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Vertigo/CPAP Pressure Update- CPAP causing inner ear problems
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lac47 Offline

Members

Posts: 18
Joined: Jun 2014

Machine: Philips Respironics REMstar Pro with CFlex DS460P
Mask Type: Nasal mask
Mask Make & Model: Mirage FX
Humidifier: Respironics System One Heated Humidifier
CPAP Pressure: 6
CPAP Software: Not using software SleepyHead

Other Comments:

Sex: Female
Location: Michigan

Post: #61
RE: Vertigo/CPAP Pressure Update- CPAP causing inner ear problems
Hello,
Happily, I haven't had any issues recently with my CPAP, besides sometimes removing it while sleeping...(AHI's under 3 usuallyShy!!) but I stumbled on this topic so I thought I'd ask a question. Since beginning CPAP therapy in June of 2014, I've always felt some right ear stuffiness. Last fall, I started to get random occurrences of a sensation upon standing up after sitting for a long while, like driving or just sitting watching a movie, etc. It feels like instead of tunnel vision leading to fainting, tunnel hearing in both ears, if that makes sense, with the sensation of feeling faint. I saw ENT, with no diagnosis, then a neurologist who did an EEG to rule out seizures, MRI of brain to rule out auditory neuroma; all clear. He now is sending me for a balance test, an ENG (electronystagmogram), and said to try to drink more water... Has anyone ever experienced this loss of hearing sensation? (Has anyone had this test? May induce dizziness...I'm wondering is that for a few minutes or prolonged?)

Wondering if this could be due to CPAP pressures? I try to swallow right before turning on my machine and no more. If I do swallow, my ears plug, so I sit up, turn off the machine, swallow and the pressure in my ears returns to normal. Any input is welcomed.
Thanks,
Lynne
05-06-2015 12:13 PM
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vcottom Offline

Preferred Members

Posts: 27
Joined: Oct 2013

Machine: System One BiPap Pro
Mask Type: Full face mask
Mask Make & Model: Fisher&Paykel 481
Humidifier: DS
CPAP Pressure: 11 > 18
CPAP Software: SleepyHead Other Software

Other Comments:

Sex: Male
Location: Terre Haute, Indiana

Post: #62
RE: Vertigo/CPAP Pressure Update- CPAP causing inner ear problems
[quote='SuperSleeper' pid='780' dateline='1330183123']
[note: parts of this thread were copied from our old forum]

[quote=MRSnooze]The discussion about adjusting your own CPAP pressure caught my attention because my CPAP is apparently causing me serious inner ear problems.

When I turn the machine on I immediately feel pressure inside my ears and it continues throughout the session. I am unable to *pop* or clear my ears and this has developed to the point where it has caused inner ear problems that have made me dizzy, impacted my balance, hearing, etc.. I.e., vertigo.

I saw my sleep specialist, who said he was unfamiliar with any similar troubles by other patients. He surmised my eustachian tubes were not closing properly, the valves in the back of my throat were staying open, allowing the CPAP pressure into the inner ear. His solution was to INCREASE my pressure (which he did himself on the machine during an office visit) and this has made matters substantially worse.

In the meantime I saw my ear, nose and throat specialist who was aghast that the pressure had been raised and urged me to reduce it if I wanted to continue using CPAP (essential for me to get a night's sleep).

Problem: By the time my call to the sleep specialist's local office was returned it was Friday. I was told the assistant would contact the doctor, he would write a revised prescription and then transmit it to the company that services my CPAP machine and they would have a therapist or service person make the appropriate changes.

This leaves me the entire weekend, at a minimum, with either severely impeded sleep or causing myself increased problems using CPAP.

Obviously I want to discuss it with the sleep specialist, or a therapist, but as someone who has six years experience with CPAP I feel confident I know enough to be able to reduce the pressure to a more comfortable level until I can discuss it with a "sleep professional." I'm not simply tinkering with the machine to see what happens.
BPAP as much as possible.
05-07-2015 07:36 PM
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vcottom Offline

Preferred Members

Posts: 27
Joined: Oct 2013

Machine: System One BiPap Pro
Mask Type: Full face mask
Mask Make & Model: Fisher&Paykel 481
Humidifier: DS
CPAP Pressure: 11 > 18
CPAP Software: SleepyHead Other Software

Other Comments:

Sex: Male
Location: Terre Haute, Indiana

Post: #63
RE: Vertigo/CPAP Pressure Update- CPAP causing inner ear problems
I have had the same problems, vertigo, falling, inner ear pain since starting use of my System One. The supplier said the doctor had to authorize any changes, and the doctor said take it up with the supplier. The "system" almost lost a paying customer.

I have read this forum and gained enough knowledge to take care of it myself; Oh and testing, I took the "cell phone" antenna off a year ago, and nobody has said a thing!

