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Waiting for the forbidden APAP
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ncgncg Offline

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Post: #1
Waiting for the forbidden APAP
I had a sleep study in April, but Stanford wouldn't give me an appointment to go over it until August. After I complained, they said they would just mail me the prescription, and indeed I got a prescription in the mail. (There was no titration study, but the prescription is for APAP.)

Meanwhile, though, I've been told by another doctor (the OMS who removed my wisdom teeth) that I can't actually get the mask fitted, let alone use the machine (or sneeze, or drink through straws, or any of a large number of other things). The restrictions apply for another 6 weeks, since to put any differential pressure on the mouth and maxillary sinus would hinder recovery from oro-anthral fistula repair surgery, which is where she plugged up a hole between my mouth and sinus, formed as a complication of the last surgery, through which bacteria enter the sinus and cause chronic sinusitis.

Meanwhile, there are two things I'm trying to do: understand the sleep study report, and do whatever I can do to reduce my apnea short of getting and using the forbidden APAP machine.

I've discussed this before on a forum that dare apparently not speak its name in here, and I would like apologize pre-emptively if I am violating any sort of anti-cross-posting etiquette.

What I have learned so far is that I can work on sleep posture, whether by taking measures to prevent myself from sleeping on my back, or, more radically, by sleeping more or less sitting upright. I tried the upright thing last night and it went surprisingly well.



Admin note: Hi ncgncg, I updated your post and put your CPAP data in a text file attachment, since the code contained in it was causing error messages within our forum software. Folks can open up the text doc (below) if they'd like to read the data you posted. Thanks. -SuperSleeper


Attached File(s)
.txt  data.txt (Size: 6.16 KB / Downloads: 102)
(This post was last modified: 05-26-2013 05:02 PM by ncgncg.)
05-26-2013 05:01 PM
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trish6hundred Offline

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Posts: 6,446
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Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #2
RE: Waiting for the forbidden APAP
Hi ncgncg,
WELCOME! to the forum.!
Hang in there; someone who knows how to interpret the data in your report will be able to help you soon.
Best of luck to you with your CPAP therapy.

trish6hundred
05-26-2013 05:18 PM
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PaulaO2 Offline
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Posts: 8,065
Joined: Feb 2012

Machine: S9 Autoset
Mask Type: Full face mask
Mask Make & Model: F&P Simplus
Humidifier: H5i
CPAP Pressure: 14-20
CPAP Software: SleepyHead

Other Comments: Ehlers-Danlos Syndrome, Hypermobility Type; chronic sarcasm

Sex: Undisclosed
Location: western NC, USA

Post: #3
RE: Waiting for the forbidden APAP
Lemme see if I can do the math.

# of Hypopneas - 87
# of Apnea events - 23
total number of events (87+23) - 110
total time asleep - 5h, 56 min (rounding it up to 6 'cause math ain't my thing)

110 / 6 = 18.33

This means your AHI is roughly 18. That's pretty good. It is just over the limit into moderate severity.

Many people sleep in recliners as an effort to decrease the number of events. This works because your throat tissue is not fighting gravity. Add in the possible swelling from the surgery, and this is your best bet.

To help with the alphabet soup of the report:
- acronyms and abbreviations http://www.apneaboard.com/wiki/index.php?title=Acronyms
- how to interpret the report http://www.apneaboard.com/wiki/index.php...rpretation
- glossary and definitions http://www.apneaboard.com/wiki/index.php?title=Definitions

PaulaO2
Apnea Board Moderator
www.ApneaBoard.com


Breathe deeply and count to zen.

INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
05-26-2013 06:55 PM
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Sleepster Offline
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Machine: ResMed AirCurve10 VAuto
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CPAP Pressure: MaxI 13.6 | MinE 5.2 | PS 4.4
CPAP Software: ResScan SleepyHead

Other Comments: Diagnosed Nov 2011. Conquered aerophagia.

Sex: Male
Location: Houston, Texas

Post: #4
RE: Waiting for the forbidden APAP
You had more events while supine (sleeping on your back) so I would recommend you sleep in your upright position as that seems to work for you. If you do decide to sleep in a horizontal position you could sew a tennis ball into the back of a t-shirt to prevent you from sleeping on your back.

