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08-05-2019, 05:47 AM (This post was last modified: 08-05-2019, 05:49 AM by Noripterus.
Edit Reason: word
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RE: Can cpap help me?
Dormeo, I am sorry, I should have expressed myself more clearly: My SVT episodes aren't triggered during a workout, but in the following night. Over the last 12 years it has just gotten worse, no matter what I tried. Last summer even brisk walking started to give me episodes. One cardiologist prescribed betablockers, which didn't help at all. There are other treatment options (ablation and other medication), but I think (hope?) that my poor sleep is majorly contributing to the arrhythmias, so I want to fix that first.
Bonjour, thank you! That makes me much more comfortable going forward with the therapy.
So my goal now is wearing the mask+collar for the whole night. Will need to make a few adjustments to feel more comfortable.
I really appreciate all of your answers. You guys are so supportive. I'm glad I made this thread. Thank you.
(08-03-2019, 07:25 AM)Noripterus Wrote: So after finding this forum I decided to self-treat. I bought a Resmed AirCurve 10 VAuto per Barry Krakows recommendation a few weeks ago.
Just out of curiosity, how did you purchase a machine? I thought you needed a prescription?
Machine: Needing iVAPS but QUACKS refusing to help but they love testing Mask Type: Not using mask Mask Make & Model: F&P Vitera on shelf Humidifier: None/nada CPAP Pressure: 0-0 pressure set CPAP Software: Not using software
Other Comments: SCS PVC K9D** Untreated CA Asthma Dr. Donothings
Likely different areas of the world have different medical device purchase requirements. Just a guess.
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
(08-05-2019, 05:47 AM)Noripterus Wrote: Dormeo, I am sorry, I should have expressed myself more clearly: My SVT episodes aren't triggered during a workout, but in the following night. Over the last 12 years it has just gotten worse, no matter what I tried. Last summer even brisk walking started to give me episodes. One cardiologist prescribed betablockers, which didn't help at all. There are other treatment options (ablation and other medication), but I think (hope?) that my poor sleep is majorly contributing to the arrhythmias, so I want to fix that first.
That sounds exactly like ME/CFS, the bolded part is a variance of a symptom called post exertional malaise.
Bad news, no diagnostic tools yet. Good news it is not psychosomatic. Unfortunately you will have very little luck getting a diagnosis, and if you do get one miraculously, there is no treatment, only management.
Just to give a short update: I’m still increasing pressure bit by bit (15-17 right now). No real difference in sleep quality yet. I will continue maybe up to 17-20; if I don’t see any benefits I will try to find a lab with PES testing.
Machine: Needing iVAPS but QUACKS refusing to help but they love testing Mask Type: Not using mask Mask Make & Model: F&P Vitera on shelf Humidifier: None/nada CPAP Pressure: 0-0 pressure set CPAP Software: Not using software
Other Comments: SCS PVC K9D** Untreated CA Asthma Dr. Donothings
Under AHI of 5 is medically treated, under 1.0 is excellent. Now it's a matter of "how do you feel?". Great numbers lose their greatness if you're still not feeling well. I do know the negative effects of prior untreated apnea will take to be felt.
To your success.
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
08-27-2019, 05:53 AM (This post was last modified: 08-27-2019, 05:55 AM by Noripterus.
Edit Reason: word
)
RE: Can cpap help me?
Dave, thank you. As you say, numbers don't really matter for me anymore.
As far as I know there are at least two point of views regarding the use of CPAP for treatment of UARS. The first one is to titrate until there are no more respiratory related arousals (measured per EEG) (that's what Stanford seems to be doing) and the other one, Krakow's view is to aggressively round out inspiratory airflow cruves.
But besides theory, there are a few people on the internet who have seen success by increasing their pressure way above the one that was needed to treat their apneas.
I have have frequent arousals. At least that's what my recordings look like. My flow curves are not fully rounded.
I am surely grasping at straws here and welcome any input.