Two years now, still using it, still "fine tuning" and breathing much better. Spoke with the Doctor and got the reply "Only ONE of us can be the doctor, if you want to I'll let you." I haven't been back to see him since.

I did start having some loose stools but also had bruised a neck muscle, allowing air from the CPAP to enter my gut. Change sleeping positions, and started exercising my neck muscles.

My oximeter shows a consistent 97 to 99% 24 hours a day no matter what activity I am involved in.
(This post was last modified: 05-07-2015 08:01 PM by vcottom.)
05-07-2015 07:48 PM
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Mosquitobait Offline

Advisory Members

Posts: 743
Joined: Apr 2015

Machine: Resmed AirSense 10 For Her
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10
Humidifier: integrated, Climate line tube
CPAP Pressure: 9-12
CPAP Software: ResScan SleepyHead

Other Comments: RLS and Bradycardia

Sex: Female
Location: Minneapolis

Post: #64
RE: Vertigo/CPAP Pressure Update- CPAP causing inner ear problems
I know this is an oldish post, but I just wanted to mention that there are differences between machines. I have chronic problems with swelling below my ear canal (medical issue) and h ad no problem with either the Resmed S9 and Airsense models, but since I've started using a Respironics auto machine loaner, I was having increasing problems with vertigo every day. Same settings, same masks. Last night, I was so tired of not getting enough rest that I set my pressure for a straight 11 instead of the auto range. Now a straight 11 was what was originally prescribed but I wanted the range so I would be overall at a lower pressure (reducing eye pressure). The vertigo went away. Just over one night.

I don't know why, but maybe the different algorithm on the Respironics machine for auto-titration exacerbates a problem? I know I am constantly waking up with this machine and wasn't with the Resmed. Not saying anything is wrong with Respironics, but if you are having subtle problems, if there is any chance of getting a loaner machine to see if it resolves, it may be worth your time. It may be tough to get though. They gave me a brand new zero hour machine to use until my replacement Airsense arrives, so some, or many, offices may not g ave one. Alternatively, switch to a straight setting as I did.
06-28-2015 10:02 PM
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dizzyat18 Offline

New Members

Posts: 1
Joined: Sep 2015

Machine: unsure
Mask Type: Full face mask
Mask Make & Model: resmed
Humidifier: unsure
CPAP Pressure: 18
CPAP Software: ResScan

Other Comments:

Sex: Female
Location:

Post: #65
RE: Vertigo/CPAP Pressure Update- CPAP causing inner ear problems
as soon as the machine goes on, I get dizzy and I have ear pressure, as though I am in an airplane. I am at a pressure of 18 and feel like I am on some plane flying at g-force. I have only used the machine three times. The tech said it was normal that I would feel pressure in my ears when I started using it.
I have a head ache and feel very very stuffed up -- Cpap or allergies? Either way, I feel like I am going to pass out any minute.
MRSnooze Wrote:The discussion about adjusting your own CPAP pressure caught my attention because my CPAP is apparently causing me serious inner ear problems.

When I turn the machine on I immediately feel pressure inside my ears and it continues throughout the session. I am unable to *pop* or clear my ears and this has developed to the point where it has caused inner ear problems that have made me dizzy, impacted my balance, hearing, etc.. I.e., vertigo.

I saw my sleep specialist, who said he was unfamiliar with any similar troubles by other patients. He surmised my eustachian tubes were not closing properly, the valves in the back of my throat were staying open, allowing the CPAP pressure into the inner ear. His solution was to INCREASE my pressure (which he did himself on the machine during an office visit) and this has made matters substantially worse.

In the meantime I saw my ear, nose and throat specialist who was aghast that the pressure had been raised and urged me to reduce it if I wanted to continue using CPAP (essential for me to get a night's sleep).

Problem: By the time my call to the sleep specialist's local office was returned it was Friday. I was told the assistant would contact the doctor, he would write a revised prescription and then transmit it to the company that services my CPAP machine and they would have a therapist or service person make the appropriate changes.

This leaves me the entire weekend, at a minimum, with either severely impeded sleep or causing myself increased problems using CPAP.

Obviously I want to discuss it with the sleep specialist, or a therapist, but as someone who has six years experience with CPAP I feel confident I know enough to be able to reduce the pressure to a more comfortable level until I can discuss it with a "sleep professional." I'm not simply tinkering with the machine to see what happens.

I really have no choice but to find a way to adjust it myself, or live without it. A real lose-lose situation for me.

So, thank you for posting links to the setup instructions so I can adjust the pressure of my CPAP machine and hopefully find a level that doesn't cause me more problems and still allows me to sleep.

I'd love to hear from anyone who has experienced similar ear problems due to CPAP and any solutions discovered -- besides discontinuing therapy.
[/quote]

09-12-2015 09:59 AM
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