Post Reply 
Two Long Weeks
Author Message
EnigmaGrey Offline

Preferred Members

Posts: 23
Joined: Oct 2016

Machine: Respironics DSX500T11
Mask Type: Nasal pillows
Mask Make & Model: Respironics Nuance Gel
Humidifier: DSXH
CPAP Pressure: 6-16
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Canada

Post: #1
Two Long Weeks
Imgur gallery of sleepyhead data: imgur.com\a\3iVPa

Shouldn't Have Put This Off

So, a few months ago now, my doctor had me wear an ambulatory blood pressure cuff for a day. While my blood pressure was normal, the test showed a small increase in pressure at night.

I was referred to an at-home sleep study at the local DME. They were very quick to process the results, resulting in my physician writing a script for an auto-pap without even having the chance to discuss the results.

Picking up the machine, the Sleep Tech quickly walked me through the study. There were no apneas, but for the duration of the study, I had 18 hypopneas. I'm unsure if this is per hour or throughout session, but the pulse ox doesn't lie: with hyponpeas lasting a maximum of 48 seconds, it read as low as 83%.

Perhaps this explains why I am so tired during the day and inclined to sleep upwards of 12 hours, yet feel very little relief. My sleeping schedule also rolls forward a few hours each day, give or take. For many years, I just assumed this was the result of a diagnosis of ADD (without the hyperactive component) and medicated it with a small dose of Adderall, not to mention caffeine and calories. It's been a good 12 years of that.

The Sleep Tech gave me a machine calibrated to 4-16 with a FLEX setting of 2. It was very difficult to get to sleep due to the sensation of suffocation, but somehow I managed. My AHI was only 1.52, all hyponpeas.

After another night of hyperventilating myself to sleep, I changed the pressure to 5, then to 6. Finally, I could get to sleep comfortably. After finding a helpful post here about placing your tongue lightly against the roof of one's mouth at night, I was able to eliminate any leaks related to mouth breathing.

My sleep remained fragmented, however. I'd constantly wake up every 1-3 hours. Most of the time I could get back to sleep, averaging 6 hours a night.

Sure, I'd feel more rested, but no longer being able to get a "solid" feeling sleep continues to take its toll on me.

My AHI averages about 2, so at least there's that.

DME Wins

There've been periods through this where I've been convinced I don't need this therapy and I'm just a cog in the DME's racket to sell me a machine with a 100% markup. But, after recording my sleep for a night, I'm forced to conclude that there's something going on: my breathing becomes shallow and sounds almost like it stops for a while, then it continues again.

Touche, DME. Maybe I do have a problem.

Figuring Out What's Normal

Now, something else has shown up: periodic breathing. For the last two days, the machine's flagged it. It's short, making up less than 1% of my sleep, but going back through the flow rate graphs, I notice similar patterns. Perhaps they're just not of long enough duration for the DreamStation to detect them? I have long periods of stable breathing, then it seems to undulate.

Likewise, I see gaps in my breathing. They're similar to hyponpeas, but are unflagged by the machine.

Then there's flow limitations. One every hour or so, of 6 seconds duration, yet most the time it looks like I'm breathing in Sleepyhead.

Then, the last two nights, I've noticed that when I wake up, am trying to drag myself back to sleep, and am laying on my back (normally I sleep in a positional hybrid of stomach and side), it seems like my breath just stops for a second. I have to consciously will myself to take a breath. Just a weird sensation.

Does this sound normal? Anyway, I'll talk with my doctor tomorrow, hopefully, then the Sleep Tech on the weekend. If more info is needed, just ask. Bit spaced out at the moment. Bigwink
(This post was last modified: 10-05-2016 10:56 AM by EnigmaGrey.)
10-05-2016 10:51 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,381
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #2
RE: Two Long Weeks
You've done pretty good getting the machine to work for you, but perhaps we can get things a bit better tuned to your needs. To start, can you take a look at your average and 90% pressures? (median and 95% is fine if that's what you record)

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
10-05-2016 11:28 AM
Find all posts by this user Post Reply Quote this message in a reply
EnigmaGrey Offline

Preferred Members

Posts: 23
Joined: Oct 2016

Machine: Respironics DSX500T11
Mask Type: Nasal pillows
Mask Make & Model: Respironics Nuance Gel
Humidifier: DSXH
CPAP Pressure: 6-16
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Canada

Post: #3
RE: Two Long Weeks
Averaged (12 days):

Median: 8.0
90%: 10.0
95%: 10.5

Rounded to the nearest 0.5.
(This post was last modified: 10-05-2016 12:07 PM by EnigmaGrey.)
10-05-2016 11:57 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,827
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #4
RE: Two Long Weeks
I'd set that min pressure at 8 and leave it for a week. see if that helps to reduce hypopneas even further! also, while your AHI is low now, I would look at the durations of the events.

What are the maximum pressures looking like?

