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[Treatment] A New Sleep Study Wednesday night
#1
Because I am now in the Medicare system, we are starting the process in hopes to get me an ASV machine. Part of this process is a new titration study. From there, who knows what will be required next?

The primary reason is my need for both ongoing surgeries, and the fact that I am in and will be in Pain MGNT for some years to come.

My Pain Doc sees me every 28 days, and both/either the dosage and/or the med itself can change at any of these APPTs. Due to this last med change, my amount of centrals have risen quite a bit.

Some days only 3-5 centrals per hour, other days I;ve seen as high as 30 centrals per hour (with no changes to my dream machine or mask)

So we both feel it is prudent to get me on a machine with a backup breathing rate - the trick is how to do it without dragging my Pain MGNT Doc into this mess - the fear being simply being taken off the meds - which impact my daily quality of life rather greatly.
*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.

"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
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#2
Peter, I don't envy your situation. I understand your thoughts about not involving the pain doc in your CPAP decision, but perhaps he should know what's going on? I don't know how your system works but could he add weight to your argument for the ASV by certifying that you NEED the meds and they MAY cause dangerous sleep breathing problems.
DeepBreathing
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#3
Pete, I think DeepBreathing has given you all you need to hear to make your decision.
Sleep-well
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#4
Wishing you good luck, PC.
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#5
Good luck with the sleep test Peter...
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#6
Also passing along good luck wishes
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#7
Good thinking. But, early on in discussion with the pain Doc he stated that 'his' oversight looks for any reason to drop patients, so he politely suggested no contact with my sleep doc or it might be grounds for removal from his program. He forwards all of his notes both to my PCP and sleep Doc (labeled as second PCP) - it seems weird in Ohio - if the sleep doc make *any* noise about pain MGNT, I'll be out of it so quick, won't even have time to gracefully detox.

My sleep doc seems to both be aware and understand whats what, so the idea is to try to do what we can, without ruffling any feathers

Therein lies the rub. It would be quite easy if I got both docs on the same page saying this is needed due to the possible risk - but it *seems* that "possible risk" means STOP!!!! in this state.

I would hate to have to choose between the two. I can't even bear thinking about it.
*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.

"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
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#8
My other choice, is to stop here, be happy with my S9, and start wearing my Oximeter nightly with the low O2 alarm set. That is my planned fall-back position.
*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.

"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
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#9
Thank you for all the "good luck" wishes - am not sure exactly what to wish for tonight? Lots of CAs I guess??
*I* am not a DOCTOR or any type of Health Care Professional. My thoughts/suggestions/ideas are strictly only my opinions.

"Only two defining forces have ever offered to die for you. Jesus Christ and the American Soldier. One died for your Soul, the other for your Freedom."
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#10
Yep, It's sad when pain management gets trumped by the doctors personal risk management.

Best of luck on the test. I hope you studied up...Smile
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