Sleepster
Apnea Board Moderator
www.ApneaBoard.com


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
05-26-2013 11:25 PM
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ncgncg Offline

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Post: #5
RE: Waiting for the forbidden APAP
Yeah, the upright thing works. Thanks

The first night it was very strange getting up. I've had to get up slowly in the morning to avoid dizziness since I was a kid. I've been told it's called orthostatic hypotension, and I had it when my blood pressure was healthy, I had it when it became too high, and I still have it now that I take medication to lower it. My mom has it worse.

After nearly 30 years of getting up carefully to avoid being dizzy and bumping into things, my brain got majorly freaked out when for a change it did not happen. Huhsign

But yeah, the upright thing seems to work. The pain from the surgery is going away really fast now, so tomorrow I'll hopefully be able to sleep without a 4am break to take more Vicodin, which should further improve things.
05-27-2013 01:17 PM
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iSnooze Offline
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Posts: 239
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Machine: Respironics PR System One C-Flex+
Mask Type: Nasal mask
Mask Make & Model: Resmed Mirage Micro
Humidifier: System One Heated Humidifier
CPAP Pressure: 11
CPAP Software: SleepyHead

Other Comments: also use a Comfort Gel Full Mask by Respironics

Sex: Female
Location: Indiana

Post: #6
RE: Waiting for the forbidden APAP
Hey ncgncg, Welcome to our forum.

Sorry to hear about the sinus surgery. That sounded awful and painful. You are in the right place to find out as much as you can about cpap therapy before you actual start. Even though you aren't using the machine yet, don't hesitate to ask questions you have.
05-28-2013 07:23 PM
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ncgncg Offline

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Post: #7
RE: Waiting for the forbidden APAP
Thanks iSnooze! My cheeks have shrunk back to normal proportions, I am taking no more Vicodin, and I even interviewed for a job yesterday, which took all day. When I explained why I'd only have the mashed potatoes at lunch, my potential future coworkers commiserated.

As for sleeping: I slept upright against the tabletop contraption twice, and then the normal way twice. Upright against the tabletop, I woke up calm and rested. The normal way, I slept even worse than normal: the swelling from the surgery must be exacerbating the apnea. I woke up several times remembering unpleasant dreams of impending awful things happening to me or my siblings, then at 7am I'd wake up to the alarm but not actually feel awake until one modafinil, two coffees, and 4 hours later.

So upright is clearly the way to go.

I'm fed up with the tabletop contraption, though. It sorta works, but it's far less comfortable than laying down on a real mattress. It requires a fair amount of willpower not to slouch down when trying to fall asleep.

So I went and ordered a recliner at the local La-Z-Boy showroom. I sat in some and it seems feasible to find an angle that is both comfortable and likely to do the trick. The sales guy was very helpful and helped me pick one that's in stock locally so I can pick it up tomorrow morning at their warehouse in San Jose. It's not exactly my taste in furniture, but hey, you gotta make sacrifices for your health, right? ;-)
05-29-2013 11:10 PM
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iSnooze Offline
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Advisory Members

Posts: 239
Joined: Feb 2012

Machine: Respironics PR System One C-Flex+
Mask Type: Nasal mask
Mask Make & Model: Resmed Mirage Micro
Humidifier: System One Heated Humidifier
CPAP Pressure: 11
CPAP Software: SleepyHead

Other Comments: also use a Comfort Gel Full Mask by Respironics

Sex: Female
Location: Indiana

Post: #8
RE: Waiting for the forbidden APAP
Using a tabletop contraption does not sound comfortable at all. I hope the La-Z-Boy gives you a good night's sleep without slowing down your recovery from the surgery. Keep us posted.
05-31-2013 06:39 PM
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genes Offline

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Post: #9
RE: Waiting for the forbidden APAP
(06-01-2013 10:14 PM)genes Wrote:  One thing to learn is
That cpap does not work when you breath in with a nasal mask.
Genes
Breath in thru your mouth I meant to say.
(This post was last modified: 06-01-2013 10:17 PM by genes.)
06-01-2013 10:14 PM
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racprops Offline

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Sex: Male
Location: Phoenix AZ

Post: #10
RE: Waiting for the forbidden APAP
My thread about Positional-Apneas may help as well.

http://www.apneaboard.com/forums/Thread-Positional-Apneas

Rich
06-02-2013 10:10 AM
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