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Waking up from apneas with Cpap
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trish6hundred Offline

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Posts: 6,436
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #11
RE: Waking up from apneas with Cpap
Hi ScrewtapeJenkins,
WELCOME! to the forum.!
I would say to skip the oximeter and get the S9AutoSet.
As you pointedout, the machine you are using at this point is old. I think you can adjust pressure with it but you need a manometer to help you adjust it. I think there are a couple screws that control pressure on that older machine but I'm not sure about that. I think somewhere on this board there is a thread about making a homeade manometer.
If you get the S9Autoset, you'll have a fully data-capable machine and it offers a feature called maskfit that the machine you are using now probably doesn't have.
Hang in there for more responses to your post.
Good luck to you and do keep us posted.

trish6hundred
07-29-2013 01:29 PM
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Shastzi Offline

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Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #12
RE: Waking up from apneas with Cpap
(07-29-2013 10:48 AM)ScrewtapeJenkins Wrote:  So, did you not have a sleep study at all? I had a sleep study and I think I'm in the ballpark (upping my pressure to 13.4 seemed to do wonders for me last night). Could I skip the wrist oximeter (which amazon lists at $250) and just go with the S9 Autoset? And does the SleepyHead software come with the S9 or is that a separate purchase?

I think I actually saw the S9 when I went to pick up my new mask and have my pressure set. It was the only auto-titrating cpap they had in the store. The price was similar. I'd pretty much made up my mind even before reading your post that I was going to have to find a way to save up $700 to get an auto-titrating machine. One of my early plans before I used a year saving up the $2000 to have my sleep study done was to just have my dad (who had a prescription for a cpap) go in and buy an auto-titrating machine for me, and skip the sleep study and just do that. I decided to do the thing honest because I thought a doctor would give me more precise help than a machine. I'm starting to think I made exactly the wrong decision.


A complete Sleep study in my area is over $16,000 so I have been unable
to come up with that kind of money in a timely way.
If the cost of that kind of medical care were more attainable like $1,600,
I would be more likely to do things in a traditional manner but time and tide wait for no one.
So I did what I had to do in order to get treated.

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
07-29-2013 02:40 PM
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Paptillian Offline

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Posts: 474
Joined: Jun 2013

Machine: S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Swift FX
Humidifier: H5i
CPAP Pressure: 4 - 10, EPR x2
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Pennsylvania, USA

Post: #13
RE: Waking up from apneas with Cpap
(07-29-2013 02:40 PM)Shastzi Wrote:  A complete Sleep study in my area is over $16,000

Bug-eyed Crazy

A little north of $11k here, minus doctor fees (for a 2-night study w/ titration).

However, adjusted for insurance, it's about $6-7k before they pay their share.

That means that about $5k of the sticker price is just fairy tale fluff.
07-29-2013 02:56 PM
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ScrewtapeJenkins Offline

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Posts: 22
Joined: Jul 2013

Machine: PR System One Remstar Auto A-Flex
Mask Type: Nasal mask
Mask Make & Model: unsure
Humidifier: HumidAire 3i
CPAP Pressure: 10-20
CPAP Software: EncoreBasic

Other Comments:

Sex: Male
Location:

Post: #14
RE: Waking up from apneas with Cpap
(07-29-2013 01:29 PM)trish6hundred Wrote:  Hi ScrewtapeJenkins,
WELCOME! to the forum.!
I would say to skip the oximeter and get the S9AutoSet.
As you pointedout, the machine you are using at this point is old. I think you can adjust pressure with it but you need a manometer to help you adjust it. I think there are a couple screws that control pressure on that older machine but I'm not sure about that. I think somewhere on this board there is a thread about making a homeade manometer.
If you get the S9Autoset, you'll have a fully data-capable machine and it offers a feature called maskfit that the machine you are using now probably doesn't have.
Hang in there for more responses to your post.
Good luck to you and do keep us posted.

No, I can adjust it on the machine. It has an LED screen and everything, it's not a hand crank, lol.
(07-29-2013 02:40 PM)Shastzi Wrote:  
(07-29-2013 10:48 AM)ScrewtapeJenkins Wrote:  So, did you not have a sleep study at all? I had a sleep study and I think I'm in the ballpark (upping my pressure to 13.4 seemed to do wonders for me last night). Could I skip the wrist oximeter (which amazon lists at $250) and just go with the S9 Autoset? And does the SleepyHead software come with the S9 or is that a separate purchase?

I think I actually saw the S9 when I went to pick up my new mask and have my pressure set. It was the only auto-titrating cpap they had in the store. The price was similar. I'd pretty much made up my mind even before reading your post that I was going to have to find a way to save up $700 to get an auto-titrating machine. One of my early plans before I used a year saving up the $2000 to have my sleep study done was to just have my dad (who had a prescription for a cpap) go in and buy an auto-titrating machine for me, and skip the sleep study and just do that. I decided to do the thing honest because I thought a doctor would give me more precise help than a machine. I'm starting to think I made exactly the wrong decision.


