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Unable to use CPAP
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JJJ Offline

Advisory Members

Posts: 751
Joined: Apr 2012

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: Most recent: Wisp, Pilairo, Mirage Vista
Humidifier: ResMed S9 Autoset
CPAP Pressure: 17-20
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: USA 97217

Post: #21
RE: Unable to use CPAP
(04-05-2013 12:58 AM)zonk Wrote:  
(04-04-2013 04:58 AM)Dusty Wrote:  I know it doesn't seem that way, but I'd try almost anything at this point. (Anything that doesn't involve hooking me up to equipment.)
I've read many stories from people who were adamant not to use their CPAP and throw machines in closet or sold it. Only to come back at some years later at worse condition than before and more keen to use CPAP this time around and when they do, their lives and the lives of people dependent on them improves too.

People who do not have phobias never understand those who do. I can use my machine, but I panic if there is something directly in front of my eyes. I also panic at small enclosed spaces - if something needs to be done in the crawl space under my house I have to hire someone. No way could I go down there.

I also can't take extreme heights. There is a bridge that is two miles long over the Columbia river and it reaches 250 feet in height for a long distance over empty space. I cannot drive over it. I have to get someone else to drive the car over that bridge. And even then I curl up with my eyes closed and whimper every inch of the way. Believe it or not there is a service at each end of the bridge where you can hire someone to drive you over the bridge. I am not the only one who can't handle it.

If you don't have panic attacks I am very happy for you. But please y'all out there, panics cannot be gotten over just by trying harder or by increasing motivation. I want to encourage Dusty to keep trying, but I commiserate and understand if it can't be.
04-05-2013 02:15 AM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #22
RE: Unable to use CPAP
(04-05-2013 02:15 AM)JJJ Wrote:  I also can't take extreme heights.
Me too, don,t like heights ... prefer to be on solid ground level

The fact of the matter from my prospective, Apnea Board is public forum encompass many views from all sort of participants, some we agree with and some we don,t but if we only want hear from people who agree with our views than we should include a warning something like "please don,t reply to this post if you don,t agree with the expressed view" Dont-know

Anyway getting close to my bed time, just watching "American Idol"
Going fill the tank and put my S9 on warm-up mode and see where going take me Sleep-well
04-05-2013 06:03 AM
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Sleepster Offline
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Moderators

Posts: 4,995
Joined: Feb 2012

Machine: ResMed AirCurve10 VAuto
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: HumidAir and SlimLine Hose
CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #23
RE: Unable to use CPAP
(04-05-2013 02:15 AM)JJJ Wrote:  If you don't have panic attacks I am very happy for you. But please y'all out there, panics cannot be gotten over just by trying harder or by increasing motivation.

Not in all cases, but with professional help the symptoms can definitely be at least eased if not removed altogether. It takes courage and hard work to take the first step, but if you don't try you'll never find out if it'll work for you.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
04-05-2013 11:28 AM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #24
RE: Unable to use CPAP
I must agree with Sleepster having had to face down fear, panic and phobia first hand.
No, it's not easy. It can be the hardest thing you ever did but only dogged persistance works.
You will not fail until you stop trying.

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
04-05-2013 11:57 AM
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archangle Offline
Wiki Editor
Advisory Members

Posts: 3,163
Joined: Feb 2012

Machine: ResMed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: ResMed Swift FX
Humidifier: ResMed S9 H5i
CPAP Pressure: 16-20
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments: Happy PAPper

Sex: Undisclosed
Location: USA

Post: #25
RE: Unable to use CPAP
(04-05-2013 02:15 AM)JJJ Wrote:  People who do not have phobias never understand those who do. I can use my machine.

I may not "really" understand, but I do understand.

I understand that some diabetics have a needle phobia. They're still going to lose limbs and die if they don't get effective treatment of some kind. Some people can't give up the cigarettes or the overeating, and are going to suffer the consequences and die early.

I realize some people won't be able to use CPAP because of claustrophobia or other psychological problems. I'll make some suggestions that might help. I have suggested some alternatives that have a small chance of helping. In the end, illness and premature death is the likely outcome if they can't overcome their problems and use CPAP.

Get the free SleepyHead software here.
Useful links.
Click here for information on the main alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check it yourself.
04-07-2013 11:44 PM
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Tipiford Offline

Members

Posts: 6
Joined: May 2013

Machine: ResMed S9 Autoset
Mask Type: Nasal mask
Mask Make & Model: Respironics ComfortGel Blue Nasal Mask
Humidifier: ResMed H5i with ClimateLine
CPAP Pressure: 8 - 12
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Piedmont area of North Carolina

Post: #26
RE: Unable to use CPAP
(04-03-2013 03:15 PM)jgjones1972 Wrote:  Hi Dusty

Welcome

I know this sounds strange, but you might want to take some didgeridoo lessons. No joke; consistent didgeridoo playing has been shown to help.

Just google "didgeridoo and obstructive apnea".

It only helps if you learn how to play it properly (circular breathing), which is tricky to learn - most need formal lessons. You may be able to find lessons near you.

Best of luck!

I do circular breathing when I play the bagpipes' practice chanter. Guess I need to break that out and put some Scottish ditties back in my life! (Be happy to trade this very uncomfortable mask for that--well, uncomfortable for my first night, anyway; but I'll give it a little more time.)
05-06-2013 10:49 AM
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