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Scared Offline

Preferred Members

Posts: 38
Joined: Apr 2015

Machine: philips Respironics Remstar Auto A-Flex System one
Mask Type: Full face mask
Mask Make & Model: F & P simplus Meduim
Humidifier: None
CPAP Pressure: 9.4
CPAP Software: Not using software

Other Comments: Diabetic Type 2 high bood pressure, Diverticulitis, Arthritis

Sex: Female
Location: French Alps

Post: #1
Update
Hello all, thank you all for your passed comments.

If you remember I posted last week and said I would let you know the outcome, from my rep visit,. These are my readings ( in french) sorry cant translate!!!!
number D'Apnea TST 126 soit 21 per hour dont 119 obstrctives, 1 centrales 6 mixtes. numbet total d'hypopneces 323 soit 53 par hour (dont 88 obstructives)
index d'apneas hypopneas 73 par hour. Dont know if you can understand.

I have been given a Philips respironics system 1 remstar auto A-flex set at 4-10 with a mask that goes over my nose and mouth i couldn't cope with just the nose mask as I have a bit of a cold, I asked for the humidifier but he didn't have the correct one with him so he said he will pop it in the post as my throat get awfully dry and I gave a cough dont know if it is the machine or if its my cold thats causing this. I seem to be ok and I can sleep in it since the first night although I do wake up about 3 times and do find it a pain getting all connected again. Do you think my sore throat is the machine or just my cold, i have been putting Vicks on my nose and chest ? Because this is all in french all my info is from this site... so pleased I have found this, any tips are appreciated

Since starting on the machine my back and chest pains seem to have gone also, A man comes to the house again next week to take the readings off the machine.

Thank you all for reading.
Lynn
04-15-2015 04:42 AM
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player Offline

Advisory Members

Posts: 412
Joined: Feb 2015

Machine: Resmed A10 Autoset For Her
Mask Type: Nasal pillows
Mask Make & Model: Resmed A10
Humidifier: Resmed A10 Autosset
CPAP Pressure: 11-16
CPAP Software: SleepyHead

Other Comments: It's a... mad world...

Sex: Male
Location: Canada

Post: #2
RE: Update
Your numbers seem very high, if I am reading correctly... 73 AHI per hour...

126 apnea events in 21 hours, with 119 obstructive, 1 central, and 6?

OK, I give up.

You should really notice a big positive change as you recover and start getting sleep.

Good luck and good health!
(This post was last modified: 04-15-2015 05:20 AM by player.)
04-15-2015 05:19 AM
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Scared Offline

Preferred Members

Posts: 38
Joined: Apr 2015

Machine: philips Respironics Remstar Auto A-Flex System one
Mask Type: Full face mask
Mask Make & Model: F & P simplus Meduim
Humidifier: None
CPAP Pressure: 9.4
CPAP Software: Not using software

Other Comments: Diabetic Type 2 high bood pressure, Diverticulitis, Arthritis

Sex: Female
Location: French Alps

Post: #3
RE: Update
(04-15-2015 05:19 AM)player Wrote:  Your numbers seem very high, if I am reading correctly... 73 AHI per hour...

126 apnea events in 21 hours, with 119 obstructive, 1 central, and 6?

OK, I give up.

You should really notice a big positive change as you recover and start getting sleep.

Good luck and good health!

The cardiologist did say he had only ever seen i person that was worse than me, and treated me as an emergency.!!!! I do feel a lot better even in this short space of time no more chest pains...the only thing I have is a blocked nose but I hope when I get my humidifier this will ease. thankou for your comment.
04-15-2015 05:53 AM
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Crimson Nape Offline

Monitors

Posts: 1,332
Joined: Oct 2014

Machine: ResMed S9 Autoset
Mask Type: Other
Mask Make & Model: P-10 / F&P Simplus / DreamWear
Humidifier: H5i w/Climateline
CPAP Pressure: 8 - EPR 3
CPAP Software: SleepyHead

Other Comments: CMS-50F & 50IW

Sex: Male
Location: Georgia

Post: #4
RE: Update
(04-15-2015 04:42 AM)Scared Wrote:  number D'Apnea TST 126 soit 21 per hour dont 119 obstrctives, 1 centrales 6 mixtes. numbet total d'hypopneces 323 soit 53 par hour (dont 88 obstructives)
index d'apneas hypopneas 73 par hour. Dont know if you can understand.

I ran the above through Google Translate and got this (with a little editing):
The Apnea Total Sleep Time 126 or 21 per hour including; 119 Obstructive(OA), Central 16 mixed(CA). Total number of hypopneas 323 or 53 per hour (88 obstructive). Apnea Hypopnea Index (AHI) is 73 per hour.

