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Two months compliant, still exhausted..
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Gabby Offline

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Location: Sunshine Coast, Qld., Australia.

Post: #21
RE: Two months compliant, still exhausted..
(04-11-2014 02:16 PM)robysue Wrote:  
(04-10-2014 10:20 PM)Gabby Wrote:  But I am still needing a two hour nap most days because I am so tired.
Are those naps WITH or WITHOUT the PAP machine?

Robysue, that is one thing I am very proud of myself about, I have not gone to sleep once, whether it be, night, morning or afternoon without my mask, and the machine turned on of course.
In the day when I have gone to have a nap, mostly in the early days, I used to think, don't bother putting the mask on, then something inside me just wouldn't let me do it.
I have really surprised myself.

Sleep Tight...
Gabby
04-11-2014 07:46 PM
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herbm Offline

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Post: #22
RE: Two months compliant, still exhausted..
(04-11-2014 07:46 PM)Gabby Wrote:  
(04-11-2014 02:16 PM)robysue Wrote:  
(04-10-2014 10:20 PM)Gabby Wrote:  But I am still needing a two hour nap most days because I am so tired.
Are those naps WITH or WITHOUT the PAP machine?

Robysue, that is one thing I am very proud of myself about, I have not gone to sleep once, whether it be, night, morning or afternoon without my mask, and the machine turned on of course.
In the day when I have gone to have a nap, mostly in the early days, I used to think, don't bother putting the mask on, then something inside me just wouldn't let me do it.
I have really surprised myself.

This is THE KEY to success with CPAP.

If I lie down, then I wear the mask -- even if not intending to sleep.

Keep at this and you MUST SUCCEED.

Sweet Dreams,

HerbM
Sleep study AHI: 49 RDI: 60 -- APAP 10-11 w/AHI: 1.5 avg for 7-days (up due likely to hip replacement recovery)

"We can all breathe together or we will all suffocate alone."
04-11-2014 08:37 PM
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Louis R. Offline

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Post: #23
RE: Two months compliant, still exhausted..
(04-07-2014 05:16 PM)Gabby Wrote:  For the past two months I have been totally loyal to my mask and machine, never once napping or sleeping without.
I am getting great AHI results, most well under 2.
Another great result is, instead of getting up to visit toilet 4,5 and sometimes 6 times a night I now mostly only go once. I am overjoyed about this turnaround.

My main concern is I am still exhausted in the day time. I wake up yawning and tired and it continues like this all day. If I let myself I could easily crawl back in to bed by 10am but I make myself stay up until at least lunch before I go and have a two hour nap (with machine).
Then I am asleep straight after dinner at night again.

I have had blood tests done so their are no underlining problems.
The only other thing I am able to think of is maybe one of my medications I take for my migraines. My Doctor has assured me they should not make me this sleepy, but he can't offer me any other solution.

I just want to ask has anyone tried Modafinil/Provigil to help them stay awake during the day?

I will be going to see my sleep Doctor on the 10th of May, so hopefully they will have some answers for me because I am finding this very distressing. I thought my tiredness was going to go once I started using cpap but it seems to have got worse.

Gabby, please read my story that I posted today about coconut oil. LOUIS R.
04-16-2015 10:02 AM
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Terry Offline

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Post: #24
RE: Two months compliant, still exhausted..
(04-07-2014 05:16 PM)Gabby Wrote:  My main concern is I am still exhausted in the day time. I wake up yawning and tired and it continues like this all day. If I let myself I could easily crawl back in to bed by 10am but I make

What's your machine set for?

Widely changing pressures will disturb your sleep and leave you feeling crummy even if you don't wake up during the night and even if your AHI is low.

If your machine is set to "lazy doctor" (5-20) and your needed pressure is somewhere in the middle or above, it's going to make your sleep not all that restful, since every time it sends the pressure up to stop an apnea then lets it back down again, it disturbs your sleep. This can prevent the deep sleep you need to feel rested.

If it's actually set to the fixed pressure you listed in your profile (9.4), it's entirely likely that you need more than that at various points during the night, but the machine can't adjust itself because it's not allowed to. In this case, you might want to see about giving it some headroom and raising the maximum a few CM. AHI is an average. Just because it's 2 doesn't mean that everything is great.

Also, AHI doesn't include RERAs, which will disturb your sleep but aren't counted. If you have an option to see RDI (Respiratory Disturbance Index) that should give you a better picture.
(This post was last modified: 04-16-2015 05:08 PM by Terry.)
04-16-2015 05:04 PM
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worn_out_in_lebanon Online

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Post: #25
RE: Two months compliant, still exhausted..
(04-16-2015 05:04 PM)Terry Wrote:  What's your machine set for?

p.s. This is a year old thread that got resurrected today.
Would be interesting to see how it turned out though.
04-16-2015 05:14 PM
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Gabby Offline

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Machine: ResMed AirSense 10 AutoSet For Her
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Mask Make & Model: Philips Nuance Nasal Mask
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CPAP Software: SleepyHead

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Sex: Female
Location: Sunshine Coast, Qld., Australia.

