Post Reply 
[Treatment] Is it possible to handle this without a local supplier/respiratory therapist?
Author Message
Lani Offline

New Members

Posts: 1
Joined: Dec 2015

Machine: ResMed AirSense10
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: none
CPAP Pressure: 11-15
CPAP Software: Not using software

Other Comments:

Sex: Female
Location: Coos Bay, OR

Post: #1
Is it possible to handle this without a local supplier/respiratory therapist?
Hi...I was diagnosed with severe sleep apnea and have been using my CPAP machine for about six weeks. I am currently using nasal pillows and it is really hard to to breathe. I have tried a face mask (did not fit) and a nasal mask (I could not unhook it, resulting in a major panic attack). I asked the respiratory therapists / suppliers for an x-small pillow, but they tell me that the fit is fine, there are no leaks and this is normal. In fact, they contacted my doctor and told him that I felt I needed more air pressure (I didn't ask for this) and now it is even more difficult to exhale and my chest hurts just like after an asthma attack.

I am beginning to realize that it is not just the mask that is problematic. The last phone call was today and I was told that I would have to pay for the mask myself as my insurance will not pay for another mask. That was the high point of the conversation. When I began to question the fact that they would disassemble the package and sell the headgear and pillows separately, artificially raising the price, I was told that he told himself before calling me, that he would not let me upset him, but I was trying to do just that and I must speak to the manager from now on.

I have checked into moving to another supplier, but have found out that because there is a contract in place, I would have to turn in my machine and the new supplier would have to take a loss, which they are not too eager to do. I am feeling rather stuck between the proverbial rock and hard place, as there is 11 months left on the contract for the machine. At this point, I don't want is to deal with these people again and I would like to take control over my own treatment. I would really appreciate any wisdom, insight and encouragement. Thanks!
12-10-2015 01:43 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #2
RE: Is it possible to handle this without a local supplier/respiratory therapist?
Yes. Of course you can handle it yourself.

First step. If you do not have it already, get a copy of your prescription. Call the doctor's office and tell them you want a copy for your own records. Make sure the prescription mentions machine and mask and supplies. It does not have to list a specific item.

Second step. If you have not done so already, download a copy of the clinician manual for your machine. Read the manual. Figure out how it all works. My bet is the exhale relief is set too low for you which makes the exhale difficult.

What does the contract mean? Who is involved in this contract? I would assume the insurance company? So that means the insurance company will only pay for machine supplies from this supplier and no one else? Mask supplies too?

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-10-2015 05:37 AM
Find all posts by this user Post Reply Quote this message in a reply
DeepBreathing Offline
Wiki Editor
Moderators

Posts: 2,296
Joined: Sep 2013

Machine: Resmed S9 VPAP Adapt
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: Resmed H5i
CPAP Pressure: EPAP: 9 - 15 PS: 3 - 10
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Perth, Western Australia

Post: #3
RE: Is it possible to handle this without a local supplier/respiratory therapist?
Welcome to Apnea Board, Lani. If you haven't done so I suggest you talk directly to the insurance company and don't rely on what the DME tells you. They don't have a stellar reputation for looking after their client's interests.

DeepBreathing
Apnea Board Moderator
www.ApneaBoard.com


Bed

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-10-2015 07:18 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
cate1898 Offline

Advisory Members

Posts: 784
Joined: Aug 2015

Machine: PR System One 560BT Auto
Mask Type: Nasal pillows
Mask Make & Model: P10's/backup-DreamWear
Humidifier: PR attached
CPAP Pressure: 8.5 - 13. A-Flex 3
CPAP Software: SleepyHead

Other Comments: Began CPAP Therapy Sept. 11, 2015. Hx Hypertension, Post Graves Disease, chronic migraines.

Sex: Female
Location: Southern Ontario//SW Florida

Post: #4
RE: Is it possible to handle this without a local supplier/respiratory therapist?
Welcome to the forum Lani! Good luck getting everything sorted out!

APNEABOARD - A great place to be if you're a hosehead!! Rolleyes

-------------------------------------------------------------------------------------------------
EVERY ACCOMPLISHMENT BEGINS WITH THE DECISION TO TRY!
12-10-2015 08:20 AM
Find all posts by this user Post Reply Quote this message in a reply
Mark Douglas Offline

Advisory Members

Posts: 513
Joined: Apr 2015

Machine: Sys 1 (60) RemStar BiPAP Auto with Bi-Flex 760P Auto Bi-Level (Variabl
Mask Type: Nasal mask
Mask Make & Model: PR Wisp
Humidifier: PR Sys One heated
CPAP Pressure: RiseTime 3 Fxd E-9.0 / I-11.5
CPAP Software: SleepyHead EncoreBasic

Other Comments: Hashimoto's thyroiditis.

Sex: Male
Location: SW Ohio

Post: #5
RE: Is it possible to handle this without a local supplier/respiratory therapist?
(12-10-2015 07:18 AM)DeepBreathing Wrote:  Welcome to Apnea Board, Lani. If you haven't done so I suggest you talk directly to the insurance company and don't rely on what the DME tells you. They don't have a stellar reputation for looking after their client's interests.