A complete Sleep study in my area is over $16,000 so I have been unable
to come up with that kind of money in a timely way.
If the cost of that kind of medical care were more attainable like $1,600,
I would be more likely to do things in a traditional manner but time and tide wait for no one.
So I did what I had to do in order to get treated.

You should spend some time in North Carolina. I got a split-night study for less than $1000. I didn't get the best care, but all I wanted was the ability to buy a cpap machine.

$16,000 is absolutely insane.
(This post was last modified: 07-29-2013 04:59 PM by ScrewtapeJenkins.)
07-29-2013 04:57 PM
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vsheline Online

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Posts: 1,908
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #15
RE: Waking up from apneas with Cpap
(07-29-2013 12:39 PM)ScrewtapeJenkins Wrote:  I am correct, though, that a person on cpap shouldn't experience events of waking up gasping for air? Even if I had a mask that was leaking a little bit, that shouldn't happen, right?

Hi ScrewtapeJenkins,

You are absolutely correct that you should not be waking up gasping for air.

There are three things which are likely to cause this problem:

1.) Sleep position. When we roll onto our back our pressure needs are usually much higher, especially when we are in REM sleep stage. Solution: wear a snug fitting teeshirt with a tennis ball in a pocket sewn right between the shoulder blades. It really works great me. Or, I think Shastzi prefers a light knapsack with a couple tubes of tennis balls in the knapsack.

2.) Large leaks can cause the pressure to be too low and can allow apneas. This is one of the reasons a data-capable machine is needed, so you can see full details on what was happening while you were sleeping.

3.) On fixed CPAP machines, the prescribed pressure may be too low. Our needs vary from night to night, so often a titration sleep study will end up prescribing too low of a pressure.

During titrations, it is common for therapists to raise the pressure in steps of 1 cmH2O, or in steps of 2 cmH2O if time is short like sometimes happens in a split night study when the patient is unable to fall sleep right away. So I would not be hesitant to raise the pressure to 14 or 15. However, I suspect that if you can make sure you stay off your back when asleep (as per item 1 above), the waking-up-gasping-for-air will stay away and a pressure of 13 will likely be more than ever needed, because the 13 was likely measured during your titration while you were sleeping on your back.

By the way, do not get a ResMed Escape Auto. Avoid any ResMed machine with Escape in the name, or any Philips Respironics model with Plus in the name, because these are not fully data-capable machines.

A "gently used" S9 AutoSet with humidifier and heated hose is $569 from Supplier #2 on our supplier list.

In the mean time, be sure to change the air filter occasionally (like monthly) on your current and future machines.

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
(This post was last modified: 07-29-2013 07:03 PM by vsheline.)
07-29-2013 06:36 PM
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ScrewtapeJenkins Offline

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Posts: 22
Joined: Jul 2013

Machine: PR System One Remstar Auto A-Flex
Mask Type: Nasal mask
Mask Make & Model: unsure
Humidifier: HumidAire 3i
CPAP Pressure: 10-20
CPAP Software: EncoreBasic

Other Comments:

Sex: Male
Location:

Post: #16
RE: Waking up from apneas with Cpap
So, it was happening again last night. I increased my pressure to 14, I slept on my stomach, my mask was as airtight as I could make it, and I was still waking up lightheaded with my heart racing multiple times. It's like sometimes I forget to breathe at night. I don't really know what's going on.
07-30-2013 02:45 PM
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vsheline Online

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Posts: 1,908
Joined: Jul 2012

Machine: S9 VPAP Adapt (USA Model# 36007, not better 36037 or 36067)
Mask Type: Full face mask
Mask Make & Model: F10 or SimPlus w/ 2Liners. MirageQuatro & Gecko gel pad
Humidifier: H5i
CPAP Pressure: 15 EPAP, PS 5-10
CPAP Software: ResScan

Other Comments: Marfan Syndrome, chronic bradycardia, occasional Cheyne-Stokes Respiration

Sex: Male
Location: California, USA

Post: #17
RE: Waking up from apneas with Cpap
(07-30-2013 02:45 PM)ScrewtapeJenkins Wrote:  So, it was happening again last night.

Hi ScrewtapeJenkins,

Have you been able to obtain a copy of your full sleep report, including time plots of events?

Does the sleep report show central apneas (several per hour)?

Take care,
--- Vaughn

Membership in the Advisory Member group should not be understood as in any way implying medical expertise or qualification for advising Sleep Apnea patients concerning their treatment. The Advisory Member group provides advice and suggestions to Apnea Board administrators and staff on matters concerning Apnea Board operation and administrative policies - not on matters concerning treatment for Sleep Apnea. I think it is now too late to change the name of the group but I think Voting Member group would perhaps have been a more descriptive name for the group.
07-31-2013 01:33 AM
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