Hello Guest, Welcome to Apnea Board !
As a guest, you are limited to certain areas of the board and there are some features you can't use.
To post a message, you must create a free account using a valid email address.

or Create an Account


New Posts   Today's Posts

Underlying sleep condition
#1
Underlying sleep condition
So I hope everyone is well and surviving the pandemic. Thoughts with you all and I hope your all taking care.

I haven’t posted for a while. 

I was in hospital again at the start of March for an overnight sleep study as my apnea is well under control 0.1-0.7 AHI a night! However....the consultant thinks I have an underlying sleep condition due to a number of issues I’m still having. I was prescribed melatonin at night meantime but should be getting my results back this week.

The nurse came in in the morning after my overnight sleep study and said “yes your right you really do have a broken sleep”. I apparently didn’t lay still all night, woke up looking round the room at one point, oh and the sleep study machine I’d dragged onto the floor!!!

There’s worries I could have REM sleep behaviour disorder or some other parasomnia. I don’t lay still during the night especially when in REM your body should be paralysed whereas I’m very active....like a dog when he’s dreaming is the best way of describing it. 

My biggest worry is REM sleep behaviour disorder and it’s links to Parkinson’s as it is in my family.  I’m 100% sure I have restless legs that’s for sure but worried what else will come back.

Many nights I have the CPAP tube wrapped round my neck...multiple time’s a night. CPAP machine on floor. It’s crazy.

I wake up wanting to go back to bed for 8 hours and regularly nap in day still.
Post Reply Post Reply
#2
RE: Underlying sleep condition
Hi David, glad you posted to update us, and glad you're well, more or less. I do wish you the best in going through the still undiscovered sleep ailment. I sincerely hope the medical team finds a cause and solution.

Stay safe and sane.
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply
#3
RE: Underlying sleep condition
Hang in David and may the docs figure it out. We all wish you better sleep. Keep us informed.

Post Reply Post Reply
#4
RE: Underlying sleep condition
Do you think they can schedule a consultation via phone or something like zoom so you can learn more during the CV sequestration? It must be really rough waiting.
Post Reply Post Reply
#5
RE: Underlying sleep condition
One solution to keep your machine off the floor is to use a bedside stand with a drawer or two and to suspend the tube from your headboard or wall. I have some pictures if you need the ideas, but I have kept my machine in a drawer next to the bed for years, running the tube and power out of a 2-inch hole in the back. I use a simple lanyard to suspend the tube from my headboard so it moves with me at night. I certainly don't have the scope of problems you have with movement, but this would at least keep you from damaging an expensive machine. There are a number of therapies for parasomnia, but I empathize with the difficulty it presents.
Sleeprider
Apnea Board Moderator
www.ApneaBoard.com

____________________________________________
Download OSCAR Software
Soft Cervical Collar
Optimizing Therapy
Organize your OSCAR Charts
Attaching Files
Mask Primer
How To Deal With Equipment Supplier


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply
#6
RE: Underlying sleep condition
Another possibility for keeping the machine in place: put a hose cover on the hose, then safety-pin it to your bottom sheet, maybe using several pins. -- I don't know whether your movement at night would be enough to result in a ripped sheet, but this might be worth a try.
Post Reply Post Reply
#7
RE: Underlying sleep condition
So the consultants secretary spoke to me briefly over the phone and said there’s some restless legs there but my full diagnosis (whatever else has been found) she couldn’t discuss over the phone and I have to go into clinic to see the consultant which isn’t going to be anytime soon due to the fact there’s no clinics running at present with th coronavirus outbreak! Deep joys

Hopefully going to speak to my psych about changing me off my antidepressants and antipsych drugs onto something that combines both (lamotrigine) which has shown to be effective in helping with bipolar as well as restless leg in the meantime
Post Reply Post Reply
#8
RE: Underlying sleep condition
Hope they do that if that's best David. best to ya, and again stay safe
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply
#9
RE: Underlying sleep condition
Here in Australia we have gone "seeing our doctor" by Skype or other video link options they have for us to use as patients. 

I found a large rectangular plastic food container at the supermarket to sit my Dreamstation in on the floor next to my bed ( I leave the lid off ).. and it also doubles for the same purpose when away in my HiAce camper-van as the only spot for the machine is in a storage area under the seat/bed in the van, and from there I can run the hose out and up in the back corner of vehicle to where my head is when the bed is set up at night.

Given such a low AHI do you really need to be using a CPAP/APAP at all? 
I doubt if mine had been that low I'd have been given one by my specialist.

Hopefully you get to the root cause of what is causing your sleeplessness and tossing and turning.
- They are not spelling/grammar errors.. I live in Australia, we do it differently Down Under  Big Grin -
Post Reply Post Reply
#10
RE: Underlying sleep condition
AHI was was/is through the roof without it. Sorry I should have been clearer it’s my CPAP that is controlling my apnea rally well down to 0.1-0.7
Post Reply Post Reply


Possibly Related Threads...
Thread Author Replies Views Last Post
  [Treatment] Request for Sleep Data review compared to Sleep Study thesingingchef 2 166 03-14-2024, 05:14 PM
Last Post: thesingingchef
  adding sleep report (Wondering whether changing sleep position can "cure" apnea) NewlyDiagnosed 1 209 02-26-2024, 10:19 PM
Last Post: BoxcarPete
  Inconsistent Sleep Patterns and Confusing Sleep Studies - Please Review mperry99 17 1,362 10-14-2023, 04:20 PM
Last Post: mperry99
  [Diagnosis] Sleep deprivation vs sleep apnea - my therapy thread JRNfromAZ 2 808 08-01-2023, 02:43 PM
Last Post: JRNfromAZ
  Sleep apnea and CPAP use and it’s effect on HRV and Sleep Quaility tinyobject 1 1,012 01-21-2023, 10:37 AM
Last Post: Jay51
  Random nights of short sleep due to several days mounting to too much sleep? CorruptAlligator 2 684 10-19-2022, 09:04 PM
Last Post: Lucid
  Home sleep test vs. sleep study at clinic rikkitikkitavi 14 3,202 02-18-2022, 08:46 AM
Last Post: Sleeprider


New Posts   Today's Posts


About Apnea Board

Apnea Board is an educational web site designed to empower Sleep Apnea patients.