Post Reply 
Went to AWAKE Meeting tonight
Author Message
Sparkle Offline

Preferred Members-2

Posts: 131
Joined: Jan 2015

Machine: Res Med Air Sense 10 Auto Set
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro
Humidifier: ResMed S10 37028
CPAP Pressure: 4-14
CPAP Software: SleepyHead

Other Comments: 3 brothers on CPAP; rescue mom to Bootsie Bella; wishes the APAP matched the decor in my bedroom :)

Sex: Female
Location: Northeastern MA

Post: #1
Went to AWAKE Meeting tonight
Hi everyone ~

I went to the AWAKE Support group meeting tonight. It started at 6:30. There was cheese and crackers, fruit, vegetables and dip, beverages, and baked goods for everyone. Around the perimeter of the room there were four different companies that had tables set up with various models of machines, masks, etc.

At 7pm there was a nurse practitioner introduced that gave a phenomenal presentation on Sleep Apnea and Diabetes. She talked about your body benefits from good quality sleep and how those benefits stave off Diabetes and also the things that happen to your body when you are not getting sleep and how those things can contribute to Diabetes. She discussed the overall relationship between Sleep apnea and Diabetes. She said that for people who were on CPAP but didn't yet have diabetes but whose insulin/leptides/etc. (a whole bunch of hormones are involved in sleep) numbers were being impacted the numbers reversed to the good after only 2 nights of CPAP treatment. Literally hormone production (or nonproduction) as the case may be can turn around for the good almost immediately.

I wish she had hard copies of her presentation. I would have loved to share it with you.

The turnout was much higher than I expected - there were at least fifty people there. The moderator invited the CPAP reps to the podium if they were interested and ResMed got up there and talked about the A10 Auto Sense (my machine) -- many people there were in awe of it - I was so happy it was my machine - I think there was some CPAP envy in the room tonight lol

The meeting was ended with a raffle - about a dozen prizes were given out. Someone won a heated hose, another person a mask, and can you believe guess what I won ....... mask liners. How crazy is that!?!

All in all, I'm glad I went - I had to cancel out of another more "fun" night but it was definitely worth it. Next meeting is in May.

Sweet Dreams everyone Smile
02-26-2015 11:04 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
zonk Offline

Advisory Members

Posts: 7,908
Joined: Feb 2012

Machine: A10 AutoSet
Mask Type: Nasal mask
Mask Make & Model: Activa LT
Humidifier: Integrated /ClimateLineAir
CPAP Pressure: 9/13
CPAP Software: ResScan

Other Comments: CPAP since Nov 2010

Sex: Male
Location: Australia

Post: #2
RE: Went to AWAKE Meeting tonight
Support teams are really helpful ... especially for newbies who need some helps and advice about masks choices/fittings, equipment cleaning, mouth breathing, leaks, nasal discomfort, CPAPs what to buy and what to avoid, etc ... and of course the secret handshake and the software to track one therapy and the know-how to optimize it

This board meet all the above, I,m not knocking awake groups but they have limitation as they don't subscribe to patient empowerment and no ResMed rep going to get up and tell you what buttons to push to access the clinical menu
02-26-2015 11:36 PM
Find all posts by this user Post Reply Quote this message in a reply
DariaVader Offline
Apnea Board Facebook Editor
Monitors

Posts: 1,820
Joined: Nov 2014

Machine: Resmed S9 AutoSet
Mask Type: Nasal pillows
Mask Make & Model: Airfit P10 for Her
Humidifier: H5i humidifier with ClimateLine heated hose
CPAP Pressure: 8-15
CPAP Software: SleepyHead

Other Comments: diabetes II, Thyroidectomized, Primary Immune Deficiency, and the list goes on :P

Sex: Female
Location: Oregon

Post: #3
RE: Went to AWAKE Meeting tonight
(02-26-2015 11:04 PM)Sparkle Wrote:  and can you believe guess what I won ....... mask liners. How crazy is that!?!

hahahaha that is great!

