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[Treatment] I feel horrible
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storywizard Offline

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Machine: ResMed VPAP Adapt S9
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Sex: Male
Location: Vancouver, BC, Canada

Post: #1
I feel horrible
In April I went back on CPAP, this was the result...

[img][Image: e5HOOPXl.jpg][/img]

Some folks suggested I try an ASV....it was wonderful.
My respirologist suggested I stay on it even though no doctor has prescribed it for me...

I have been on an ASV machine 3 months, felt OK...still not sleeping deeply but having some good days..
Thought I should heed some folks advice and go back on at least a Bi level machine, and so I am on a months trial on an Auto BiPAP...

I will let the pictures tell the story: The ASV....

[img][Image: Hnl7k8al.jpg][/img]

Then a few nights on the BiPAP:

[Image: gnT3Ylhl.jpg]

I am in a bad state, just managing to function, but this is not good...not sure what to do..

Storywizard
(This post was last modified: 08-08-2015 02:57 PM by storywizard.)
08-08-2015 02:10 PM
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kaiasgram Offline

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Machine: S9 VPAP Auto
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CPAP Software: SleepyHead

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Sex: Female
Location: Northern California

Post: #2
RE: I feel horrible
Hi storywizard, those pictures certainly do tell the story. I don't know the history behind the decision to switch to auto bilevel and you may not feel up to explaining -- I can probably find it by going back through older threads.

I'm really sorry about how you feel.
(This post was last modified: 08-08-2015 03:11 PM by kaiasgram.)
08-08-2015 02:45 PM
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DariaVader Offline
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Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
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CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #3
RE: I feel horrible
can you get the ASV back?

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
08-08-2015 03:50 PM
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storywizard Offline

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Posts: 350
Joined: Jul 2014

Machine: ResMed VPAP Adapt S9
Mask Type: Nasal pillows
Mask Make & Model: P10 taped to face
Humidifier: included with machine
CPAP Pressure: CPAP 11cm
CPAP Software: SleepyHead

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Sex: Male
Location: Vancouver, BC, Canada

Post: #4
RE: I feel horrible
(08-08-2015 03:50 PM)DariaVader Wrote:  can you get the ASV back?

Oh yes, its mine I got it from Supplier #2...great machine...

I only am trying the BiPAP because some more experienced
folks thought I should not be on ASV, as no doctor had prescibed it, but clearly I have issues that BiPAP cannot deal with...ya think! lol

I am not sure what to trust, the machine data, or the data from titration which showed few CA's...or how I feel...

Storywizard
(This post was last modified: 08-08-2015 03:57 PM by storywizard.)
08-08-2015 03:53 PM
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AlanE Offline

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Machine: ResMed AirSense 10 Autoset
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Other Comments: ʕ•ᴥ•ʔ So Long, and Thanks for All the Fish

Sex: Male
Location: Southwest Florida

Post: #5
RE: I feel horrible
I'd go with how you feel. That BiPAP looks like a hot mess.



Using FlashAir W-03 SD card in machine. Access through wifi with FlashPAP or Sleep Master utilities.

I wanted to learn Binary so I enrolled in Binary 101. I seemed to have missed the first four courses. Big Grinnie
08-08-2015 07:52 PM
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kaiasgram Offline

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Posts: 241
Joined: Aug 2013

Machine: S9 VPAP Auto
Mask Type: Nasal pillows
Mask Make & Model: Aloha
Humidifier: H5i
CPAP Pressure: 8-10
CPAP Software: SleepyHead

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Sex: Female
Location: Northern California

Post: #6
RE: I feel horrible
(08-08-2015 03:53 PM)storywizard Wrote:  I only am trying the BiPAP because some more experienced
folks thought I should not be on ASV, as no doctor had prescibed it, but clearly I have issues that BiPAP cannot deal with...ya think! lol

I am not sure what to trust, the machine data, or the data from titration which showed few CA's...or how I feel...

storywizard, did the folks who thought you should not be on ASV have a basis (like data or your health history) for thinking that, or was it only the fact that a doctor hadn't prescribed it?
(This post was last modified: 08-08-2015 08:11 PM by kaiasgram.)
08-08-2015 08:02 PM
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storywizard Offline

Advisory Members

Posts: 350
Joined: Jul 2014

Machine: ResMed VPAP Adapt S9
Mask Type: Nasal pillows
Mask Make & Model: P10 taped to face
Humidifier: included with machine
CPAP Pressure: CPAP 11cm
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Vancouver, BC, Canada

Post: #7
RE: I feel horrible
(08-08-2015 07:52 PM)AlanE Wrote:  I'd go with how you feel. That BiPAP looks like a hot mess.

lol, and feels like a hot mess too..

Thanks Alan...

Storywizard
08-08-2015 08:51 PM
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storywizard Offline

Advisory Members

Posts: 350
Joined: Jul 2014

Machine: ResMed VPAP Adapt S9
Mask Type: Nasal pillows
Mask Make & Model: P10 taped to face
Humidifier: included with machine
CPAP Pressure: CPAP 11cm
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Vancouver, BC, Canada

Post: #8
RE: I feel horrible
(08-08-2015 08:02 PM)kaiasgram Wrote:  
(08-08-2015 03:53 PM)storywizard Wrote:  I only am trying the BiPAP because some more experienced
folks thought I should not be on ASV, as no doctor had prescibed it, but clearly I have issues that BiPAP cannot deal with...ya think! lol

I am not sure what to trust, the machine data, or the data from titration which showed few CA's...or how I feel...

storywizard, did the folks who thought you should not be on ASV have a basis (like data or your health history) for thinking that, or was it only the fact that a doctor hadn't prescribed it?

It was because I had not had a prescription from a doctor...my sleep doctors don't know what to do with me...
The respirologist was very supportive of my ASV use, when I told her how much better it made me feel...so I am thinking I will follow her guidance...see if she will write a prescription. My GP will too, They are both on my side, which the sleep docs are not...they totally deny I am having any issues other than OSA...

Storywizard
08-08-2015 08:55 PM
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kaiasgram Offline

Advisory Members

Posts: 241
Joined: Aug 2013

Machine: S9 VPAP Auto
Mask Type: Nasal pillows
Mask Make & Model: Aloha
Humidifier: H5i
CPAP Pressure: 8-10
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Northern California

Post: #9
RE: I feel horrible
I'm glad you have a couple of providers you can rely on to listen and support you. Counts for so much.

And don't forget to trust yourself -- you were on the right path with the ASV.Smile
08-08-2015 09:05 PM
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trish6hundred Offline

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Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
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CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #10
RE: I feel horrible
Hi storywizard,
I'm sorry you are having such a rough time of it.
It's great to hear that you have at least 2 doctors on your side..
If you felt better on the ASV machine, use it and get a prescription for it. I know you're on a trial right now though, but you might tell the doctor who has got you on this trial, just how badly you feel.
Good luck to you storywizard, hang in there for more suggestions.

trish6hundred
08-08-2015 09:05 PM
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