Hope it helps . . .:grin:

Statistics prove that people who have more birthdays live longer.
(This post was last modified: 04-15-2015 07:27 AM by Crimson Nape.)
04-15-2015 07:14 AM
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OpalRose Offline

Monitors

Posts: 3,181
Joined: Nov 2014

Machine: PR System One REMstar Auto 560 with A Flex
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10 For Her
Humidifier: REMStar heated humidifier with heated hose
CPAP Pressure: Auto Cpap 10-13 AFLEX 1
CPAP Software: SleepyHead EncoreBasic

Other Comments: Started CPAP Therapy October 23, 2014

Sex: Female
Location: Northeast Ohio, USA

Post: #5
RE: Update
(04-15-2015 04:42 AM)Scared Wrote:  Hello all, thank you all for your passed comments.

If you remember I posted last week and said I would let you know the outcome, from my rep visit,. These are my readings ( in french) sorry cant translate!!!!
number D'Apnea TST 126 soit 21 per hour dont 119 obstrctives, 1 centrales 6 mixtes. numbet total d'hypopneces 323 soit 53 par hour (dont 88 obstructives)
index d'apneas hypopneas 73 par hour. Dont know if you can understand.

I have been given a Philips respironics system 1 remstar auto A-flex set at 4-10 with a mask that goes over my nose and mouth i couldn't cope with just the nose mask as I have a bit of a cold, I asked for the humidifier but he didn't have the correct one with him so he said he will pop it in the post as my throat get awfully dry and I gave a cough dont know if it is the machine or if its my cold thats causing this. I seem to be ok and I can sleep in it since the first night although I do wake up about 3 times and do find it a pain getting all connected again. Do you think my sore throat is the machine or just my cold, i have been putting Vicks on my nose and chest ? Because this is all in french all my info is from this site... so pleased I have found this, any tips are appreciated

Since starting on the machine my back and chest pains seem to have gone also, A man comes to the house again next week to take the readings off the machine.

Thank you all for reading.
Lynn


Hi Lynn,
So glad you are doing better. It takes awhile to get used to everything.
If your sore throat persists, please see your doctor. Although it may be lack of humidity.

OpalRose
04-15-2015 07:45 AM
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Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,388
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #6
RE: Update
I recommend you push to get the humidifier as soon as possible. Your machine was dispensed at the full range default settings. You will want to make changes so the machine is more responsive to your needs and better treats your severe apnea.

The clinical menu for your machine is accessed by following these directions http://www.apneaboard.com/pr-system-one-...tructions.

The first thing you may want to do is to change the ramp minimum pressure and time. If you feel it takes too much effort to breath when beginning the night on CPAP it is because the pressure is too low. Increase the minimum pressure until you are comfortable. Turn off ramp, or decrease the time in ramp. By default it lasts 45 minutes, and everytime you shut down the machine it restarts. You are not being treated when the machine is in ramp mode.

You can request a clinical manual by sending an email to Respironics PR System One REMstar Auto with A-flex, with Setup Manual in the subject line, and put "Respironics PR System One REMstar Auto with A-flex" in the body of the email.

Good luck and keep us posted of your progress.

______________________________________________
Organize your SleepyHead Data
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04-15-2015 09:33 AM
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retired_guy Offline

Preferred Members-2

Posts: 2,744
Joined: Jan 2014

Machine: ResMed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: ResMed
CPAP Pressure: 10.6/14, EPR 3
CPAP Software: ResScan SleepyHead

Other Comments: Is it bedtime yet?

Sex: Male
Location: Beautiful, albeit very wet Oregon Coast

Post: #7
RE: Update
Hello Lynn! Nice to hear back from you.

Well, you're off to a fine start. Congratulations on that.

I agree with Sleeprider (I usually do of course) about the minimum pressure needing to be a little higher. But what I did when I was new and did not know I could change it myself was just sit on the edge of the bed and suffer until it got up to 6 or 8.

Also I do not like the ramp feature. At your set pressure you shouldn't need it at all, so turn it off.

Do stay at the current pressure settings for awhile until you can find out how they will do. Ultimately I suspect they will need to be increased a little.
04-15-2015 10:11 AM
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Scared Offline

Preferred Members

Posts: 38
Joined: Apr 2015

Machine: philips Respironics Remstar Auto A-Flex System one
Mask Type: Full face mask
Mask Make & Model: F & P simplus Meduim
Humidifier: None
CPAP Pressure: 9.4
CPAP Software: Not using software

Other Comments: Diabetic Type 2 high bood pressure, Diverticulitis, Arthritis

Sex: Female
Location: French Alps

Post: #8
RE: Update
(04-15-2015 07:14 AM)sgearhart Wrote:  
(04-15-2015 04:42 AM)Scared Wrote:  number D'Apnea TST 126 soit 21 per hour dont 119 obstrctives, 1 centrales 6 mixtes. numbet total d'hypopneces 323 soit 53 par hour (dont 88 obstructives)
index d'apneas hypopneas 73 par hour. Dont know if you can understand.

