make contact immediately and go get it on Saturday morning.

Since you have trouble exhaling against the pressure I recommend the ResMed S9 VPAP Auto or the PRS1 BiPAP Auto (Model 750P or 760P). You will be very lucky if you find one of those. Barring that get one that auto-adjusts. Barring that get a fully data-capable straight pressure CPAP machine.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
11-01-2015 09:34 PM
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Josh Offline

Preferred Members

Posts: 24
Joined: Nov 2015

Machine: Respironics REMStar Auto A-Flex 551P
Mask Type: Nasal mask
Mask Make & Model: Respironics Easylife
Humidifier: built in
CPAP Pressure: Auto
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: Toronto, ON

Post: #17
RE: Total Newbie - Help!!! Please...
Thank you Sleepster, I'll keep my eyes open. I was asking about the Remstar because there's one for sale fairly inexpensively (asking $200 CAD). I'll look for the other ones. In the meantime...
Night one with this machine, I set it at 6 as I found that even 8 was too high. I wore it for about half hour before I went to sleep to try to get used to it. I had difficulty falling asleep and found myself waking from the pressure in my ears. After about an hour I woke up and took it off as the ear pressure was too much. This morning I can still feel the discomfort in my ears.
Is this normal? I thought of maybe trying it on 4 tonight.

What I did find though is that even after I took the mask off, my airway seemed to be more open and clear for the rest of the night, that too has extended into the morning. Also... Normal?

Thanks again.
11-02-2015 07:23 AM
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vivaldi Offline

Members

Posts: 12
Joined: Sep 2015

Machine: Respironics Remstar Auto A-Flex
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift™ FX CPAP Mask Nasal Pillows
Humidifier: Add-on heated humidifier with a separate heated hose
CPAP Pressure: 6-15
CPAP Software: EncoreBasic

Other Comments: I alternate between a Sleepweaver cloth nasal mask and my Swift FX nasal pillows.

Sex: Male
Location: Wichita, KS

Post: #18
RE: Total Newbie - Help!!! Please...
I did similar to you. I knew I had OSA and didn't want to pay for a sleep study. I got an older used APAP that records data. Then I can see the pressures that the machine adjusts me to when automatically when I am asleep. I can also use my computer to fiddle with settings like min and max pressure and ramping up at beginning of sleep.

One thing I did was purchase a recording Bluetooth Oximeter that measures my O2 level at night. The think it was like $40 or less. I wasn't using my CPAP because I didn't like it, then I saw my oxygen was dropping to almost 60% fifty or a hundred times per night. Under 90 isn't good. Under 70 you risk organ failure. I got scared and made up my mind to find the right mask, machine, and settings to make it possible. Now I'm able to use mine every night and feel much better. Don't give up. Unfortunately without a sleep study or an APAP it will be difficult to know what settings to use on your machine and you may start adjusting it too often without really understanding if it's getting worse or better.

Good luck. Come back before you decide to give up!

--
Vivaldi
Cool
(This post was last modified: 11-02-2015 11:38 PM by vivaldi.)
11-02-2015 11:36 PM
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usertc Offline

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Posts: 32
Joined: Oct 2015

Machine: ResMed AirSense 10
Mask Type: Nasal mask
Mask Make & Model: F&P eson
Humidifier: integrated
CPAP Pressure: 4 to 14
CPAP Software: Not using software

Other Comments: AHI= 50 with asthma, GERD, and chronic migraines

Sex: Female
Location: California

Post: #19
RE: Total Newbie - Help!!! Please...
(11-01-2015 03:16 PM)Josh Wrote:  Also, as I'm playing with the machine trying to figure it out, I put it on set at 10, then 8. I find it difficult to exhale. I'm using the nose mask. Is this normal?
Thanks

I don't think severity predicts setting. I have severe apnea with 50 events/hour and my autopap says my pressure is 10.1
11-03-2015 02:28 AM
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Josh Offline

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Posts: 24
Joined: Nov 2015

Machine: Respironics REMStar Auto A-Flex 551P
Mask Type: Nasal mask
Mask Make & Model: Respironics Easylife
Humidifier: built in
CPAP Pressure: Auto
CPAP Software: Not using software

Other Comments:

Sex: Male
Location: Toronto, ON

Post: #20
RE: Total Newbie - Help!!! Please...
Thanks Vivaldi and usertc.
Right now I'm just trying to get used to it. I found the setting of 5 was popping my ears 2 nights ago and I took it off after an hour. I set it to 4 last night and took it off after about an hour and a half as I found I wasn't getting enough air.

Finding it very difficult to sleep with the mask on. I'll fiddle around some more and hopefully get more comfortable.

Could the Remstar auto be a 551P? Will that provide the auto setting and data capable?
Thanks
11-03-2015 07:49 AM
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