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Unable to breath feeling
#11
If you have not got the manual get it and adjust it from 4 to something like 8 at a guess for low pressure, 4 is just to low for almost everyone!
As suggested, get SleepyHead and follow the guides here how to use it and post your data.
There is only a few settings you can get into, but if you know how you can get into the rest.

Reading your posts if I am right, it is like this.

Low pressure is set at 4 ?
EPR is turned on s it drops in pressure when you breathe out?

I think someone is being lazy and not doing their job properly!   Rolleyes
>^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^<
I am NOT a doctor.  I try to help, but do not take what I say as medical advice.

I am just a long term user of c.p.a.p. and therefore I have some experience in using these machines and equipment.

However, I am NOT an expert, so advice given should be taken as given in good faith only and NOT medical advice.

Every journey, however large or small starts with the first step.   Coffee
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#12
(06-01-2018, 03:13 PM)Sleep2Snore Wrote: If you have not got the manual get it and adjust it from 4 to something like 8 at a guess for low pressure, 4 is just to low for almost everyone!
As suggested, get SleepyHead and follow the guides here how to use it and post your data.
There is only a few settings you can get into, but if you know how you can get into the rest.

Reading your posts if I am right, it is like this.

Low pressure is set at 4 ?
EPR is turned on s it drops in pressure when you breathe out?

I think someone is being lazy and not doing their job properly!   Rolleyes

You are correct on the settings.  I did not get a manual.  I will do as you suggest.  I also agree...on the lazy comment. 

I have a followup appt in 7 weeks.
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#13
More for Rusty:

I doubt that this setting is super-important, but you might as well get it kosher in case it does make a difference to the pressures that you experience. The Philips machines have a "mask type" setting that is specified as off (zero) or X1 through, I think, X5, representing an air-resistance index. With a Philips mask, which you have, the correct X number is given on the package, which is another reason to get that whole shmeer from your DME.

Also, about the followup appointment, I hope when they gave you the machine they told you about what your compliance requirements are, if any. Some insurance providers have no such requirements, but others require you to use the machine for at least 4 hours/night at least 70% of nights for 30 consecutive days. Medicaid is a bizarrely extreme example, with the compliance period lasting for ten months. If you have difficulty meeting the compliance requirements at first, try going to bed early with a book (or watching the tube if that's your thing and if it doesn't keep you awake), switching the machine on, putting the mask on, and breathing through it while awake for some number of hours. And again, if the machine's settings are so wrong that it's painful to do that, then change the settings. This isn't supposed to be a torture test, and if your doc and/or DME have made it that for you then they're idiots.
"I wanted to be a Boy Scout, but I had all the wrong qualities.  They were looking for kids who were trustworthy, loyal, helpful, friendly, courteous, kind, obedient, cheerful, thrifty, brave, clean, and reverent.  Whereas I tended to be devious, fickle, obstructive, hostile, rude, mean, defiant, glum, extravagant, cowardly, dirty, and sacrilegious."  (George Carlin)
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#14
Make sure your Nasal Pillows are not to small, it is a common mistake.
Start with the largest and use the biggest ones that fit. They should not go well into the nostrils, just the tips on the nasal pillows and the the rest of the pillows should sit on the nostril. Just an after thought.
>^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^<
I am NOT a doctor.  I try to help, but do not take what I say as medical advice.

I am just a long term user of c.p.a.p. and therefore I have some experience in using these machines and equipment.

However, I am NOT an expert, so advice given should be taken as given in good faith only and NOT medical advice.

Every journey, however large or small starts with the first step.   Coffee
Post Reply Post Reply
#15
One way to make sure you meet with compliance is to put it on as soon as you are ready to go to sleep and keep it on until you get up, I know for some that is not easy, especially at the start of treatment, but you just have to get into the mind set to do just that.
>^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^<
I am NOT a doctor.  I try to help, but do not take what I say as medical advice.

I am just a long term user of c.p.a.p. and therefore I have some experience in using these machines and equipment.

However, I am NOT an expert, so advice given should be taken as given in good faith only and NOT medical advice.

Every journey, however large or small starts with the first step.   Coffee
Post Reply Post Reply



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#16
(06-01-2018, 04:15 PM)Sleep2Snore Wrote: One way to make sure you meet with compliance is to put it on as soon as you are ready to go to sleep and keep it on until you get up, I know for some that is not easy, especially at the start of treatment, but you just have to get into the mind set to do just that.

Adding to S2S's helpful information: using it while relaxing with a book (or TV) or even napping helps with acclimation -- and counts toward compliance.
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#17
Welcome

All the above are excellent pointers and although they sound as if they're basic in concept, they will result in success. Even if that success is a bit delayed, it will show up with a certainty. You will have to work to gain some of that success, but it's going to be very well worth the effort.

One thing I'll add, find out what your script details are, even going so far as getting a hard copy. The script has important info and that script can be very enlightening in how you CPAP needs set-up. At the very least, it's a starting point for your settings.

Best to a successful fight with this whole situation. If in need of any suggestions, post it and we'll do what we can.

lots-o-coffee
Dave

I'm not a doctor in real or fictional life. My posts include opinions based upon user experience regarding CPAP therapy and should not be considered medically professional direction or advice. Even a 1,000 mile trip requires a good first step. My recommended first steps include getting good walking shoes, 1 great cup of coffee, and a good GPS.

Wiki Info for Beginners
Sleepyhead Chart Organization
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#18
Rusty, can you please take a look at your data, even if it is just the on-screen therapy information, and give us a breakdown of your current AHI? Many people that complain of this suffocation feeling, have central apnea (CA). We really need to see something more useful than what DreamMapper is telling you. Your machine can provide 1-day, 7-day and 30 day therapy summaries with information on AHI, apnea type and pressures.
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