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Weird face
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Mark Douglas Offline

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Posts: 513
Joined: Apr 2015

Machine: Sys 1 (60) RemStar BiPAP Auto with Bi-Flex 760P Auto Bi-Level (Variabl
Mask Type: Nasal mask
Mask Make & Model: PR Wisp
Humidifier: PR Sys One heated
CPAP Pressure: RiseTime 3 Fxd E-9.0 / I-11.5
CPAP Software: SleepyHead EncoreBasic

Other Comments: Hashimoto's thyroiditis.

Sex: Male
Location: SW Ohio

Post: #1
Weird face
Now on my 4th FFM and still no joy. Am in contact with a local laser scanning firm to scan my face and provide a thickened STL for use with a stereolithograph to make a mask that fits!

I use my PAP machine nightly and I feel great!
Updated: Philips Respironics System One (60 Series)
RemStar BiPAP Auto with Bi-FlexModel 760P -
Rise Time x3 Fixed Bi-Level EPAP 9.0 IPAP 11.5 (cmH2O)
08-07-2015 08:35 PM
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Sleeprider Online
Wiki Editor
Advisory Members

Posts: 3,309
Joined: Dec 2014

Machine: Resmed Aircurve 10 Vauto
Mask Type: Nasal pillows
Mask Make & Model: Resmed Airfit P10
Humidifier: Resmed Climateline
CPAP Pressure: Auto Bilevel 18/9, PS 3
CPAP Software: ResScan SleepyHead EncoreBasic

Other Comments:

Sex: Male
Location: Where they make Respironics

Post: #2
RE: Weird face
That's the first I've heard of this. Are you planning to 3D print your mask? What is the cost?

Have you tried Hybrid or cloth FFM?

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08-07-2015 09:37 PM
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TyroneShoes Offline

Preferred Members-2

Posts: 505
Joined: Oct 2014

Machine: Resmed S9 Autoset
Mask Type: Nasal pillows
Mask Make & Model: AirFit P10
Humidifier: Resmed H5i
CPAP Pressure: 10-14
CPAP Software: SleepyHead

Other Comments:

Sex: Undisclosed
Location:

Post: #3
RE: Weird face
Yes, I've lived with one of those weird faces my entire life.
08-07-2015 09:44 PM
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Mark Douglas Offline

Advisory Members

Posts: 513
Joined: Apr 2015

Machine: Sys 1 (60) RemStar BiPAP Auto with Bi-Flex 760P Auto Bi-Level (Variabl
Mask Type: Nasal mask
Mask Make & Model: PR Wisp
Humidifier: PR Sys One heated
CPAP Pressure: RiseTime 3 Fxd E-9.0 / I-11.5
CPAP Software: SleepyHead EncoreBasic

Other Comments: Hashimoto's thyroiditis.

Sex: Male
Location: SW Ohio

Post: #4
RE: Weird face
Making this up as I go along. I am back to sick and tired of being sick and tired and jerked around.


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I use my PAP machine nightly and I feel great!
Updated: Philips Respironics System One (60 Series)
RemStar BiPAP Auto with Bi-FlexModel 760P -
Rise Time x3 Fixed Bi-Level EPAP 9.0 IPAP 11.5 (cmH2O)
08-08-2015 09:59 AM
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MobileBasset Offline

Advisory Members

Posts: 198
Joined: May 2015

Machine: ResMed AIRCURVE 10 V Auto
Mask Type: Nasal mask
Mask Make & Model: Fisher Paykel Zest
Humidifier: Integrated
CPAP Pressure: 10 (minE 6,maxI 12, PS 3)
CPAP Software: ResScan SleepyHead Other Software

Other Comments:

Sex: Female
Location: Florida

Post: #5
RE: Weird face
Veery innnteresting...... Please keep us updated on your progress.

if you can't decide then you don't have enough data.
08-08-2015 10:33 AM
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me50 Offline

Advisory Members

Posts: 2,559
Joined: Aug 2013

Machine: resmed S9 VPAP Auto
Mask Type: Nasal mask
Mask Make & Model: Wisp and Silicone Head gear
Humidifier: resmed H5i
CPAP Pressure: 18/8
CPAP Software: SleepyHead

Other Comments:

Sex: Undisclosed
Location: USA

Post: #6
RE: Weird face
(08-07-2015 08:35 PM)Mark Douglas Wrote:  Now on my 4th FFM and still no joy. Am in contact with a local laser scanning firm to scan my face and provide a thickened STL for use with a stereolithograph to make a mask that fits!