What I diplomatic phrase! Thanks for the morning smile I needed it Smile

I use my PAP machine nightly and I feel great!
Updated: Philips Respironics System One (60 Series)
RemStar BiPAP Auto with Bi-FlexModel 760P -
Rise Time x3 Fixed Bi-Level EPAP 9.0 IPAP 11.5 (cmH2O)
12-10-2015 09:16 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Mark Douglas Offline

Advisory Members

Posts: 513
Joined: Apr 2015

Machine: Sys 1 (60) RemStar BiPAP Auto with Bi-Flex 760P Auto Bi-Level (Variabl
Mask Type: Nasal mask
Mask Make & Model: PR Wisp
Humidifier: PR Sys One heated
CPAP Pressure: RiseTime 3 Fxd E-9.0 / I-11.5
CPAP Software: SleepyHead EncoreBasic

Other Comments: Hashimoto's thyroiditis.

Sex: Male
Location: SW Ohio

Post: #6
RE: Is it possible to handle this without a local supplier/respiratory therapist?
Welcome Lani..
You are between the proverbial rock and hard place.
Because of your SA you are fatigued and not at your best to argue with people who don't want you to bother them. BTDT. Add in that the sleep industry as a whole sees you as a cash cow and not a human patient. Many have stated including myself have stated they get better sleep care from their family doc. May I suggest you just start reading here and see if you don't see a lot of people with the same issues. This will give you hope and you are not alone.
The next thing to do is find out if your machine is data capable with SleepyHead. archangel has a post where he tells you what machine are and are not.

I use my PAP machine nightly and I feel great!
Updated: Philips Respironics System One (60 Series)
RemStar BiPAP Auto with Bi-FlexModel 760P -
Rise Time x3 Fixed Bi-Level EPAP 9.0 IPAP 11.5 (cmH2O)
12-10-2015 09:29 AM
Find all posts by this user Post Reply Quote this message in a reply
Ghost1958 Offline

Advisory Members

Posts: 957
Joined: Aug 2014

Machine: PRS1 Series Sixty Auto Aflex
Mask Type: Nasal mask
Mask Make & Model: F&P Eson
Humidifier: PRS1 with Heated Hose
CPAP Pressure: 10.5 min 16 max
CPAP Software: SleepyHead EncoreBasic

Other Comments: Moderate to Severe SA Obstructive. Rapid O2 desat off the machine.

Sex: Male
Location: KY

Post: #7
RE: Is it possible to handle this without a local supplier/respiratory therapist?
Yes you can buy masks online, use software to titrate yourself, and just let your insurance pay for the machine you have.
Easiest way is to just use your GP or nurse prac to write any scripts you need.
You can set your own pressures also.
Insurance only cares about compliance.

Im on medicare and i have not seen the sleep doc since my initial diagnosis.
Set my own pressures since sleep lb was wrong and have my GP handle any scripts for masks, etc that I need.
DME just files the scripts and stsyd out of my way.
12-10-2015 01:44 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
robertbuckley Offline

Preferred Members

Posts: 99
Joined: Mar 2013

Machine: Resprionics BiPAP Auto SV Advanced
Mask Type: Full face mask
Mask Make & Model: ResMed AirFit F-10 Full Face
Humidifier: Resprionics System One
CPAP Pressure: EEP 15; PS 4 - 10
CPAP Software: SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: New York, NY

Post: #8
RE: Is it possible to handle this without a local supplier/respiratory therapist?
I think you should be able to purchase just the x-small pillows for about $20 from most of the suppliers online and they would work with the rest of the assembly. Give one of them a call to make sure that they will work with what you have. That way you can resolve the size issue yourself at minimal cost.
12-10-2015 02:02 PM
Find all posts by this user Post Reply Quote this message in a reply
trish6hundred Offline

Advisory Members

Posts: 6,449
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #9
RE: Is it possible to handle this without a local supplier/respiratory therapist?
Hi Lani,
WELCOME to the forum.!
Much success to you with your CPAP therapy and good luck to you with finding a supplier that will work with you.

trish6hundred
12-10-2015 02:55 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Sleepster Offline
Wiki Editor
Moderators

Posts: 4,995
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #10
RE: Is it possible to handle this without a local supplier/respiratory therapist?
(12-10-2015 01:43 AM)Lani Wrote:  I have checked into moving to another supplier, but have found out that because there is a contract in place, I would have to turn in my machine and the new supplier would have to take a loss, which they are not too eager to do.

That doesn't sound right to me. Who told you this? Call your insurance company and tell them you're getting masks that have been opened by the supplier and have had parts removed. Call other suppliers and tell them what's going on. Find another machine on craigslist and return the one you have. You'll want a back up machine, anyway.

As for the raising of the pressure to overcome the suffocation feeling, I'm not a big believer in that strategy. The pressure is already higher than what you'd have if you removed the mask! It's an airflow issue, not a pressure issue, and it's caused by the unfamiliarity of wearing a mask. Acclimate by wearing the mask when you're awake and relaxing.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
12-10-2015 04:09 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  A Question on Respiratory Rate rich2905 17 951 09-23-2016 11:09 PM
Last Post: rich2905
  Question on masks that will handle higher pressures like 27 nanook683 13 912 09-21-2016 07:14 AM
Last Post: nanook683
  Changing Medicare Supplier when Moving jrh0 4 351 09-03-2016 01:53 AM
Last Post: srlevine1
  CPAP Buy out from equipment supplier help khafer 11 557 09-03-2016 01:38 AM
Last Post: srlevine1
  Hassels over getting a new DME supplier GrammaBear 5 358 08-26-2016 05:39 PM
Last Post: GrammaBear
  Supplier requires new prescription to test my machine?? Rgbeard75 7 873 07-17-2016 10:46 PM
Last Post: Mosquitobait
  [CPAP] Local Provider vs. Online CPAP BigDaddySnooze 15 931 07-10-2016 05:06 AM
Last Post: kwhenrykerr

Forum Jump:

Who's Online (Complete List)