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[Treatment] no sleep
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calliopy2 Offline

Members

Posts: 12
Joined: Aug 2015

Machine: Phillips Respironics sytem one aut
Mask Type: Nasal mask
Mask Make & Model: wisp nasal mask
Humidifier: Respironics Remstar system one auto Aflex with hummidifier
CPAP Pressure: 11.5 to 18
CPAP Software: SleepyHead

Other Comments: ramp at 5 min at 9

Sex: Female
Location: california

Post: #1
no sleep
Dont-know
After reading many posts, there appears to be a group of people that feel as I do. I wonder what the percentage is compared to the total population? My story:
I was diagnosed with sleep and recd a phillips respiro
nics System one Hid DOM auto machine with humidifier. They came to my home and provided instructions and setup. That was the last time I had 8 hours of sleep. I have changed masks, nasal pillows, changed humidifier settings tubing, turned of ramp, turned on ramp, adjusted ramp numbers but still no help. I have taken tubing and masks upon discharge from hospital recently and used on my machine. Hospital therapy not much different than home therapy. I constantly adjust mask and find I need some air leak around nose to feel like I have enough air. I have slept a few hours when I am over tired but always am up at 3am pulling mask off. I feel that I cannot get enough air to breathe. I have called the supplier but not getting a response. Talked with my MD who nods and says " it just takes time". Consequently, anytime I am in the recliner, I fall asleep for 2-4 hours screwing up my sleep pattern. I gave myself 6 months to acclimate . It is past 6 months and I have been unable to sleep with the machine on. sorry for the verbose missive! Can anyone help? I am close to tossing this torture device in the trash! No wonder there is a hgih number of non compliant patients!
12-11-2015 12:00 PM
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Crimson Nape Offline

Monitors

Posts: 1,329
Joined: Oct 2014

Machine: ResMed S9 Autoset
Mask Type: Other
Mask Make & Model: P-10 / F&P Simplus / DreamWear
Humidifier: H5i w/Climateline
CPAP Pressure: 8 - EPR 3
CPAP Software: SleepyHead

Other Comments: CMS-50F & 50IW

Sex: Male
Location: Georgia

Post: #2
RE: no sleep
A lot of people, on this forum, have reported a feeling of suffocation until they get their pressure setting to at least 7 or higher. Since my therapy was started at a higher pressure than 7, I haven't experienced your problem. So please regard my 2 cents as just "parroting" what I've read.

Statistics prove that people who have more birthdays live longer.
12-11-2015 12:12 PM
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DWaldman Offline

Preferred Members

Posts: 57
Joined: Sep 2015

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: InnoMed Aloha
Humidifier: Hi5
CPAP Pressure: 9-17
CPAP Software: SleepyHead

Other Comments: We rescue dogs... I am going to need LOTS of filters....

Sex: Male
Location: Atascadero Ca

Post: #3
RE: no sleep
If your CPAP pressure is truly 5, you might not be getting enough air to feel comfortable. Not familiar with your machine as you describe, perhaps others on the list can elaborate. If it is truly an auto machine and is set up as straight CPAP, you might benefit from switching it to auto mode. I will let the more experianced members chime in. Just know, that you can get used to this therapy, it can be comfortable, and you will feel better when you do. There are many methods to use to get used to it, such as using it while awake, etc. I found that it was largely a matter of attitude, A positive attitude will see you through to a good outcome, a negative attitude will doom you to failure.
12-11-2015 12:13 PM
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OpalRose Offline

Monitors

Posts: 3,180
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #4
RE: no sleep
It sounds as if you should start to take control of your therapy instead of depending on DME and Docs.

First download the clinicians manual and Sleepyhead software. Both links at top of page.
When you have done that, you can send us an attachment of a typical night, then we can take a look.

Just a guess, your start pressure is too low, and you may be experiencing mask leaks.

If you have an APAP, why aren't you using the auto mode? We can help if you do your part, it's been six months. We can advise if we can see your data. Smile

OpalRose
12-11-2015 12:28 PM
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Mark Douglas Offline

Advisory Members

Posts: 513
Joined: Apr 2015

Machine: Sys 1 (60) RemStar BiPAP Auto with Bi-Flex 760P Auto Bi-Level (Variabl
Mask Type: Nasal mask
Mask Make & Model: PR Wisp
Humidifier: PR Sys One heated
CPAP Pressure: RiseTime 3 Fxd E-9.0 / I-11.5
CPAP Software: SleepyHead EncoreBasic

Other Comments: Hashimoto's thyroiditis.

Sex: Male
Location: SW Ohio

Post: #5
RE: no sleep
(12-11-2015 12:28 PM)OpalRose Wrote:  It sounds as if you should start to take control of your therapy instead of depending on DME and Docs.

First download the clinicians manual and Sleepyhead software. Both links at top of page.
When you have done that, you can send us an attachment of a typical night, then we can take a look.