Isn't this really expensive?

Just curious why you need a FFM. Is it possible that nasal mask or nasal pillows will work for you?
08-08-2015 11:37 AM
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Mark Douglas Offline

Advisory Members

Posts: 513
Joined: Apr 2015

Machine: Sys 1 (60) RemStar BiPAP Auto with Bi-Flex 760P Auto Bi-Level (Variabl
Mask Type: Nasal mask
Mask Make & Model: PR Wisp
Humidifier: PR Sys One heated
CPAP Pressure: RiseTime 3 Fxd E-9.0 / I-11.5
CPAP Software: SleepyHead EncoreBasic

Other Comments: Hashimoto's thyroiditis.

Sex: Male
Location: SW Ohio

Post: #7
RE: Weird face
(08-08-2015 11:37 AM)me50 Wrote:  
(08-07-2015 08:35 PM)Mark Douglas Wrote:  Now on my 4th FFM and still no joy. Am in contact with a local laser scanning firm to scan my face and provide a thickened STL for use with a stereolithograph to make a mask that fits!

Isn't this really expensive?
In progress so do not know yet. As I have $600 in masks that don't work how do I define 'expensive'?

Just curious why you need a FFM. Is it possible that nasal mask or nasal pillows will work for you?
Nope. Wisp with a chinstrap is better than nothing but nowhere near successful.

I use my PAP machine nightly and I feel great!
Updated: Philips Respironics System One (60 Series)
RemStar BiPAP Auto with Bi-FlexModel 760P -
Rise Time x3 Fixed Bi-Level EPAP 9.0 IPAP 11.5 (cmH2O)
08-08-2015 12:07 PM
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PaytonA Offline
Wiki Editor
Monitors

Posts: 3,002
Joined: Dec 2013

Machine: ResMed S9 VPAP Auto
Mask Type: Full face mask
Mask Make & Model: Resmed Mirage Quattro
Humidifier: H5i(distilled-top up)
CPAP Pressure: VAuto MinE14.0 MaxI 20.6 PS4.0
CPAP Software: ResScan SleepyHead

Other Comments:

Sex: Male
Location: Orange County,California

Post: #8
RE: Weird face
What are you planning to use for headgear?? Are you going to make your own seals? Are you going to use your own hose fastening fitting or use one readily available? Again, are you going to design your own anti-suffocation valve or use one that is readily available? Sounds like an interesting procedure. I hope that you are successful without too much cost. It seems to me that I remember another forum member who had a custom mold cast and if I remember the cost was several thousands of dollars. If I remember correctly, it did not work out that well. On the other hand that person did not seem as dedicated to making it work as you seem. That person also did not have as much control of the design and process as you will have.

Good luck and have fun!

PaytonA
08-08-2015 12:27 PM
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Shastzi Offline

Advisory Members

Posts: 1,174
Joined: Dec 2012

Machine: ResMed S9 Autoset
Mask Type: Full face mask
Mask Make & Model: FitLife Total face mask
Humidifier: F&P HC150 with Hybernite heated hose.
CPAP Pressure: 15cm-20cm H2O (auto)
CPAP Software: SleepyHead Other Software

Other Comments: CMS50-F wearable Oximeter; Software: SPO2 Assistant

Sex: Undisclosed
Location: Florida, USA.

Post: #9
RE: Weird face
Sounds great, Mark.

I had to try at least 8-9 masks before I could find a couple of top candidates.

I know we have some folks here with mask fitting problems that will be glad to hear there is a path to relief.

Well-done

"With ordinary talent and extraordinary perseverance, all things are attainable." - Thomas Foxwell Buxton

Cool
08-09-2015 11:48 AM
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