Hello Guest, Welcome to Apnea Board !
As a guest, you are limited to certain areas of the board and there are some features you can't use.
To post a message, you must create a free account using a valid email address.

or Create an Account


New Posts   Today's Posts

[Treatment] PLMD Whats your Experience
#1
PLMD Whats your Experience
Both my sleep study and my titration noted moderate PLMD at 30 movements per hour causing 3 or so arousals per hour. The Sleep Dr suggested Mirapex if needed. I do wake up several times nightly, and according to my fitbit, I wake often and have REM and Stage 3/4 sleep about 1/2 what is considered normal. I know PLMD can cause these symtoms, so I am thinking of going with the Mirapex, especially after I saw that the typical doses for PLMD or restless leg is .1 to .2 of the dose routinely used for Parkinsons, which has a lot of side effects.

Any experience with this or other treatments for PLMD?
Post Reply Post Reply



Donate to Apnea Board  
#2
RE: PLMD Whats your Experience
cpap can settle PLMD, bit depending the time between first and second sleep study, It may be time for drugs, there are a few different types and the different pathways they use, not just brands. It is involved and needs a specialist.
mask fit http://www.apneaboard.com/wiki/index.php...ask_Primer
For auto-cpap from machine data, or software. Set the min pressure at 'med' median pressure or 90% OR 2cm below 95% pressure. max pressure at 20cm for now. Forum will help you fine tune settings
Post Reply Post Reply
#3
RE: PLMD Whats your Experience
Your post caused me to go back and look at my sleep study, they indicated that there were 65 with a jerk index of 12.7 and an index of 12.7 and a jerk arousal index of 6.1 They also indicated mild limb jerks (327.51). I am not trying to hijack your thread, however I really do not know what this means. Is this a score for PLMD? I was doing ok until I found out I had something else!!
Post Reply Post Reply
#4
RE: PLMD Whats your Experience
(06-13-2017, 01:32 AM)ajack Wrote: cpap can settle PLMD, bit depending the time between first and second sleep study, It may be time for drugs, there are a few different types and the different pathways they use, not just brands. It is involved and needs a specialist.

The Dr. who recommended the Mirapex be tried is Board Certified in both sleep medicine and neurology, so I think he may qualify as a specialist. But he did not really say do or no do, just a suggestion if RLS is an issue, I think by extension then PMLD. But then I thought how do you know if the treatment is affecting PMLD, unless you do another sleep study, which I doubt that my insurance will go for. Right now my plan is to consult with my PCP, and see if he will prescribe and his thoughts on how we know if it's having any effect at all.
Post Reply Post Reply



Donate to Apnea Board  
#5
RE: PLMD Whats your Experience
(06-13-2017, 07:18 AM)silversnore Wrote: Your post caused me to go back and look at my sleep study, they indicated that there were 65 with a jerk index of 12.7 and an index of 12.7 and a jerk arousal index of 6.1  They also indicated mild limb jerks (327.51).  I am not trying to hijack your thread, however I really do not know what this means.  Is this a score for PLMD?  I was doing ok until I found out I had something else!!

You might want to call and ask them, as my recommendation was clearly stated in the summary of the report along with the PLMD diagnosis.
Post Reply Post Reply
#6
RE: PLMD Whats your Experience
RLS doesn't automatically mean one has PLMD, though there is a higher risk.

@silversnore the arousal index of 6.1 would be a Dx for treatment of PLMD, I had arousals in the 5's. The plan for me is to be on cpap for a while and get retested, as the dr said the PLMD can be reduced through CPAP use. I have been prescribed Pregabalin, but I'm holding off to give cpap a shot. my father uses pramipexole. There is a strong genetic component and females of the family are more at risk.
mask fit http://www.apneaboard.com/wiki/index.php...ask_Primer
For auto-cpap from machine data, or software. Set the min pressure at 'med' median pressure or 90% OR 2cm below 95% pressure. max pressure at 20cm for now. Forum will help you fine tune settings
Post Reply Post Reply
#7
RE: PLMD Whats your Experience
I get them in the daytime also. Mostly just ignore them, but when trying to go to sleep they are tough some days. I do not take anything for them and have not been offered something by the doc's yet. Just another adventure...

