Post Reply 
Trial FFMs?
Author Message
Recipefordisaster Offline

Preferred Members

Posts: 27
Joined: Jun 2015

Machine: Resmed airsense10 for her
Mask Type: Full face mask
Mask Make & Model: Amara view
Humidifier: Integrated
CPAP Pressure: 4-10
CPAP Software: Other Software

Other Comments:

Sex: Female
Location:

Post: #1
Trial FFMs?
I've given up on FitLife and it sounds like the DME's "30 day trials" don't mean you can keep trying more masks once they think you've tried enough. I seem to be stuck with this one, even though it's causing very sore teeth and still leaking because it's loose. Nothing has really worked for me and I'm interested in trying more FFMs with modification... We thought I couldn't use any conventional FFMs because my nose gets deep dents with any loose gentle pressure on it overnight, but I think that with moleskin or fleece I may be able to handle it.

I'm very small so would need S to XS masks. The only conventional one I've trialed has been F10 which I gave up on quickly because of the nose sore, but I only tried gauze and band aids to alleviate that. I thought there would be a mask I could use out of the box but apparently there isn't, and liners have not helped any of them.

The only mask I have other than this one is Amara view which also doesn't stay sealed all night and which eventually takes skin off my nasal area and hurts my cheekbones if it's tight enough. I guess I'm going to go back to attempting to use this, or maybe take months off of therapy if I can't get this resolved. In June I should be able to have another mask covered by insurance... I can't swing $80 or much more to buy any outright, especially since I know it's likely not to work.

The FitLife is a size S and has less than 7 days of use on it, all but one with a liner so very little skin contact. It's almost a great solution! If it fit below my chin instead of against my teeth I think it would be great.
02-05-2016 01:20 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #2
RE: Swap or lend/trial FFMs?
Why not use nasal pillows and a chin strap?

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-05-2016 01:48 PM
Find all posts by this user Post Reply Quote this message in a reply
Recipefordisaster Offline

Preferred Members

Posts: 27
Joined: Jun 2015

Machine: Resmed airsense10 for her
Mask Type: Full face mask
Mask Make & Model: Amara view
Humidifier: Integrated
CPAP Pressure: 4-10
CPAP Software: Other Software

Other Comments:

Sex: Female
Location:

Post: #3
RE: Swap or lend/trial FFMs?
Nasal pillows made it hard for me to breathe, even though I'm a nose breather, and I found them noisy. I also need to use a ton of tape on my mouth because it's never been my whole mouth that opens, just a flutter of my lip despite the tongue trick. Air accumulates in my mouth and escapes, waking me up. Chin straps give me a jaw ache and no help with this issue. I got nasal irritation that felt like it would cause a sore as we'll.
02-05-2016 01:52 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #4
RE: Swap or lend/trial FFMs?
Have you tried the Nuance? It does not go up into the nostril so isn't as constraining, if that makes sense. And the best chin strap for lip leaks is the PAP cap. I used it. But I got tired of all the equipment and just went to a full face mask. I use the Simplus. I have a small nose and that's where all the leaks are. But the Simplus sits low on the face.

Another to consider is the FlexiFit. It fits down over the chin and does not contact the lower teeth.

But, really, no FFM should be contacting your lower teeth except where it curves up. And it does not have to be tight. If you have to wear it so tight that it is hurting your teeth? It is not the right mask for you or the wrong size.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-05-2016 05:40 PM
Find all posts by this user Post Reply Quote this message in a reply
PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #5
RE: Swap or lend/trial FFMs?
(Putting on moderator hat)

CPAP masks are a prescription item in the US. We do not allow the offer or request of individual sale, trade, or giveaway of masks.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-05-2016 05:45 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Recipefordisaster Offline

Preferred Members

Posts: 27
Joined: Jun 2015

Machine: Resmed airsense10 for her
Mask Type: Full face mask
Mask Make & Model: Amara view
Humidifier: Integrated
CPAP Pressure: 4-10
CPAP Software: Other Software

Other Comments:

Sex: Female
Location:

Post: #6
RE: Swap or lend/trial FFMs?
Sorry, it was recommended that I try this angle. Oh well.

