Post Reply 
[Treatment] Seven weeks of misery - update
Author Message
sevenlevels Offline

Members

Posts: 19
Joined: Feb 2016

Machine: Resmed Airsense 10 Autoset apap
Mask Type: Hybrid
Mask Make & Model: Amara View
Humidifier: HumidAir w/ClimateLineAir
CPAP Pressure: 7.4 / 7.6-12.8 EPR-3
CPAP Software: ResScan

Other Comments: Started treatment 01/28/16

Sex: Male
Location: Illinois

Post: #21
RE: Seven weeks of misery
Thanks to your help, I achieved my first 4 hour night!

But some new developments with my health plan. They dropped the hospital & doctor I was going to! So, now I have to get a new Sleep Doctor and start afresh?


Attached File(s) Thumbnail(s)
   
04-09-2016 06:03 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
sevenlevels Offline

Members

Posts: 19
Joined: Feb 2016

Machine: Resmed Airsense 10 Autoset apap
Mask Type: Hybrid
Mask Make & Model: Amara View
Humidifier: HumidAir w/ClimateLineAir
CPAP Pressure: 7.4 / 7.6-12.8 EPR-3
CPAP Software: ResScan

Other Comments: Started treatment 01/28/16

Sex: Male
Location: Illinois

Post: #22
RE: Seven weeks of misery
I have now kept the mask on for eight hours for two nights!

But, looking at ResScan, I am seeing a lot of CA - central apneas, and RERA?

I have been looking through the posts for information. So far, it sounds like increasing the minimum pressure to get it closer to the 95% number might help (to 8.2 from 7.6). And reducing the EPR to 2 from 3 might help with CO2 and oxygenation.

My next Sleep Dr. appt is in August. (insurance snafu).


Attached File(s) Thumbnail(s)
   
04-25-2016 05:24 AM
Find all posts by this user Post Reply Quote this message in a reply
green wings Online

Advisory Members

Posts: 553
Joined: Feb 2016

Machine: Respironics System One RemStar Pro (460)
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10
Humidifier: integrated humidifier
CPAP Pressure: 13.0 cm
CPAP Software: SleepyHead

Other Comments: using CPAP since Jan. 2016

Sex: Undisclosed
Location: US

Post: #23
RE: Seven weeks of misery
That is terrific! I went through a lot of struggles with my mask and with adjusting to breathing with the pressure during January and February.

I really feel like getting comfortable with having the mask on your face, getting leaks under control, and finding settings that let you inhale and exhale comfortably are potentially a bigger battle than finding the right settings to control your apnea events well.

It sounds like you've made it through the most difficult psychological and comfort issues.

(04-25-2016 05:24 AM)sevenlevels Wrote:  I have now kept the mask on for eight hours for two nights!
<snip>
04-25-2016 06:59 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
0rangebear Offline

Advisory Members

Posts: 342
Joined: Jan 2016

Machine: ResMed AirSence 10
Mask Type: Other
Mask Make & Model: Amara View
Humidifier: HumidAire (Built-in)
CPAP Pressure: APAP 12.8-15 EPR 3 (cmH2O)
CPAP Software: ResScan SleepyHead

Other Comments: Ramp off

Sex: Male
Location: Brighton Colorado

Post: #24
RE: Seven weeks of misery
5DancingSHa_biggrin5BananaThumbs-up-25

(04-25-2016 05:24 AM)sevenlevels Wrote:  I have now kept the mask on for eight hours for two nights!

Eat-popcornlikeWell-doneGoodOne5

He who that overcomes inherits all things

2004-Bon Jovi
it'll take more than a doctor to prescribe a remedy

Observations and recommendations communicated here are the perceptions of the writer and should not be misconstrued as medical advice.
04-25-2016 08:12 AM
Find all posts by this user Post Reply Quote this message in a reply
Adoniscmj Offline

Advisory Members

Posts: 168
Joined: May 2015

Machine: Resmed AirSense10 Autoset for her
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Integrated
CPAP Pressure: 6 to 9
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Everett, Washington

Post: #25
RE: Seven weeks of misery
I think we have all been there and I am still there nearly a year later. It takes some getting used to that is for sure. I hate CPAP with a passion and have noticed that my apnea may have been caused by TRT therapy and I may not need it now. If I still do then I find that you just need to stick with it and tolerance will increase with time and believe me it takes some people a while to get used to it. I find it a struggle to go more that 3 hours with it myself. I find that I wake up just enough to remove the mask and I never remember doing it. So best advice is to stick with it and don't push so much that you get anxiety. Go slowly and realize it is for your well being. With time your sessions will get longer. I have been on CPAP for almost a year and the most time I have seen so far is 5 hours and that was a fluke as it seems to be more like 3 hours. 3 hours is better than nothing is the way I look at it, but insurance will not pay for it at that rate. Now I found that I don't like heated humid air at all. In fact I like chilled air, so I ice my hose and water. This helps me with anxiety a great deal. You need to figure out what will make it more tolerable for you and try different things until you have something that works for you. Hang in there you will get it, but it takes time.
04-25-2016 01:10 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
sevenlevels Offline

