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[Treatment] Any Advice
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Jaylea Offline

Members

Posts: 4
Joined: Jun 2015

Machine: Respironics BiPaP Auto
Mask Type: Nasal mask
Mask Make & Model: Mirage Quattro
Humidifier: Unsure
CPAP Pressure: 11.8 / 9.0
CPAP Software: Other Software

Other Comments:

Sex: Male
Location: Ontario, Canada

Post: #1
Any Advice
I am a 42 year old male with severe sleep apnea (82 episodes an hour), and I have been on a BiPaP machine for a year now. I am only able to wear the mask for about an hour or so a night, I wish it could be longer but I can't seem to do it. There are a number of issues that are affecting my usage of the mask.
First issue, I am a mouth breather and don't use my nose at all, my wife says it's a decoration. So I am forced to use a full face mask...which leads to my second issue, I am chlosterphobic and I find myself ripping off my mask in the night. I don't know that I am doing this as I am also a sleepwalker and sleeptalker. We have even gone to duct tapping the mask to my face so that I wake myself up when I rip it off. I wake up in the morning with the mask off and a ball of tape beside it.
The sleep doctor I see is at a lose as to what to do, I am scheduled for another sleep test but in the meantime it's a circus when I sleep.
Just curious if their is anyone out there that has heard of of done anything like this and could offer some suggestions.

Thank you in advance.[/font]
(This post was last modified: 06-30-2015 07:02 PM by Jaylea.)
06-30-2015 07:00 PM
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OpalRose Offline

Monitors

Posts: 3,181
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #2
RE: Any Advice
You say you've been on BIPAP for a year, and having all these issues with your mask???
Why not try a different mask? If you are only using your machine for an hour each night, then it can't possibly be doing you much good.

Time to get serious.
Try a nasal pillow mask. You can learn to breath through your nose., unless there is a medical reason that prevents that. You could try a chin strap to help hold your mouth shut.

OpalRose
(This post was last modified: 06-30-2015 07:18 PM by OpalRose.)
06-30-2015 07:16 PM
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trish6hundred Offline

Advisory Members

Posts: 6,449
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #3
RE: Any Advice
Hi Jaylea,
WELCOME! to the forum.!
There are many masks out there, so don't be shy about asking to try different ones. Sometimes, it takes quite a few of them 'till you find what works for you.
Hang in there for more answers to your questions and much success to you as you continue your CPAP therapy and good luck finding a mask that is just right for you.

trish6hundred
06-30-2015 07:59 PM
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MobileBasset Offline

Advisory Members

Posts: 198
Joined: May 2015

Machine: ResMed AIRCURVE 10 V Auto
Mask Type: Nasal mask
Mask Make & Model: Fisher Paykel Zest
Humidifier: Integrated
CPAP Pressure: 10 (minE 6,maxI 12, PS 3)
CPAP Software: ResScan SleepyHead Other Software

Other Comments:

Sex: Female
Location: Florida

Post: #4
RE: Any Advice
You have a complex set of issues to address and you say you have been working this for a year and your sleep doctor has no solutions. I would consider a different doctor. Why are you scheduled for another sleep test? You haven't mentioned any confusion about your original report. All the problems you mentioned are compliance related. You need a doctor or support team who will help you work through the adjustment. Do whatever it takes to overcome the claustrophobia so you can begin to use the information and adjustments your BiPAP machine provides. An effective XPAP is a beautiful thing!

if you can't decide then you don't have enough data.
06-30-2015 08:01 PM
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Daisylouu Offline

Preferred Members

Posts: 69
Joined: Jun 2015

Machine: Philips Respironics Rem star Auto
Mask Type: Hybrid
Mask Make & Model: Mirage Liberty
Humidifier: unsure
CPAP Pressure: 8-16
CPAP Software: Other Software

Other Comments:

Sex: Female
Location:

Post: #5
RE: Any Advice
I use the Mirage Liberty and love it. Covers just your mouth (I'm a mouth breather too) and then little nose pillows that shoot up your nostrils. Think it might work for you too. I'm new to all of this so I'm no expert, but This was the only one that worked. Took me 3 nights until I could sleep straight through. Check it out

(06-30-2015 07:00 PM)Jaylea Wrote:  I am a 42 year old male with severe sleep apnea (82 episodes an hour), and I have been on a BiPaP machine for a year now. I am only able to wear the mask for about an hour or so a night, I wish it could be longer but I can't seem to do it. There are a number of issues that are affecting my usage of the mask.
First issue, I am a mouth breather and don't use my nose at all, my wife says it's a decoration. So I am forced to use a full face mask...which leads to my second issue, I am chlosterphobic and I find myself ripping off my mask in the night. I don't know that I am doing this as I am also a sleepwalker and sleeptalker. We have even gone to duct tapping the mask to my face so that I wake myself up when I rip it off. I wake up in the morning with the mask off and a ball of tape beside it.
The sleep doctor I see is at a lose as to what to do, I am scheduled for another sleep test but in the meantime it's a circus when I sleep.
Just curious if their is anyone out there that has heard of of done anything like this and could offer some suggestions.