I've tried at least 10 masks and all have been loose enough to nearly leak continuously. With my current mask I believe it's the weight that hurts my teeth as the lower part has several fingers worth of wiggle room. A lot of masks sit in that spot between your lower lip and chin... Behind that is the roots of my bottom teeth which is where my ache is. I honestly don't think any masks will fit me "properly" so it seems I have to try the next best thing... Which is probably going to be augmented. The RTs at the DME have all but given up on me being able to find something that works, after 7 months of work.

I haven't tried the nuance, but I abandoned the idea of nasal interfaces when I realized that when they shift my breathing is obstructed. That plus the tape issue, which doesn't really bother me but which takes me a while to set up each night. I drool enough to dislodge the tape unless there is a ton of it. I don't think a chin strap is going to help with air ballooning in my cheeks and then leaking out of my lip. My TMJ really doesn't love having a chin strap anyway.

The FlexFit is one I want to try, but no way can I pay for it without insurance helping... Nor do I want to go without therapy for 5 more months.
02-05-2016 05:53 PM
Find all posts by this user Post Reply Quote this message in a reply
SuperSleeper Offline

Administrators

Posts: 9,964
Joined: Feb 2012

Machine: PR System One REMstar Auto (DS560)
Mask Type: Nasal pillows
Mask Make & Model: ResMed Mirage Swift II
Humidifier: none
CPAP Pressure: 12.5 - 18.5 cmH20 (auto range)
CPAP Software: SleepyHead

Other Comments: Have diabetes Type II

Sex: Male
Location: Illinois, USA

Post: #7
RE: Trial FFMs?
I've changed the title of this thread to avoid the appearance of offering prescription items for trade.

Thanks.

SuperSleeper
Apnea Board Administrator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.

02-05-2016 06:40 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
PaulaO2 Offline
Wiki Editor
Moderators

Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #8
RE: Trial FFMs?
Lip taping is a dangerous practice.

The PAPCap is designed to help stop lip leaking either just fluttering or where the mouth fills with air. It worked well for me and for others for this purpose. It is all cloth and sits differently than other chin straps.
http://www.apneaboard.com/forums/Thread-PAPcap-by-Pur-Sleep

Lip leaking is quite common. There is also a tongue trick you can teach yourself, but I can never explain how to do it. Hopefully someone else will be able to explain it for you.

The Nuance, since it does not go into the nostrils, doesn't block air or get blocked like other nasal pillows.

There's also the oral mask. One name is the Oracle.

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
02-06-2016 12:14 AM
Find all posts by this user Post Reply Quote this message in a reply
OpalRose Offline

Monitors

Posts: 3,167
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #9
RE: Trial FFMs?
Tongue Trick:
Place tongue to roof of mouth with tip of tongue right behind front teeth. Then gently suck upwards, this helps the tongue fall into a natural place and create a seal at back of throat so that no air will escape if your mouth/jaw drops open.

This technique takes practice and commitment like anything else. Some can master it quickly and some not. In time, it becomes natural.

OpalRose
02-06-2016 07:17 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,333
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #10
RE: Trial FFMs?
Mask liners are available that might cushion a FFM that is causing discomfort, cutting into your nose or cheeks. The are fitted, and might work better than band-aids or gauze. Nasal pillows are very light unobtrusive, and the Airfit P10 (for her) has a very quiet air diffuser making venting almost unnoticeable. If you can get past the exhalation pressure problem, it could be a good solution for you. Many of us have used this one successfully. It would sure beat having your face mutilated by a FFM.

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
02-06-2016 11:25 AM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  Auto-Trial –delivers CPAP therapy adjusting pressure 30days ICEMAN 8 1,230 09-24-2016 12:34 PM
Last Post: green wings
  Sleep study didn't go well, received a Trial VAuto PleaseHelp111 5 507 05-04-2016 01:05 AM
Last Post: palerider
  international Journal of Obeasity Clinical Trial 0rangebear 3 453 03-29-2016 03:37 PM
Last Post: Carbon
Cool APAP Trial Night vs. CPAP - I feel great! green wings 7 970 03-28-2016 11:42 AM
Last Post: green wings
  7 Day APAP Trial - What pressure to use? green wings 5 601 03-22-2016 02:33 PM
Last Post: OpalRose
  Trial of CPAP vs APAP janesleeping 2 489 02-29-2016 01:14 PM
Last Post: Ghost1958
  First night of trial Winterfrost 5 466 02-03-2016 03:18 PM
Last Post: Winterfrost

Forum Jump:

Who's Online (Complete List)