Members

Posts: 19
Joined: Feb 2016

Machine: Resmed Airsense 10 Autoset apap
Mask Type: Hybrid
Mask Make & Model: Amara View
Humidifier: HumidAir w/ClimateLineAir
CPAP Pressure: 7.4 / 7.6-12.8 EPR-3
CPAP Software: ResScan

Other Comments: Started treatment 01/28/16

Sex: Male
Location: Illinois

Post: #26
RE: Seven weeks of misery
I went back over my summary data and thought it was interesting to see how the changes showed up in the graphs:

This one shows my seven weeks of misery: crazy AHI/AI numbers, and all kinds of breaks in my sleeping.


Attached File(s) Thumbnail(s)
   
05-25-2016 06:35 AM
Find all posts by this user Post Reply Quote this message in a reply
sevenlevels Offline

Members

Posts: 19
Joined: Feb 2016

Machine: Resmed Airsense 10 Autoset apap
Mask Type: Hybrid
Mask Make & Model: Amara View
Humidifier: HumidAir w/ClimateLineAir
CPAP Pressure: 7.4 / 7.6-12.8 EPR-3
CPAP Software: ResScan

Other Comments: Started treatment 01/28/16

Sex: Male
Location: Illinois

Post: #27
RE: Seven weeks of misery
And this one shows what happened after implementing some of the ideas like increasing my pressures and starting on sinus solution:
dramatic drop in AHI/AI and more continuous blocks of sleep time!

(note: I cut off the chart before my trip to Vegas!)


Attached File(s) Thumbnail(s)
   
(This post was last modified: 05-25-2016 06:44 AM by sevenlevels.)
05-25-2016 06:42 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
sevenlevels Offline

Members

Posts: 19
Joined: Feb 2016

Machine: Resmed Airsense 10 Autoset apap
Mask Type: Hybrid
Mask Make & Model: Amara View
Humidifier: HumidAir w/ClimateLineAir
CPAP Pressure: 7.4 / 7.6-12.8 EPR-3
CPAP Software: ResScan

Other Comments: Started treatment 01/28/16

Sex: Male
Location: Illinois

Post: #28
RE: Seven weeks of misery - 3 Month mark!
Back from Vegas on 4/01 (it takes a little while to get back to normal).

But then around 4/14, I get the Eureka moment! While discussing the Amara View mask with others, I realize how to get a much better fit by putting the main part of the cushion more over my mouth and letting the air pressure inflate the nose piece. (Instead of pushing the mask tightly up under my nose.)

FINALLY, I can sleep through the night. My Total Usage starts increasing, and my AHI is decreasing!

03/11/16-04/13/16 Avg Hrs 5:24 ; AHI 3.6/3.5
04/14/16-04/27/16 Avg Hrs 7:46 ; AHI 2.9/2.6

(Pressures: start 4.6 ; min=7.4 ; Max=12.4 ; epr-3 )

Well that fills up my attachment usage. So, this is my last post here.


Attached File(s) Thumbnail(s)
   
06-22-2016 03:02 AM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  Vertigo/CPAP Pressure Update- CPAP causing inner ear problems SuperSleeper 66 63,065 Today 01:12 AM
Last Post: DeepBreathing
  Travel CPAP that will run on 12V - 2016 update? ;-) NCZzzz 11 1,434 11-12-2016 12:07 AM
Last Post: Sleepster
Surprised Two weeks now, started ripping my mask off daniemmdee 6 464 10-27-2016 01:04 PM
Last Post: daniemmdee
  Help - Trying CPAP for over 8 weeks now stephennic 17 1,292 10-23-2016 09:50 PM
Last Post: murray s
  Two Long Weeks EnigmaGrey 20 937 10-12-2016 12:39 PM
Last Post: EnigmaGrey
  6 Weeks in and things are changing. Tassie tone 5 520 09-08-2016 07:39 PM
Last Post: Maskup Sleepwell
Thumbsup WHAT CONTROLLED MY APNEA: AHI Steady between 2.5 - 5.3 for a few weeks now ezdrifler 3 391 09-04-2016 10:26 AM
Last Post: ezdrifler

Forum Jump:

Who's Online (Complete List)