Just a guess, your start pressure is too low, and you may be experiencing mask leaks.

If you have an APAP, why aren't you using the auto mode? We can help if you do your part, it's been six months. We can advise if we can see your data. Smile
What she said.
Also if you have ramp enabled I think every time you shut machine off it restars the ramp and that could be exacerbating your problems.

I use my PAP machine nightly and I feel great!
Updated: Philips Respironics System One (60 Series)
RemStar BiPAP Auto with Bi-FlexModel 760P -
Rise Time x3 Fixed Bi-Level EPAP 9.0 IPAP 11.5 (cmH2O)
12-11-2015 12:48 PM
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49er Offline

Advisory Members

Posts: 239
Joined: Apr 2012

Machine: VPAP-S
Mask Type: Nasal mask
Mask Make & Model: Sleep Weaver Elan Soft Cloth Nasal Mask
Humidifier: H5i
CPAP Pressure: 13.6/9.6
CPAP Software: SleepyHead

Other Comments:

Sex: Undisclosed
Location:

Post: #6
RE: no sleep
Hi Calliopy,

Welcome to the forum.

There is actually good news even though you're probably wondering if I have lost my mind. Smile There is room for optimizing your therapy as the reason you are probably feeling suffocation as your pressure is 5. I wouldn't last one second on that pressure, much less 6 months. You are a trooper for putting up with that.

Anyway, it sounds like it needs to be raised and possibly switched to the auto mode. You may find you prefer a straight CPAP pressure but switching to the auto mode is important to nail down either what the range or straight pressure should be.

So if you could please follow previous advice to download sleepyhead and post a screen shot for examination by the forum, that would be helpful. And don't forget to download the manual so you can change the pressure.

Hang in there, we'll get your situation worked out.

49er
(This post was last modified: 12-11-2015 02:40 PM by 49er.)
12-11-2015 01:14 PM
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SideSleeper Online

Advisory Members

Posts: 227
Joined: Oct 2015

Machine: PR DS560HS REMstar Auto-A Flex+ +
Mask Type: Nasal mask
Mask Make & Model: Wisp & Dreamwear
Humidifier: Respironics System One
CPAP Pressure: APAP 11-11
CPAP Software: SleepyHead

Other Comments:

Sex: Female
Location: Western Oregon, USA

Post: #7
RE: no sleep
I have the same machine and am on a fixed pressure of 11. When the machine was set up the ramp was on. Following advice of those on this forum I turned it off--the initial blast at 11 takes about two breaths to adjust to then all is good. I had to be up to about 8 on the ramp before I could relax a little.
12-11-2015 05:45 PM
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cate1898 Offline

Advisory Members

Posts: 784
Joined: Aug 2015

Machine: PR System One 560BT Auto
Mask Type: Nasal pillows
Mask Make & Model: P10's/backup-DreamWear
Humidifier: PR attached
CPAP Pressure: 8.5 - 13. A-Flex 3
CPAP Software: SleepyHead

Other Comments: Began CPAP Therapy Sept. 11, 2015. Hx Hypertension, Post Graves Disease, chronic migraines.

Sex: Female
Location: Southern Ontario//SW Florida

Post: #8
RE: no sleep
Welcome to ApneaBoard Caliopy2! Hope you get everything sorted out really soon! Then hopefully you will start to feel better and more rested.

APNEABOARD - A great place to be if you're a hosehead!! Rolleyes

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EVERY ACCOMPLISHMENT BEGINS WITH THE DECISION TO TRY!
12-11-2015 06:34 PM
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PoolQ Offline

Advisory Members

Posts: 986
Joined: Jul 2015

Machine: AirCurve 10 VAUTO
Mask Type: Full face mask
Mask Make & Model: Amara View
Humidifier: Integrated
CPAP Pressure: 6.2, 15, PS4.0
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Sillicon Valley

Post: #9
RE: no sleep
5 is very low, personally anything below 6 and only when I was relaxed made me feel like I was not getting enough air. I can't see ramp doing much because it starts at 4 and ramps to 5.

My guess is that at 5 you really are not getting enough air
12-12-2015 12:04 AM
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JudgeMental Offline

Advisory Members

Posts: 324
Joined: Feb 2012

Machine: Respironics DreamStation Auto-CPAP
Mask Type: Full face mask
Mask Make & Model: Respironics Amara View
Humidifier: Respironics
CPAP Pressure: 11-14
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Florida USA

Post: #10
RE: no sleep
It sounds to me like you did not get a quality sleep study. And perhaps a very lack luster DME effort.
Was it a home study or administered in a qualified sleep study situation?
4 or 5 pressure isn't much more then normal lung assisted breathing and at those pressures the addition of a mask on your face is definitely going to cause a feeling of suffocation.

Yesterday is history; Tomorrow is a mystery; Today is a gift; Thats why its called "The Present".
12-12-2015 10:39 AM
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