Sleep-well

Post Reply Post Reply



Donate to Apnea Board  
#8
RE: PLMD Whats your Experience
I was diagnosed several years ago, after having a sleep study, with RLS; was told my breathing occasionally "paused," but not enough to be considered sleep apnea.  Started taking Requip, which resulted in waking up multiple times per hour, sometimes only 10 minutes apart.  PCP had me gradually increase the dosage, and each time it got better for a couple of days then got even worse.  Developed uncontrollable leg thrashing, couldn't sleep, stopped Requip and things settled down to pre-Requip symptoms.  Then referred to neurologist, who put me on Klonopin, which resulted in vivid, terrifying nightmares and waking up with my heart racing. Bug-eyed  Stopped taking Klonopin, never went back to neurologist, decided to live with it.  Fast forward 7 years, had another sleep study because DH said I periodically stopped breathing while asleep.  This time, I got a diagnosis of sleep apnea and put on CPAP therapy.  I rarely have RLS symptoms now, only when I'm super tired or stressed.

I'm so thankful I'm getting the treatment I probably should have started getting years ago.  Life is good.  Bed
Sleepless No More
Post Reply Post Reply
#9
RE: PLMD Whats your Experience
My PLMD got much better once I got settled on the CPAP. When I do, it is violent. I once kicked my 80lb Rottie up and over the footboard. She was not amused. My current dog that sleeps at my feet, if I wake up and he is on the floor, I know I must have been kicking.

My RLS is linked to my potassium levels. My GP and I decided to not add yet another med to my list.

You can have RLS by itself or PLMD by itself or you can have both. They used to think RLS was only a day time thing but have now concluded it can happen during sleep.

If your PLMs were related to an apnea event, don't take any medication. Give the CPAP treatment time to work. If you want to later see if it is working, you can set up a camera and film yourself sleeping a night or two.
PaulaO2


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.




Post Reply Post Reply
#10
RE: PLMD Whats your Experience
(06-13-2017, 06:40 PM)PaulaO2 Wrote: My PLMD got much better once I got settled on the CPAP. 

 CPAP has resolved PLMs in my case as well.  My first sleep study showed PLMD at 8/ hour with 2/ hour causing arousals. The sleep specialist didn't think this was of particular significance since she believed it correlated with apneas. 

 My husband notes no movements from my side of the bed anymore since I've been on CPAP and he always used to say that because I moved so much I would take the blankets from his side, leaving him in the cold .... now all is good.  Smile  At the time I didn't know it was PLMD. 

At my titration,  no PLMs were observed. 

If apnea is the cause,  CPAP will help to eliminate PLMD.
Post Reply Post Reply



Donate to Apnea Board  


Possibly Related Threads...
Thread Author Replies Views Last Post
  OSA Sorted then CAs Sorted but left with restless legs/PLMD ThrownOutTheAsylum 5 660 06-12-2019, 01:14 AM
Last Post: praguecr
  Personal Experience On Nasal Mask Compared with Full Face Mask ramphil2019 19 955 04-07-2019, 12:01 AM
Last Post: ramphil2019
  Effects of anesthetic on apnoea. (my experience) Ockrocket 12 466 03-18-2019, 06:06 AM
Last Post: Ockrocket
  Great experience with Aeroflow and Cheap CPAP Supplies nbarday 2 193 03-07-2019, 12:55 AM
Last Post: nbarday
  Has anyone on this forum been diagnosed with PLMD? Haley 2 289 02-26-2019, 09:03 AM
Last Post: Haley
  PLMD diagnosed from sleep study Haley 2 217 02-14-2019, 04:02 PM
Last Post: Haley
  Interesting DME Experience sansnap 11 621 01-21-2019, 02:22 AM
Last Post: Hydrangea


New Posts   Today's Posts






About Apnea Board

Apnea Board is an educational web site designed to empower Sleep Apnea patients.