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Update on a newbie - AHI still high
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djjwilly Offline

Preferred Members-2

Posts: 62
Joined: Mar 2013

Machine: Elite S9
Mask Type: Nasal pillows
Mask Make & Model: Resmed AirFit P10 and chinstrap
Humidifier: Resmed Elite H 5i
CPAP Pressure: 10
CPAP Software: ResScan

Other Comments:

Sex: Female
Location:

Post: #1
Update on a newbie - AHI still high
Hi all; Just a note to touch base, I guess. I've had a horrible time finding the appropriate mask, even though I went to two suppliers. I ended up with the Innomed full face nasal mask because it has a plastic support my chin can sit in so my mouth doesn't fall open at night. I had a very badly dislocated jaw as a child and have tmj syndrome, which means chronic all the time jaw pain and headaches I went through at least eight masks to end up with this one. The whole process could have been side stepped if they had asked me when I first went for a mask if I had jaw problems. I ended up figuring it out myself. My jaw does not like being forced to stay shut at night with the Innomed, but I'm getting there. This is a high quality mask compared to the others I tried.

My problem now is that my AHI's are pretty high. Last night was 18.5 and a few nights ago was 38.8, higher than my sleep study. I think the pillow fell loose of my nostril that night. Should I have the EPR set at 3? I'm also wondering if I really need an Autoset machine. I'm having a hard time getting used to the air constantly blowing at me nonstop. Having jaw problems has made this process so much more difficult. I'm on Medicare, too, so it's been hard to say the least. I don't think the supplier anticipated me being so hard to help. I didn't do it on purpose. I've lost track of all the trips I took regarding masks, little heating from the humidifier, etc.

My goal is to be able to post in the success story thread, but at this rate I'm not too sure I'll be there in the near future. I ordered a lightweight nasal mask for backup and will have to use my chinstrap with that. Unfortunately, I breath through my teeth, however. I'm amazed so many people can use masks with no chin support. I guess normal jaws aren't like mine. Any advice is greatly <and I mean that> appreciated. Have a good day everyone. Love, DJ PS: I'm waking up tired and not feeling much better than I did before treatment. My pressure is 7.
04-15-2013 09:59 AM
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Bompa Offline

Monitors

Posts: 854
Joined: Mar 2012

Machine: DreamStation Pro
Mask Type: Nasal pillows
Mask Make & Model: Nuance Pro
Humidifier: DreamStation Heated Humidifer
CPAP Pressure: 12.0
CPAP Software: SleepyHead Other Software

Other Comments:

Sex: Male
Location: Falkenburg,

Post: #2
RE: Update on a newbie
I'm afraid I can't answer all your questions but.. I find when my EPR is set at 3 that life on the CPAP is much more tolerable.

With your AHI's so high do you think thatmaybe you have major mask leaks?

There will be other fellow members drop in and ofgfer good advice.

Hang in there my fried..Help is on the way!
Coffee
04-15-2013 10:10 AM
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djjwilly Offline

Preferred Members-2

Posts: 62
Joined: Mar 2013

Machine: Elite S9
Mask Type: Nasal pillows
Mask Make & Model: Resmed AirFit P10 and chinstrap
Humidifier: Resmed Elite H 5i
CPAP Pressure: 10
CPAP Software: ResScan

Other Comments:

Sex: Female
Location:

Post: #3
RE: Update on a newbie
(04-15-2013 10:10 AM)Bompa Wrote:  I'm afraid I can't answer all your questions but.. I find when my EPR is set at 3 that life on the CPAP is much more tolerable.

With your AHI's so high do you think thatmaybe you have major mask leaks?

There will be other fellow members drop in and ofgfer good advice.

Hang in there my fried..Help is on the way!
Coffee

Thanks for the reply. I'm pretty sure it's not leaking but if it is I'm in trouble. I've tried so many masks now through Medicare that they are totally done letting me do it. I'll have to pay full price for any more I try. I'm at the end of my rope and wish I could miraculously post in the apnea success thread..lol...won't give up and thanks again. DJ
04-15-2013 11:14 AM
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trish6hundred Offline

Advisory Members

Posts: 6,446
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #4
RE: Update on a newbie
Hi djjwilly,
I'm sorry you are having such a rough time with CPAP. EPR is a comfort feature. In other words, you can have it on or turn it off. I have read some posts on the board where some people think it's more of a pain than it helps. If you feel it helps you, then just keep right on using it.
I will tell you that CPAP can take a lot of time for some to get used to so don't give up.
Hang in there for more suggestions and best of luck.

trish6hundred
04-15-2013 02:28 PM
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zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #5
RE: Update on a newbie
EPR is like humidity setting, individual thing, everyone is different
Experiment and see whats works best and feel more comfortable for you

Your prescribed pressure 7 is not on high side, if you,re finding hard time getting used to CPAP, these tips might be of some help: http://www.apneaboard.com/wiki/index.php...CPAP_users

Edit: whats breakdown of AHI including central events and leak
How many times do you wake up during the night
(This post was last modified: 04-15-2013 05:22 PM by zonk.)
04-15-2013 05:15 PM
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vsheline Offline

Advisory Members

Posts: 1,908
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #6
RE: Update on a newbie
(04-15-2013 05:15 PM)zonk Wrote:  whats breakdown of AHI including central events and leak

Hi djjwilly,

I think most people prefer using EPR, and using EPR often helps lower leaks, too. But a few people (like me) do worse. Using EPR of 3 was more comfortable for me but it was causing my system to have many more central apnea events.

I suggest you look at your data to see how much (if any) of your AHI is from CAI. If your CAI is small relative to your OAI, then EPR may be helpful for you.

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
04-16-2013 02:32 AM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #7
RE: Update on a newbie
Wow. First of all you need to get your AHI down.
What kind of leaks are you getting during the night?
SleepyHead can display that for you as a graph vs time.
I can relate to your TMJ problem.
I have that myself.
I also have issues with mouth falling open so I went with the full face mask and attacked the leaks.
That works.
The full face mask does press in a bit on my lower jaw though so I am getting in some custom athletic mouth guards to help hold alignment while I sleep.

No kidding though, make the leaks your first priority.
Then the rest of the problems can be knocked out one by one.

Cheers!

Smile

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
04-16-2013 12:41 PM
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