Because I am now in the Medicare system, we are starting the process in hopes to get me an ASV machine. Part of this process is a new titration study. From there, who knows what will be required next?
The primary reason is my need for both ongoing surgeries, and the fact that I am in and will be in Pain MGNT for some years to come.
My Pain Doc sees me every 28 days, and both/either the dosage and/or the med itself can change at any of these APPTs. Due to this last med change, my amount of centrals have risen quite a bit.
Some days only 3-5 centrals per hour, other days I;ve seen as high as 30 centrals per hour (with no changes to my dream machine or mask)
So we both feel it is prudent to get me on a machine with a backup breathing rate - the trick is how to do it without dragging my Pain MGNT Doc into this mess - the fear being simply being taken off the meds - which impact my daily quality of life rather greatly.
*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.
"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
Peter, I don't envy your situation. I understand your thoughts about not involving the pain doc in your CPAP decision, but perhaps he should know what's going on? I don't know how your system works but could he add weight to your argument for the ASV by certifying that you NEED the meds and they MAY cause dangerous sleep breathing problems.
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