I ran the above through Google Translate and got this (with a little editing):
The Apnea Total Sleep Time 126 or 21 per hour including; 119 Obstructive(OA), Central 16 mixed(CA). Total number of hypopneas 323 or 53 per hour (88 obstructive). Apnea Hypopnea Index (AHI) is 73 per hour.

Hope it helps . . .:grin:
Thank you very much, is it that bad!!!!
04-15-2015 11:14 AM
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Scared Offline

Preferred Members

Posts: 38
Joined: Apr 2015

Machine: philips Respironics Remstar Auto A-Flex System one
Mask Type: Full face mask
Mask Make & Model: F & P simplus Meduim
Humidifier: None
CPAP Pressure: 9.4
CPAP Software: Not using software

Other Comments: Diabetic Type 2 high bood pressure, Diverticulitis, Arthritis

Sex: Female
Location: French Alps

Post: #9
RE: Update
(04-15-2015 07:45 AM)OpalRose Wrote:  
(04-15-2015 04:42 AM)Scared Wrote:  Hello all, thank you all for your passed comments.

If you remember I posted last week and said I would let you know the outcome, from my rep visit,. These are my readings ( in french) sorry cant translate!!!!
number D'Apnea TST 126 soit 21 per hour dont 119 obstrctives, 1 centrales 6 mixtes. numbet total d'hypopneces 323 soit 53 par hour (dont 88 obstructives)
index d'apneas hypopneas 73 par hour. Dont know if you can understand.

I have been given a Philips respironics system 1 remstar auto A-flex set at 4-10 with a mask that goes over my nose and mouth i couldn't cope with just the nose mask as I have a bit of a cold, I asked for the humidifier but he didn't have the correct one with him so he said he will pop it in the post as my throat get awfully dry and I gave a cough dont know if it is the machine or if its my cold thats causing this. I seem to be ok and I can sleep in it since the first night although I do wake up about 3 times and do find it a pain getting all connected again. Do you think my sore throat is the machine or just my cold, i have been putting Vicks on my nose and chest ? Because this is all in french all my info is from this site... so pleased I have found this, any tips are appreciated

Since starting on the machine my back and chest pains seem to have gone also, A man comes to the house again next week to take the readings off the machine.

Thank you all for reading.
Lynn


Hi Lynn,
So glad you are doing better. It takes awhile to get used to everything.
If your sore throat persists, please see your doctor. Although it may be lack of humidity.
Thanks, i will be glad when he comes nxt week to reset the machine and do the readings, my throat is so sore, but it could be my cold. x
04-15-2015 11:17 AM
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Scared Offline

Preferred Members

Posts: 38
Joined: Apr 2015

Machine: philips Respironics Remstar Auto A-Flex System one
Mask Type: Full face mask
Mask Make & Model: F & P simplus Meduim
Humidifier: None
CPAP Pressure: 9.4
CPAP Software: Not using software

Other Comments: Diabetic Type 2 high bood pressure, Diverticulitis, Arthritis

Sex: Female
Location: French Alps

Post: #10
RE: Update
(04-15-2015 10:11 AM)retired_guy Wrote:  Hello Lynn! Nice to hear back from you.

Well, you're off to a fine start. Congratulations on that.

I agree with Sleeprider (I usually do of course) about the minimum pressure needing to be a little higher. But what I did when I was new and did not know I could change it myself was just sit on the edge of the bed and suffer until it got up to 6 or 8.

Also I do not like the ramp feature. At your set pressure you shouldn't need it at all, so turn it off.

Do stay at the current pressure settings for awhile until you can find out how they will do. Ultimately I suspect they will need to be increased a little.
The man from the company comes again next week to read the computer and reset it. I do find my ears block, Do you think he will change all you have said next week?
I must admit I feel pounds better than I did. thank you for your help. x

(04-15-2015 10:11 AM)retired_guy Wrote:  Hello Lynn! Nice to hear back from you.

Well, you're off to a fine start. Congratulations on that.

I agree with Sleeprider (I usually do of course) about the minimum pressure needing to be a little higher. But what I did when I was new and did not know I could change it myself was just sit on the edge of the bed and suffer until it got up to 6 or 8.

Also I do not like the ramp feature. At your set pressure you shouldn't need it at all, so turn it off.

Do stay at the current pressure settings for awhile until you can find out how they will do. Ultimately I suspect they will need to be increased a little.
I dont really understand all this so I hope he will sort it for me when he comes on Tuesday. Thank you so much for your help, will let you know what happens on Tuesday. Lynn
(This post was last modified: 04-15-2015 11:23 AM by Scared.)
04-15-2015 11:21 AM
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