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
10-05-2016 12:16 PM
Find all posts by this user Post Reply Quote this message in a reply
EnigmaGrey Offline

Preferred Members

Posts: 23
Joined: Oct 2016

Machine: Respironics DSX500T11
Mask Type: Nasal pillows
Mask Make & Model: Respironics Nuance Gel
Humidifier: DSXH
CPAP Pressure: 6-16
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Canada

Post: #5
RE: Two Long Weeks
Will give it a shot once I speak the sleep tech. I'm under the impression they won't be glad I changed it to 6. Speculatively, I assume this was really meant to get a baseline at the end of the month, when they try to sell me the machine. Tongue

Sleepyhead reports 11.5 this week; 15 for the month.
10-05-2016 12:41 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
EnigmaGrey Offline

Preferred Members

Posts: 23
Joined: Oct 2016

Machine: Respironics DSX500T11
Mask Type: Nasal pillows
Mask Make & Model: Respironics Nuance Gel
Humidifier: DSXH
CPAP Pressure: 6-16
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Canada

Post: #6
RE: Two Long Weeks
Oh, good. SleepyHead lets you export CVS.

Length of Hyopnea: 18s avg, 57s max

Rest are rare enough that there's probably not much reason to include them, for now.
(This post was last modified: 10-05-2016 01:04 PM by EnigmaGrey.)
10-05-2016 01:02 PM
Find all posts by this user Post Reply Quote this message in a reply
DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,827
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #7
RE: Two Long Weeks
57s is long! 18s is not short.... your therapy should be maximized so that these don't happen if possible. an AHI of 2 when the events are 10 or 11 sec is very different from what you have described.

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
10-05-2016 01:18 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
EnigmaGrey Offline

Preferred Members

Posts: 23
Joined: Oct 2016

Machine: Respironics DSX500T11
Mask Type: Nasal pillows
Mask Make & Model: Respironics Nuance Gel
Humidifier: DSXH
CPAP Pressure: 6-16
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Canada

Post: #8
RE: Two Long Weeks
Well, it certainly wasn't intentional. Big Grin That should be 15 seconds average, not 18. Mistyped.

The second longest, at 56, might be sleep-wake junk. It's the second-to-last chart, here: http://imgur.com/a/NbXEn You can see that it's on a very, very short session.
The longest, 57, happened after a RERA.

Of 253 events, only 11 are over 40.

Apologies.
(This post was last modified: 10-05-2016 01:59 PM by EnigmaGrey.)
10-05-2016 01:46 PM
Find all posts by this user Post Reply Quote this message in a reply
trish6hundred Offline

Advisory Members

Posts: 6,450
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #9
RE: Two Long Weeks
Hi EnigmaGrey,
WELCOME! to the forum.!
Good luck to you with your CPAP therapy and getting it fine-tuned to better meet your needs.
Hang in there for more responses to your post.

trish6hundred
10-05-2016 02:24 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,381
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #10
RE: Two Long Weeks
I'm 100% in agreement on a minimum pressure of 8.0. The Dreamstation is not fast enough to stop apnea if it is too far below the therapeutic pressure. If this was fixed CPAP, we would recommend the 90% pressure, closer to 10.0. The auto lets you enjoy somewhat lower pressures, but if you leave it at 6.0, you will continue to experience these problems.

I assume the 57 second duration is a hypopnea, not an obstructive apnea event. Hypopnea is a calculated event where flow volumes are reduced, and it's not unheard of for them to be of longer duration. Still, assuming that is an obstructive apnea, it may be completely prevented by starting at a pressure of 8, rather than far below your therapeutic pressure. The fact your machine has averaged 8.0 in spite of low starting pressure, is a message.

______________________________________________
Organize your SleepyHead Data
Post your SleepyHead Data from Imgur
Robysue's Beginner's Guide to Sleepyhead
10-05-2016 02:25 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  Long time CPAP user now with a problem PrkChps 5 155 12-07-2016 09:07 PM
Last Post: PrkChps
  Does long term humidifier use affect lungs? Russatrice 11 444 12-06-2016 06:27 PM
Last Post: eseedhouse
Surprised Two weeks now, started ripping my mask off daniemmdee 6 460 10-27-2016 01:04 PM
Last Post: daniemmdee
  Help - Trying CPAP for over 8 weeks now stephennic 17 1,286 10-23-2016 09:50 PM
Last Post: murray s
  6 Weeks in and things are changing. Tassie tone 5 516 09-08-2016 07:39 PM
Last Post: Maskup Sleepwell
  How long until changes in blood tests or medications? NorthernGuy 11 771 09-04-2016 07:46 PM
Last Post: Mosquitobait
Thumbsup WHAT CONTROLLED MY APNEA: AHI Steady between 2.5 - 5.3 for a few weeks now ezdrifler 3 387 09-04-2016 10:26 AM
Last Post: ezdrifler

Forum Jump:

Who's Online (Complete List)