Hi...I was diagnosed with severe sleep apnea and have been using my CPAP machine for about six weeks. I am currently using nasal pillows and it is really hard to to breathe. I have tried a face mask (did not fit) and a nasal mask (I could not unhook it, resulting in a major panic attack). I asked the respiratory therapists / suppliers for an x-small pillow, but they tell me that the fit is fine, there are no leaks and this is normal. In fact, they contacted my doctor and told him that I felt I needed more air pressure (I didn't ask for this) and now it is even more difficult to exhale and my chest hurts just like after an asthma attack.
I am beginning to realize that it is not just the mask that is problematic. The last phone call was today and I was told that I would have to pay for the mask myself as my insurance will not pay for another mask. That was the high point of the conversation. When I began to question the fact that they would disassemble the package and sell the headgear and pillows separately, artificially raising the price, I was told that he told himself before calling me, that he would not let me upset him, but I was trying to do just that and I must speak to the manager from now on.
I have checked into moving to another supplier, but have found out that because there is a contract in place, I would have to turn in my machine and the new supplier would have to take a loss, which they are not too eager to do. I am feeling rather stuck between the proverbial rock and hard place, as there is 11 months left on the contract for the machine. At this point, I don't want is to deal with these people again and I would like to take control over my own treatment. I would really appreciate any wisdom, insight and encouragement. Thanks!
Welcome to Apnea Board, Lani. If you haven't done so I suggest you talk directly to the insurance company and don't rely on what the DME tells you. They don't have a stellar reputation for looking after their client's interests.
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