Thank you in advance.[/font]
06-30-2015 08:03 PM
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Jaylea Offline

Members

Posts: 4
Joined: Jun 2015

Machine: Respironics BiPaP Auto
Mask Type: Nasal mask
Mask Make & Model: Mirage Quattro
Humidifier: Unsure
CPAP Pressure: 11.8 / 9.0
CPAP Software: Other Software

Other Comments:

Sex: Male
Location: Ontario, Canada

Post: #6
RE: Any Advice
(06-30-2015 07:16 PM)OpalRose Wrote:  You say you've been on BIPAP for a year, and having all these issues with your mask???
Why not try a different mask? If you are only using your machine for an hour each night, then it can't possibly be doing you much good.

Time to get serious.
Try a nasal pillow mask. You can learn to breath through your nose., unless there is a medical reason that prevents that. You could try a chin strap to help hold your mouth shut.

I have tried a number of masks, the ones that you use strictly in your nose make me feel as if I am suffocating. I have been on a wait list for an Ear Nose and Throat specialist for a number of months now, I have finally got an appointment at the end of September. Hopefully that will shed some light on not being able to use my nose (which I never had a problem with until using the machine).
07-02-2015 09:59 AM
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Jaylea Offline

Members

Posts: 4
Joined: Jun 2015

Machine: Respironics BiPaP Auto
Mask Type: Nasal mask
Mask Make & Model: Mirage Quattro
Humidifier: Unsure
CPAP Pressure: 11.8 / 9.0
CPAP Software: Other Software

Other Comments:

Sex: Male
Location: Ontario, Canada

Post: #7
RE: Any Advice
(06-30-2015 08:01 PM)MobileBasset Wrote:  You have a complex set of issues to address and you say you have been working this for a year and your sleep doctor has no solutions. I would consider a different doctor. Why are you scheduled for another sleep test? You haven't mentioned any confusion about your original report. All the problems you mentioned are compliance related. You need a doctor or support team who will help you work through the adjustment. Do whatever it takes to overcome the claustrophobia so you can begin to use the information and adjustments your BiPAP machine provides. An effective XPAP is a beautiful thing!

Thank you for the advise. I am working with a different supplier/ support team that deals with strange cases such as mine, they have told me that they have never had anyone with as many issues as I have while using the machine. The doctor wants to do another sleep test in the hopes that I will do what I describe while at home, it seems every time I do the sleep test though I sleep and wear the mask as I should. Looking forward to using the machine the way that it should be used.
07-02-2015 10:06 AM
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justMongo Offline

Monitors

Posts: 3,853
Joined: Sep 2013

Machine: ResMed VPAP Auto (S9)
Mask Type: Full face mask
Mask Make & Model: ResMed Mirage Quattro
Humidifier: ResMed H5i
CPAP Pressure: 18 IPAPmax - 11 EPAPmin, PS=5
CPAP Software: Other Software

Other Comments: μολὼν λαβέ

Sex: Male
Location: Калифорния

Post: #8
RE: Any Advice
If you are taping that full face mask on, be certain to not tape over the vent holes or over the vent port for the anti-asphyxia valve.
Really, the tape is not a a good idea.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
07-02-2015 11:17 AM
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quiescence at last Offline

Advisory Members

Posts: 753
Joined: Nov 2014

Machine: REMstar System One with Autoflex
Mask Type: Full face mask
Mask Make & Model: Quattro AirFit F10
Humidifier: yes typical setting = 4
CPAP Pressure: 5-13 Autotritrating CPAP
CPAP Software: SleepyHead EncoreBasic

Other Comments: CMS-50F Plus oximeter /w SPO2 Assistant software. Avowed mouth-breather switching to nose-breathing

Sex: Male
Location: US

Post: #9
RE: Any Advice
you mean I am not supposed to tape over all those little vent holes in the front surface of my mask? That's where all the air is leaking out of.

jk, guys. I know not to do that.

QAL

Dedicated to QALity sleep.
You'll note I am listed as an Advisory Member. I am honored to be listed as such. See the fine print - Advisory Members as a group provide advice and suggestions to Apnea Board administrators and staff concerning Apnea Board operation and administrative policies. Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
07-02-2015 07:53 PM
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Jaylea Offline

Members

Posts: 4
Joined: Jun 2015

Machine: Respironics BiPaP Auto
Mask Type: Nasal mask
Mask Make & Model: Mirage Quattro
Humidifier: Unsure
CPAP Pressure: 11.8 / 9.0
CPAP Software: Other Software

Other Comments:

Sex: Male
Location: Ontario, Canada

Post: #10
RE: Any Advice
(07-02-2015 11:17 AM)justMongo Wrote:  If you are taping that full face mask on, be certain to not tape over the vent holes or over the vent port for the anti-asphyxia valve.
Really, the tape is not a a good idea.

Sorry, I should have clarified better, I am using tape from ear to ear under my chin. Thinking that I should feel it as I rip it off, I don't.
07-03-2015 06:40 AM
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