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
Tongue Suck Technique for prevention of mouth breathing:
  • Place your tongue behind your front teeth on the roof of your mouth
  • let your tongue fill the space between the upper molars
  • gently suck to form a light vacuum
Practising during the day can help you to keep it at night

هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه هههههه
02-27-2015 01:03 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Sparkle Offline

Preferred Members-2

Posts: 131
Joined: Jan 2015

Machine: Res Med Air Sense 10 Auto Set
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro
Humidifier: ResMed S10 37028
CPAP Pressure: 4-14
CPAP Software: SleepyHead

Other Comments: 3 brothers on CPAP; rescue mom to Bootsie Bella; wishes the APAP matched the decor in my bedroom :)

Sex: Female
Location: Northeastern MA

Post: #4
RE: Went to AWAKE Meeting tonight
(02-26-2015 11:36 PM)zonk Wrote:  Support teams are really helpful ... especially for newbies who need some helps and advice about masks choices/fittings, equipment cleaning, mouth breathing, leaks, nasal discomfort, CPAPs what to buy and what to avoid, etc ... and of course the secret handshake and the software to track one therapy and the know-how to optimize it

This board meet all the above, I,m not knocking awake groups but they have limitation as they don't subscribe to patient empowerment and no ResMed rep going to get up and tell you what buttons to push to access the clinical menu

I went because I am information hungry right now. This diagnosis has me swirling a bit - all kinds of thoughts running through my head, and yes, though I'm feeling better and would not even entertain the thought of sleeping without the CPAP for one single instant (and this after only six weeks of therapy) I somehow cannot wrap my head around the fact that this condition is only treated and not cured.

Last night I met a man whose dr ordered another sleep test for him because it was time for a new machine. Five years had elapsed since his first sleep study. He had used the machine faithfully every day over the course of those five years. The results of his new sleep study were nearly identical to his original one five years earlier. I guess I shouldn't be surprised given what I know from this board but it is discouraging.

Besides they have really great raffle prizes Smile
02-27-2015 08:21 AM
Find all posts by this user Post Reply Quote this message in a reply
truetopath Offline

Preferred Members-2

Posts: 421
Joined: Feb 2015

Machine: PR system one 560p auto with a flex
Mask Type: Full face mask
Mask Make & Model: Resumed F10
Humidifier: PR system one
CPAP Pressure: 11
CPAP Software: SleepyHead

Other Comments:

Sex: Male
Location: Lake View, NY

Post: #5
RE: Went to AWAKE Meeting tonight
Congrats on the win!
02-27-2015 08:48 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Sparkle Offline

Preferred Members-2

Posts: 131
Joined: Jan 2015

Machine: Res Med Air Sense 10 Auto Set
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro
Humidifier: ResMed S10 37028
CPAP Pressure: 4-14
CPAP Software: SleepyHead

Other Comments: 3 brothers on CPAP; rescue mom to Bootsie Bella; wishes the APAP matched the decor in my bedroom :)

Sex: Female
Location: Northeastern MA

Post: #6
RE: Went to AWAKE Meeting tonight
(02-27-2015 08:48 AM)truetopath Wrote:  Congrats on the win!

Thank you! So excited to have won something I can use Smile
02-27-2015 09:07 AM
Find all posts by this user Post Reply Quote this message in a reply
trish6hundred Offline

Advisory Members

Posts: 6,436
Joined: May 2012

Machine: Resmed S9 AutoSet for Her
Mask Type: Full face mask
Mask Make & Model: Fisher & Paykel Simplus
Humidifier: H5i Heated Humidifier
CPAP Pressure: 10 - 7-20 Cm H2O
CPAP Software: Not using software

Other Comments: I started CPAP in 2008. Totally blind since birth.

Sex: Female
Location: Missouri, USA

Post: #7
RE: Went to AWAKE Meeting tonight
Hi Sparkle,
Sounds like you had a good time last night and it's great that you won something you could actually use.
Keep up the good work with your CPAP therapy.

trish6hundred
02-27-2015 10:17 AM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
player Offline

Advisory Members

Posts: 412
Joined: Feb 2015

Machine: Resmed A10 Autoset For Her
Mask Type: Nasal pillows
Mask Make & Model: Resmed A10
Humidifier: Resmed A10 Autosset
CPAP Pressure: 11-16
CPAP Software: SleepyHead

Other Comments: It's a... mad world...

Sex: Male
Location: Canada

Post: #8
RE: Went to AWAKE Meeting tonight
The only hope for a cure (other than painful, not very successful surgery) that I have heard about is weight loss. Some people that lose weight lose their apnea as well.
02-27-2015 01:18 PM
Find all posts by this user Post Reply Quote this message in a reply
Mr. Van Winkle Offline

Advisory Members

Posts: 257
Joined: Nov 2014

Machine: Resmed Airsense 10 Autoset
Mask Type: Nasal mask
Mask Make & Model: F&P Eson
Humidifier: Airsense
CPAP Pressure: 9 -15
CPAP Software: ResScan SleepyHead Other Software

Other Comments:

Sex: Male
Location: Minnesota

Post: #9
RE: Went to AWAKE Meeting tonight
(02-27-2015 08:21 AM)Sparkle Wrote:  
(02-26-2015 11:36 PM)zonk Wrote:  Support teams are really helpful ... especially for newbies who need some helps and advice about masks choices/fittings, equipment cleaning, mouth breathing, leaks, nasal discomfort, CPAPs what to buy and what to avoid, etc ... and of course the secret handshake and the software to track one therapy and the know-how to optimize it

This board meet all the above, I,m not knocking awake groups but they have limitation as they don't subscribe to patient empowerment and no ResMed rep going to get up and tell you what buttons to push to access the clinical menu

I went because I am information hungry right now. This diagnosis has me swirling a bit - all kinds of thoughts running through my head, and yes, though I'm feeling better and would not even entertain the thought of sleeping without the CPAP for one single instant (and this after only six weeks of therapy) I somehow cannot wrap my head around the fact that this condition is only treated and not cured.

Last night I met a man whose dr ordered another sleep test for him because it was time for a new machine. Five years had elapsed since his first sleep study. He had used the machine faithfully every day over the course of those five years. The results of his new sleep study were nearly identical to his original one five years earlier. I guess I shouldn't be surprised given what I know from this board but it is discouraging.

Besides they have really great raffle prizes Smile

I hope your rash is improving , how nice to win something you could use.
That gentleman you spoke with must not check any of his own data, does he even know of Sleepyhead or this fine board?
Too bad to go 5 years with no results Sad.
Thanks for the report from your Awake meeting , I'm guessing you didn't eat the treats Smile Good job on your loss!

Mr. Van Winkle
Sleep-well
(This post was last modified: 02-27-2015 04:17 PM by Mr. Van Winkle.)
02-27-2015 04:16 PM
Find all posts by this user Post Reply Quote this message in a reply

Donate to Apnea Board
Sparkle Offline

Preferred Members-2

Posts: 131
Joined: Jan 2015

Machine: Res Med Air Sense 10 Auto Set
Mask Type: Full face mask
Mask Make & Model: ResMed Quattro
Humidifier: ResMed S10 37028
CPAP Pressure: 4-14
CPAP Software: SleepyHead

Other Comments: 3 brothers on CPAP; rescue mom to Bootsie Bella; wishes the APAP matched the decor in my bedroom :)

Sex: Female
Location: Northeastern MA

Post: #10
RE: Went to AWAKE Meeting tonight
(02-27-2015 04:16 PM)Mr. Van Winkle Wrote:  [

I hope your rash is improving , how nice to win something you could use.
That gentleman you spoke with must not check any of his own data, does he even know of Sleepyhead or this fine board?
Too bad to go 5 years with no results Sad.
Thanks for the report from your Awake meeting , I'm guessing you didn't eat the treats Smile Good job on your loss!

Mr. Van Winkle
Sleep-well
[/quote]

Yes - thank you, it is Mr. V.W - another dearly beloved CPAP friend Smile

The gentleman that told me his story struck me, as did very many people who attended last night, as not being internet/computer savvy. You should have seen the reaction of the room when the ResMed rep was describing how the A10 had the capability of communicating to the supplier. I mentioned this board to a couple of people but no one had heard of it.

Now, maybe, just maybe, I can do a talk at one of the meetings and enlighten all of them to this board's existence Smile
02-27-2015 04:46 PM
Find all posts by this user Post Reply Quote this message in a reply
Post Reply 


Possibly Related Threads...
Thread: Author Replies: Views: Last Post
  Am I awake? mcsheltie 4 233 11-14-2016 02:38 PM
Last Post: mcsheltie
  Power Outage: Stay Awake Or Sleep W/O CPAP? player 11 709 10-26-2016 08:29 PM
Last Post: sonicboom
  Why Are AHI High When Wide Awake? Dreams of Green 7 657 10-18-2016 09:35 PM
Last Post: 0rangebear
  New Chin Strap experiment tonight FrankNichols 4 348 09-13-2016 03:41 PM
Last Post: BadGoodDeb
  ANY BENEFIT WHILE AWAKE srlevine1 7 793 06-14-2016 07:30 PM
Last Post: raisedfist
  first couple of hours while awake plaidwandering 6 564 04-28-2016 08:38 PM
Last Post: trish6hundred
Question Awake periodic breathing/ desats, otherwise healthy? (+sleep apnoea) Carbon 7 983 03-02-2016 06:46 AM
Last Post: Carbon

Forum Jump:

Who's Online (Complete List)