Post: #26
RE: Two months compliant, still exhausted..
(04-16-2015 10:02 AM)Louis R. Wrote:  
(04-07-2014 05:16 PM)Gabby Wrote:  For the past two months I have been totally loyal to my mask and machine, never once napping or sleeping without.
I am getting great AHI results, most well under 2.
Another great result is, instead of getting up to visit toilet 4,5 and sometimes 6 times a night I now mostly only go once. I am overjoyed about this turnaround.

My main concern is I am still exhausted in the day time. I wake up yawning and tired and it continues like this all day. If I let myself I could easily crawl back in to bed by 10am but I make myself stay up until at least lunch before I go and have a two hour nap (with machine).
Then I am asleep straight after dinner at night again.

I have had blood tests done so their are no underlining problems.
The only other thing I am able to think of is maybe one of my medications I take for my migraines. My Doctor has assured me they should not make me this sleepy, but he can't offer me any other solution.

I just want to ask has anyone tried Modafinil/Provigil to help them stay awake during the day?

I will be going to see my sleep Doctor on the 10th of May, so hopefully they will have some answers for me because I am finding this very distressing. I thought my tiredness was going to go once I started using cpap but it seems to have got worse.

Gabby, please read my story that I posted today about coconut oil. LOUIS R.

Thank you Louis for reading my piece and then taking the time to offer a solution to me.
I have read your piece on coconut oil and will definitely give it a go. In fact I bought a jar about three weeks ago because I heard it was good for you, I haven't needed to open it yet but will do today!
So I just take one tablespoon straight three times a day?
If it helps with my tiredness I will be over the moon but I still love all the added benefits as well.
Thank you once again. I will let you know how I go.

Sleep Tight...
Gabby
(This post was last modified: 04-16-2015 05:52 PM by Gabby.)
04-16-2015 05:51 PM
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GeoffD Offline

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Post: #27
RE: Two months compliant, still exhausted..
The magic four are diet, exercise, sleep, and stress. CPAP deals with the sleep piece. What about the rest of them?
04-16-2015 06:11 PM
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Terry Offline

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Post: #28
RE: Two months compliant, still exhausted..
(04-16-2015 05:14 PM)worn_out_in_lebanon Wrote:  
(04-16-2015 05:04 PM)Terry Wrote:  What's your machine set for?

p.s. This is a year old thread that got resurrected today.
Would be interesting to see how it turned out though.

Hmm. Didn't notice that.

Oh well.
04-16-2015 08:51 PM
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Gabby Offline

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Post: #29
RE: Two months compliant, still exhausted..
(04-16-2015 05:04 PM)Terry Wrote:  
(04-07-2014 05:16 PM)Gabby Wrote:  My main concern is I am still exhausted in the day time. I wake up yawning and tired and it continues like this all day. If I let myself I could easily crawl back in to bed by 10am but I make

What's your machine set for?

Widely changing pressures will disturb your sleep and leave you feeling crummy even if you don't wake up during the night and even if your AHI is low.

If your machine is set to "lazy doctor" (5-20) and your needed pressure is somewhere in the middle or above, it's going to make your sleep not all that restful, since every time it sends the pressure up to stop an apnea then lets it back down again, it disturbs your sleep. This can prevent the deep sleep you need to feel rested.

If it's actually set to the fixed pressure you listed in your profile (9.4), it's entirely likely that you need more than that at various points during the night, but the machine can't adjust itself because it's not allowed to. In this case, you might want to see about giving it some headroom and raising the maximum a few CM. AHI is an average. Just because it's 2 doesn't mean that everything is great.

Also, AHI doesn't include RERAs, which will disturb your sleep but aren't counted. If you have an option to see RDI (Respiratory Disturbance Index) that should give you a better picture.

Hi Terry thank you for your reply.
I am still in the same position I was in when I wrote the above. Dreadfully tired throughout the dy.
I had another sleep test in January this year and my Doctor has set me at a straight 10, which I have been at since then, but still no difference. I go and see him next month.
I know I am a mouth breather and wear a chinstrap. My median leaks are usually anywhere between 8-13 sometimes higher and sometimes lower.
I just accept that this is how my life has to be.
I thought once I started using this machine two years ago my life would turn around but it hasn't.
I sleep well, eat well maybe could do more exercise and need to lose about five kilos.
Some days I feel like throwing it all in the bin, the only good thing I have resolved from using a machine is my 5-6 nightly toilet stops have cut down to 2. For that I will be forever thankful.
Not sure about my RERA'S.

Louis, I have just taken my first dose of coconut oil!

Sleep Tight...
Gabby
(This post was last modified: 04-16-2015 09:27 PM by Gabby.)
04-16-2015 09:24 PM
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worn_out_in_lebanon Online

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CPAP Pressure: 13-15, EPR:0
CPAP Software: SleepyHead

Other Comments: I.T. Project Manager. Started CPAP therapy March 16, 2015. Untreated AHI 39.

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Post: #30
RE: Two months compliant, still exhausted..
(04-16-2015 05:51 PM)Gabby Wrote:  So I just take one tablespoon straight three times a day?

You should probably start with one initially, and see how your system handles it. Too much too soon can cause loose stools until you're adjusted to it. Also it's said if you have yeast overgrowth, it can cause a rapid die-off and release toxins faster than you can accommodate them.
04-17-2015 09:14 AM
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