(10-05-2013 02:11 PM)me50 Wrote:
(10-05-2013 11:51 AM)cured Wrote: In early 2013 I began suffering with what was essentially walking pneumonia. Had been previously diagnosed with moderate OSA a few years before but told them i was not interested in the mask. By the time pneumonia resolved, i was falling asleep at work and while driving on interstate on way home. Had home sleep test at my wife and dr. buddy's insistence. Averaged over 75 apnea/hr. Took a while to get fitted for machine and mask because i didn't wan to and i was not about to be prescribed an inferior machine type from a sleep doc i never saw (courtesy of home sleep test).
Began cpap at end of may. Daytime sleepiness gone. No trouble driving. Had to modify settings considerable to even be able to put the BLANK thing on. I hated it from the first day until the last on 9/26.
Turned to this forum for a cure because i knew it would only be months before i could not keep promise to wife about using the evil device. Only found stuff about you'll get used to it and there is no cure.
Well, for those of you like me, there may be. I just had the TORS sleep apnea surgery on 9/27. Wife is amazed. No snoring, no gasping, no choking. They took out pallet, tonsils, other stuff, and the base of the tongue. I would not wish this pain on my worst enemy. Been a week and it's the first the pain meds have made any progress at all against the unremitting agony of trying to swallow with organs that were cut open. Have not eaten in a week.
But, they say 2 more weeks of recovery and i'm done. No machine, no pain.
you have to be like me. The doc told my wife i was a perfect match forn the anatomy they are looking to succeed against. to that end there was a physical exam, an MRI, and a sleep endoscopy where they put the camera in your nose and watch the throat collapse.
so, if i knew the pain that i would have to undergo, i would hold off. But i didn't, so .. Please pray that i mend quickly. If you hate cpap as much as i were you feel like you're drowning, never felt like you had a good night's sleep, just that you could work without falling asleep, check it out for yourself and see if you're a good candidate. Guys, you need a good, compassionate, caring wife. Ladies, only try this with a caring sister.
We'll see final results in 3 months. i have to go back for a sleep test at the hospital. But for now i think for others, it would be best to see if they can improve the post operative care. I'm rambling under the influence of the pain meds. let me know if you have questions
I don't know how they could really improve the post op care without keeping you drugged so much that you didn't do anything but sleep for 3 to 6 weeks and give you a feeding tube. But, sleeping and not getting up and moving after surgery can be dangerous (blood clots, pneumonia, etc.).
For me personally, I couldn't do something like this unless it was my only hope I had of not dying. Did the docs tell you what the repercussions are from having your pallet and base of your tongue removed? The thought of that to me is very scary.
Again, I hope your recovery is fast and you are feeling better soon. I am going to check out this surgery to see how long it has been done, etc.
They do go over the negatives. Surgeons are not like medicine docs. They whush in, look you over, here's what you need to know, any questions, and are gone. This doc probably spent more time with me than she was accustomed to because i was such a match and had a lot of questions. I, and it's my fault, kept hearing better quality of life once it's over and not that this is really painful. So, part of publishing this was to help someone thinking of this that they need to carefully consider the post op part.
to be honest, though, i had been looking for an ENT to cut my tonsils for 2 years. I have allergies to everything. Finally got tested for the IGE molecule and was considered a good candidate for XOLAIR. If you have not been tested for this do it!! I've been on it for 6 months and it has made a huge differene. That and was a blessing, and i suspected that the sinus infections, being unable to get over a cold without massive anti-biotics, etc was related to something in the tonsils. I went to a number of ENT's and they told me i was crazy.
Well, crazy maybe i am, but when the doc cut into the first tonsil, she discovered a pool pf puss. Infection had been hiding there for who knows how long. She told my wife this really surprised her. I'm glad it's out.
the sleep endoscopy showed the upp was causing a complete collapse of the airway, so glad it's gone. Just wish it didn't hurt somuch