Hello there feller pappers,
I'm new to the group but I've been following this forum for a couple of years. First let me say that this has been a great resource for me since my journey with this STOOPID apnea entered my life and altered it in many ways good and bad.
After 2 years of cpap therapy, I'm still struggling almost every night with poor sleep quality and discomfort/discontent while "sleeping". The old sweet spot has eluded me at every turn. I'm on a new insurance plan and hope to be able to get another sleep study or at least a in-depth consultation with the KP sleep med dept in the next couple of months. But in the mean time, I was looking to see if anyone has any wisdom to share on my latest set of issues. I'll try to keep it brief....
When I had my study they did the short study where you get diagnosed, fitted, titrated, and prescribed all in one night. The results were an AHI of 27 and no centrals, no other sleep issues noted. I was given a brick (PR60 or something IDR) set to 12 (pressure CPAP), hose, and a Mirage FX Nasal Mask with Headgear and sent to my devices. After the much longer than expected adjustment period I discovered that I had very dry mouth in the morning, certainly because of mouth breathing, and started using a chin strap. Yay! Not. Still experiencing dry mouth some months on, I read some posts on this forum about mouth taping and gave that a try. It did make things better at least in terms of dry mouth issues. Note that at some point since, about Nov of '14, I've also purchased and have been using an S9 Auto and using Sleepyhead to track it with daily.
My reports have pretty consistently indicated large leak rates or around 20 or so. I know that's too high. So A few months ago I decided to bite the bullet and try a FFM, and purchased a Quattro FX which I have since renamed the SUX2000. What a disaster. The first night I woke up with the whole mask in my mouth. Tried with a chin strap the next night and it leaked like crazy. This game went on for about 3 or 4 nights and the mask went in trash. Back to the old Mirage FX and chin strap. I haven't had a decent night sleep since.
So recently I purchased the Fisher & Paykel HC431 fitpack after some consulting with the online person at [commercial DME link removed, please refer to Supplier #1 on the Supplier List]
. It arrived the other day. I tried the large size since it was most comfortable. However, in the wee hours of the morning it felt as though my machine was going to launch off th etable it was blowing so hard. Sleepyhead indicated 99% leak rate (yes, I switched the setting to FFM). So I tried the medium cushion. Still 98% leak rate. And my AHI's went from the 1-3 range to the 9 range. WTH????
I have done several dry runs on both the large and medium cushions. Cannot find any leaks in the mask, in the hose, or anything from the machine. Tried a master reset and started all over with the settings. Still a 98% LLR last night and an AHI of 9.81
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