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UARS, PAP-choise for paradoxical breathing
#1
UARS, PAP-choise for paradoxical breathing
Tl;dr what machine is best for UARS, where paradoxical bresthing is very present? 


Hi!

I'm new here, recently diagnosed with UARS. I have had an ME-diagnose for 10 yeard, and are now thinking most of my ME-symptoms actually are UARS-symptoms. I am on 100% disability, bed bound for around 15-20 hrs a day. I also work a few hours a day (in Norway working on disability is allowed and encouraged). 

I am currently trying to get help on the Norwegian Welfare, but have currently not succeeded. My ENT gave me a sleep study, said "this is serious, you need a CPAP", so he referred e to another clinic. They said "yes you need CPAP, but your ahi is <5, so we cannot give you one" then gave me the number of a private clinic, where I am now currently renting a ResMed Airsense 10, and are feeling better than I have in years. I need less rest, feel better during the day, and can handle more. I also sleep better, when the mask or machine doesn't wake me up. I now want to buy my own machine, and are wondering if I should stick with airsense or change.

A few thread marks the resmed aircurve as the best for uars. Would this still be the case for paradoxical breathing? 

I spend 60-90% of my nights in paradoxical breathing, according to my three noxt3 studies. I have not seen anyone with those levels before, and I am not sure of the relevance. I just know it means that my body is working hard to breathe. I have around 25-30% flow limitation and about the same time in snoring. These things are what needs correcting. I have used the Airsense 10 since may 20.th. It avarages on around 10 in preassure on autoset. I have not activated the EPR. I tried, but the noise level rose, and I am sensitive to about everything. (heightened nervous system, anyone?) I currently use the p20 mask, and wake up every few hrs due to leaks, discomfort or hose noise. Have a f20mask, but the preassure on my sinuses and nose got to high for comfort. Have just ordered a p30i to see if that will keep me from waking so often.

Is the aircurve at same noise level as airsense on bi-pap?


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#2
RE: UARS, PAP-choise for paradoxical breathing
Pg 2 of sleep report. Sorry, I don't get to add more files from my phone

Pg 3 of sleep report


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#3
RE: UARS, PAP-choise for paradoxical breathing
Hi and welcome to the club.

One of your comments, the part about flow limits being high, this would be a good reason by itself to think about changing to the ResMed VAuto. It's got more pressure support than the AutoSet's EPR limit of 3. EPR is really PS, just with that limited 3 range and in full steps (1, 2, or 3) where the VAuto can change PS in more fine steps of 0.2. So it's more capable, and it'll likely be better for your other needs due to the same higher range of PS.

Mask... Look at a Fisher and Paykel Vitera full face if you want a replacement for your F20.
Dave

OSCAR
Standard OSCAR Chart Order
Mask Primer
Dealing With A DME
Soft Cervical Collar Wiki
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#4
RE: UARS, PAP-choise for paradoxical breathing
Thank you!

I am going to try out the p30i to see if this is better for me. Then I'll look into that mask you recommended. 

Do you know if the noise level is as high on the airCurve as the airsens with the EPR activated?
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#5
RE: UARS, PAP-choise for paradoxical breathing
Not that I've measured, but I think the noise is similar.
Dave

OSCAR
Standard OSCAR Chart Order
Mask Primer
Dealing With A DME
Soft Cervical Collar Wiki
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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