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[Treatment] what I have learned
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calliopy2 Offline

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Posts: 12
Joined: Aug 2015

Machine: Phillips Respironics sytem one aut
Mask Type: Nasal mask
Mask Make & Model: wisp nasal mask
Humidifier: Respironics Remstar system one auto Aflex with hummidifier
CPAP Pressure: 11.5 to 18
CPAP Software: SleepyHead

Other Comments: ramp at 5 min at 9

Sex: Female
Location: california

Post: #1
Smile what I have learned
I have been on CPAP for over 18 months and I have come to realize this experience is an ongoing work in progress. Learning about the treatment and disease is not a linear experience. I have been frustrated, angry, and determined. What I have learned may help others in adjusting to their treatment. I have 45+ years as a Critical Care nurse and I was overwhelmed by my sleep apnea problem and treatment. There was so much conflicting information given to me by the medical community. Then I realized the prescribed treatment is a generalization and I must tailor the treatment recommendations to fit ME. The medical community only knows what you are by test results and medical history, not who you are in your environment! Big difference that is very individualist by it's definition.

1. I have gone through 7 different types of masks and finally found two that work for me. I alternate between nasal pillows and the wisp depending on allergies.
2. I use Eucalyptus oil in my nose to open passages, it is quick, efficient, and cost friendly with no rebound effects of nasal sprays.
3. My AHI numbers were wild in the same week from 5 to 40! Found out I do best on my right side with a firm big pillow pushed up against my back to prevent sleeping on my back. My numbers are now 3-7!
4. I have adapted a sleep hygiene routine that works for me. I have realized I need a sleep routine to prepare me to fall asleep easier. I would fuss and fume for 90 minutes before falling asleep or I would just give up and sit in a chair fussing with "why me", not a good behavior. Now its a matter of minutes. Devon English lavender oil on my restless feet, a few minutes of deep breathing with the CPAP on, and a few happy positive thoughts to quiet my mind.
5. Considering the lack of support and knowledge I encountered from the medical field that treated my sleep apnea, I armed myself with as much information about sleep apnea and treatments since it was not provided by the professionals. I routinely do 10 minutes of throat and neck exercises daily. I found the best sleep research is out of Israel.
6. Dont give up, knowledge and support will empower you. This forum with all the help, experience, and support was my lagniappe.
06-25-2016 08:16 AM
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richb Online

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Posts: 536
Joined: Jun 2015

Machine: Resmed AirCurve 10 ASV
Mask Type: Nasal mask
Mask Make & Model: ResMed Mirage FX
Humidifier: Built in
CPAP Pressure: Epap 6 Ipap 8 Auto ASV
CPAP Software: ResScan SleepyHead

Other Comments: Idiopathic Central Apnea

Sex: Male
Location: Vermont

Post: #2
RE: what I have learned
Thanks for the post. Your experience in taking charge of your therapy can be helpful to others.

Rich

Apnea Board Member RobySue has posted a Beginners Guide to Sleepyhead Software here: http://www.apneaboard.com/wiki/index.php...SleepyHead
06-25-2016 08:20 AM
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Kris the Crone Offline

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Joined: May 2016

Machine: ResMed AirSense 10 Autoset
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CPAP Pressure: 8
CPAP Software: SleepyHead

Other Comments: 68, started CPAP/APAP June 9, 2016

Sex: Female
Location: Illinois, USA

Post: #3
RE: what I have learned
As a newbie with problems, it is encouraging to read about how you tried many different things to make your therapy work for you. Thanks!

"Perseverance, secret of all triumphs."
Victor Hugo
06-25-2016 08:23 AM
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chill Online

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Machine: DreamStation X500
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CPAP Pressure: 13-16
CPAP Software: SleepyHead

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Sex: Male
Location: Vancouver, Canada

Post: #4
RE: what I have learned
Excellent post, thank you. I do have a couple of questions. Do you use the Eucalyptus oil actually in your nose or just rub it on your lip below your nostrils. I have a lot of problems with constricted passages will try this. Also, do you have a link or reference for the throat and neck exercises that you do?

Cheers!
06-25-2016 10:37 AM
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0rangebear Online

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Machine: ResMed AirSence 10
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CPAP Software: ResScan SleepyHead

Other Comments: Ramp off

Sex: Male
Location: Brighton Colorado

Post: #5
RE: what I have learned
like
(06-25-2016 08:16 AM)calliopy2 Wrote:  I found the best sleep research is out of Israel.

What is the best source for Israeli sleep science. Do you now if they have affiliation with the Jewish Hospital sleep sciences in the USA and United Kingdom Thinking-about

I would love to know more on the Data from Israel Eat-popcorn
06-25-2016 11:33 AM
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calliopy2 Offline

Members

Posts: 12
Joined: Aug 2015

Machine: Phillips Respironics sytem one aut
Mask Type: Nasal mask
Mask Make & Model: wisp nasal mask
Humidifier: Respironics Remstar system one auto Aflex with hummidifier
CPAP Pressure: 11.5 to 18
CPAP Software: SleepyHead

Other Comments: ramp at 5 min at 9

Sex: Female
Location: california

Post: #6
RE: what I have learned
I put the eucalyptus up my nose with a saturate piece of Kleenex similar to how they treat bloody noses. Then I breath in through my nose deeply 4 or 5 times, take out the Kleenex and put on my nasal mask. I know it sounds strange, but it works great for me.
06-25-2016 03:21 PM
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calliopy2 Offline

Members

Posts: 12
Joined: Aug 2015

Machine: Phillips Respironics sytem one aut
Mask Type: Nasal mask
Mask Make & Model: wisp nasal mask
Humidifier: Respironics Remstar system one auto Aflex with hummidifier
CPAP Pressure: 11.5 to 18
CPAP Software: SleepyHead

Other Comments: ramp at 5 min at 9

Sex: Female
Location: california

Post: #7
RE: what I have learned
http://www.pubfacts.com/author/Yaron+Dagan is the research sleep site from Israel site with many research papers, muddle through to what you need. There are secondary threads. Also check the bibliography at the end of the research paper. It is a great tool for more info. Good luck
06-25-2016 03:27 PM
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calliopy2 Offline

Members

Posts: 12
Joined: Aug 2015

Machine: Phillips Respironics sytem one aut
Mask Type: Nasal mask
Mask Make & Model: wisp nasal mask
Humidifier: Respironics Remstar system one auto Aflex with hummidifier
CPAP Pressure: 11.5 to 18
CPAP Software: SleepyHead

Other Comments: ramp at 5 min at 9

Sex: Female
Location: california

Post: #8
RE: what I have learned
http://www.sleep-apnea-guide.com/tongue-...apnea.html
http://www.treehugger.com/health/6-simpl...oring.html are the tongue exercise that I use. I do just 3 of them. Neck exercise are from my nursing days. Good luck
06-25-2016 03:31 PM
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chill Online

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Posts: 864
Joined: Mar 2016

Machine: DreamStation X500
Mask Type: Full face mask
Mask Make & Model: Walk-in Mask Closet
Humidifier: DreamStation
CPAP Pressure: 13-16
CPAP Software: SleepyHead

Other Comments: CPAP True Believer

Sex: Male
Location: Vancouver, Canada

Post: #9
RE: what I have learned
Thanks
06-25-2016 03:39 PM
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PoolQ Offline

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Joined: Jul 2015

Machine: AirCurve 10 VAUTO
Mask Type: Full face mask
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CPAP Pressure: 6.2, 15, PS4.0
CPAP Software: SleepyHead

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Sex: Male
Location: Sillicon Valley

Post: #10
RE: what I have learned
I use eucalyptus oil on a folded Kleenex in front of the air intake, works great.

CPAP is just a way to prove that most people are not "default" in anything. Glad you found "your" settings!
06-25-2016 03:49 PM
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